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marlalam54321

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LAM Foundation
June 9, 2010

Since being diagnosed with LAM in 1998, I felt so alone. Hey, there are only 2000 of us diagnosed with LAM in the WORLD!! Don't you see how rare this women's only lung disease is? The LAM Foundation has brought us all together through their inception 15 years ago. This organization is a one of a kind!! It just isn't an office, it is a staff that makes sure each & every woman does not feel alone in this world. They keep us connected!!

Photos

The Great!

I've personally experienced the results of this organization in...

Getting a call after I was diagnosed from the head of the Foundation. In attending the LAMposiums that feature not only the LAM women, bur physcians, researchers, & scientists so we can talk to each other. in asking for help with LAM fundraisers.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

They really care!! Each & everyone of the staff members care about each one of us.

The kinds of staff and volunteers that I met were...

Kind, Caring, Loving, Unselfish, Compassionate.

If this organization had 10 million bucks, it could...

fund more research to find a cure for this debilitation women's Only Lung disease, so we wouldn't have the only option of a double lung transplant if our disease got worse.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & I have LAM.