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rhondamcminn

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MLD FOUNDATION
June 9, 2011

The MLD Foundation has helped me and my family in so many ways. If I have a question about MLD I can post it through the email discussion board and someone replies almost instantly. The MLD Foundation has always been there for emotional support as well as providing updates and resources for MLD. This year at the upcoming MLD Conference a Webinar is being offered for those that cannot attend.

The Great!

I've personally experienced the results of this organization in...

Through the email discussion that occurs on a daily basis.

Ways to make it better...

If I had to make changes to this organization, I would...

None, Dean and Teryn have done a fantastic job with everything.

MY ROLE:
Client Served & I participate in the MLD Discussion .

MLD FOUNDATION
June 17, 2010

Tell your story here and help others understand this charity Teryn sent me an email shortly after my son was diagnosed with MLD. She and her husband, Dean introduced me to an amazing discussion board that is tailored to the families around the world that have children, family members, and spouses with MLD. This organization has helped so many people in so many ways. The MLD Foundation has helped me through many trying times and I am grateful that they have made this available to all of us. Rhonda McMinn ( Tyler, 6)

The Great!

I've personally experienced the results of this organization in...

My personal life. As I mentioned earlier, this organization has helped so many of us that have children, family members, and spouses with MLD. This is a place I can come to everyday and ask a question without being judged and I can give advise to others.

Ways to make it better...

If I had to make changes to this organization, I would...

I can't think of any changes that need to be made.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

The freedom to ask anything without being judged and getting great feedback.

The kinds of staff and volunteers that I met were...

Dean and Teryn are such wonderful people and i am very greatful that they started the MLD Foundation.

If this organization had 10 million bucks, it could...

Coordinate more conferences to bring awareness to the public about this horrible disease, MLD.

Ways to make it better...

I haven't had a bad experience.

In my opinion, the biggest challenges facing this organization are...

That the conferences are not available in all parts of the country.

One thing I'd also say is that...

I hope that the MLD Foundation is around for many years to come!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & I share questions and input with other families here.