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jamesetta

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What I want to do

Try to eliminate some of the suffering of this debilitating disease. Help find a better diagnosis, a better treatment, and a cure for lupus.

What matters to me

Lupus patients need to be recognized. Lupus is serious. People including doctors and healthcare professionals, the public, need to be educated about lupus.

What inspires me

When I see a lupus patient who has suffered tremendously with the disease get up and return to a relatively norma life.

Hot Springs,, AR USA


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Lupus Foundation of America, Arkansas Chapter, Inc.
May 13, 2010

I am a lupus patient who is not supposed to be here. I believe the Lord spared my life to do this ministry to help other lupus patients and family members cope with this disease. I work as a volunteer to try and eliminate some of the suffering lupus patients have to endure. I do not want to see anyone have to go through what I had to go through simply because the doctors did not know anything about lupus. We send lupus information to anyone requesting information including doctors and other healthcare professionals free of charge. Education is the key to living well with lupus. We have support group meetings each month at Levi Hospital in the boardroom at 300 Prospect Avenue on the 2nd floor starting at 6:30 p.m. We started from nothing in a guest bedroom October 1993 now we are in an office paying $500.00 per month paying an office clerk for 20 hours per week. We serve the entire state of Arkansas, traveling throughout Arkansas whenever we receive a request and we are physically able to. We attend funerals or visit lupus patients whenever we can. Our concern is the LUPUS PATIENT and family members. Listen to the patient. Lupus patients let your voice be heard. Let us do something to help those lupus patients in need of our support and show that we care. The pain we live with on a daily basis is real and we cannot give up on life. We have to learn to endure and keep pushing. Lupus can be mild to severe and it can be life-threatening. I have had both hips replaced and one knee replaced. Only waiting to have the other knee replaced. We never know from one day to another how we will feel but we cannot let lupus rule us, we should rule the lupus. Learn to cope, learn to ask others to help out when you cannot make it. Change your lifestyle and learn to live with lupus. The disease is unpredictable, but we can make it through. Help us spread the word about lupus. Become involved. We have fundraisers for the cause of lupus; 3rd Saturday in April - It's for the Cause of Lupus Gospel Concert; 3rd Saturday in May 5K Race & Walk for Lupus Now; Golf tournament - June 5, 2010; Jazz concert- August 14, 2010 Our only means of obtaining funds is through membership, contributions, memorials, and fundraising. All net proceeds received are used to fulfill Our Mission. LUPUS PATIENTS AND FAMILY MEMBERS WE NEED YOU TO BECOME MORE INVOLVED WITH THE CHAPTER. SHOW THE PUBLIC THAT YOUR LIFE DOES MATTER AND THAT YOU ARE NOT JUST PRETENDING THAT YOU ARE TIRED AND THAT YOU ARE IN PAIN. I CANNOT DO THIS ALONE, WE NEED YOUR HELP. PLEASE, OUR MEMBERSHIP IS STATEWIDE, EACH MEMBER RECEIVES A LOCAL NEWSLETTER 4 TIMES PER YEAR AND THE LUPUS NOW MAGAZINE 3 TIMES PER YEAR. WE ARE ALSO IN NEED OF BOARD MEMBERS. HELP US.

Photos

The Great!

I've personally experienced the results of this organization in...

YES, I work as a volunteer on a daily basis. Sometimes weekends also.

Ways to make it better...

If I had to make changes to this organization, I would...

I would actually get more people involved. I would get working board members.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

The chapter has kept me from feeling sorry for myself with this disease. I get pleasure when people say "I'm glad you are here". When I see we have helped someone get on their feet and get their life back.

The kinds of staff and volunteers that I met were...

Wonderful and willing workers

If this organization had 10 million bucks, it could...

Help a lot of lupus patients, provide education for doctors and healthcare professionals.

Ways to make it better...

I had more money to give to the Chapter. Finances is the chapter's biggest problem but the Lord has taken care of our every need all of these years.

In my opinion, the biggest challenges facing this organization are...

Finances, board members, and shortage of volunteers.

One thing I'd also say is that...

The chapter is fulfilling its Mission. Volunteers are doing a great job.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Volunteer & My husband and I are the founders of this organization which we started October 1993. I am the president and my husband is chairman of publicity. I am a lupus patient and I need the support group for myself. In realty, I am giving back what was given t.