June 11, 2010
I was just diagnosed with LAM in Feb 2010. I went online to do some research and found this website. I sent an email asking for more information and they sent me a big book that was very very helpful. I have been able to get many questions answered from them and they have been the greatest help to me. They helped me to find a doctor here in my town that knew about this disease. My doctor had never heard about it. Since Feb I have had some great information and some great response to my questions. Thanks to the LAM foundation for all their help and support they give to me and all the others they help.
I've personally experienced the results of this organization in...
by getting all my questions answered and getting information that no one else seems to have on this rare disease
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:Client Served & received help.