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May 10, 2010

This organization offers first hand personal references for those dealing with VHL. Well organized and run with dedicated volunteers and staff.

The Great!

I've personally experienced the results of this organization in...

Medical referrals and information

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?


Board Member & Attended annual board meeting in Orange Co. CA and participated in monthly phone meetings. Act as a n advisor to the grant review committee.