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mary31

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LAM Foundation
June 2, 2010

I was diagnosed with LAM in 2007, and after discovering a lot of out dated information on the internet, turned to the LAM foundation. I was given much needed emotional support from the staff as well as information and contact info for fellow LAM patients. LAM is such a rare disease, and many patients who have LAM, do not know it. The foundation also works on increasing awareness of this disease and it's symptoms. Without this foundation, I would not have the resources that I have been exposed to.

The Great!

I've personally experienced the results of this organization in...

-having a LAM liason -finding a LAM clinic in my area -receiving literature to distribute to raise awareness. -peace of mind knowing I can call the foundation if I have questions. -receiving the support through the LAM ListServ.

More feedback

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & Continue to recieve Information and support from this foundation.