My Nonprofit Reviews
Review for LAM Foundation, Cincinnati, OH, USA
On an otherwise ordinary day in early 2004 I visited an ER in Denver for shortness of breath. After 8 hours waiting for a radiologist to arrive who recognized the rather dramatic appearance of my CT scan I received the startling news that I had Lymphangioleiomyomatosis or LAM. More upsetting was discovering that LAM has no known cause, no effective treatment, is eventually fatal and that the patient population is so small I would probably seldom run into doctors who had heard of LAM - let alone meet other women with the disease. A call to the LAM Foundation in Cincinnati changed all that! The Foundation has helped me find medical care, educated me about LAM, and given me support at every turn. Most significantly, I have been given the opportunity to network worldwide with an amazingly courageous group of women with LAM that has kept me from feeling alone as I have learned to deal with the disease. I am extraordinarily grateful to all concerned with the LAM Foundation which deserves unending recognition and accolades.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?