June 12, 2010
I was diagnosed with lymphangioleiomyomatosis in September, 2007, shocked, confused and scared. My doctor told me to contact The LAM Foundation as soon as I could. When I called, they were so kind, understanding and KNOWLEDGEABLE! They sent me a LAM Handbook and a book entitled "Personal Journeys", a collection of stories written by LAM patients about their LAM experience. I learned so much about my disease and how to manage the different aspects of it. I also learned of a clinical drug trial that was underway called the MILES trial. Thanks to the financial support of The LAM Foundation, I was able to enter the study as soon as I could and stick it out for 2 years. I am SO thankful that The LAM Foundation exists to fund research, provide education and raise awareness about LAM. They provide us with pamphlets and booklets about LAM that I regularly bring to doctor's appointments or the hospital to help educate the medical community. By sending me posters, pamphlets, LAM bracelets, key chains, a DVD and the ability to open up a bank account, I was able to put on a successful fundraising event to raise much needed money for The LAM Foundation mission of research and education. Finally, one of the most important gifts that The LAM Foundation gives us is HOPE: hope for a treatment, hope for a cure, and hope that no LAM patient will ever feel alone.
I've personally experienced the results of this organization in...
As a new LAM patient, during clinical trial participation and when I put on my fundraiser.
What I've enjoyed the most about my experience with this nonprofit is...
The financial, educational and emotional support The Lam Foundation provides.
The kinds of staff and volunteers that I met were...
Kind, understanding and knowledgable.
If this organization had 10 million bucks, it could...
Support even more research into a treatment and cure for LAM.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
Client Served & I sought help from The LAM Foundation.