June 2, 2010
I was diagnosed with LAM in 2007, and after discovering a lot of out dated information on the internet, turned to the LAM foundation. I was given much needed emotional support from the staff as well as information and contact info for fellow LAM patients. LAM is such a rare disease, and many patients who have LAM, do not know it. The foundation also works on increasing awareness of this disease and it's symptoms. Without this foundation, I would not have the resources that I have been exposed to.
I've personally experienced the results of this organization in...
-having a LAM liason
-finding a LAM clinic in my area
-receiving literature to distribute to
-peace of mind knowing I can call the
foundation if I have questions.
-receiving the support through the LAM ListServ.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
Client Served & Continue to recieve Information and support from this foundation.