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VHL ALLIANCE
June 9, 2010

I found out one of my best briends had VHL, so I found the VHL family allience website. Within a couple of days, I was able to gather information and get enough "materials" to get my friend going into a new lifestyle with VHL. furthermore, they helped us find a specialist who manages VHL in our area. It is nice to be able to get most of the information and support you need in ONE PLACE, specially under the stress that illnesses bring about.

The Great!

I've personally experienced the results of this organization in...

at a persoanl leve, getting information/support for my best friend.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the sense of unity

The kinds of staff and volunteers that I met were...

extremely kind

If this organization had 10 million bucks, it could...

spread the word about VHL disease so that we could get more contributors, increase involvement/awareness so that a cure can be found.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

MY ROLE:
General Member of the Public & browsed and joined VHL FAMILY ALLIANCE.