November 7, 2012
I am new to the cleftAdvocate group on Facebook but as a new to cleft related issues mom, I am very grateful that this group exists. My September baby has a unilateral, incomplete cleft lip and we are facing our first consult next week. I'm anxious and nervous but I deal better with the unknown through research and education so I love having a place to get opinions and experiences from others who've been through what we are facing. I've already asked questions and others have been quick with support and comments and I've already felt some relief with learning. Even though when we tell people about our son's cleft lip, others will tell me "oh, so-and-so that I know had that" so it seems so common yet we know no one personally that's been through it so it can feel lonely at times. I think AmeriFace is doing a great job not just with the technical side of things in terms of diagnosis, correction, etc. but they are really taking care of the personal side of things too for the children as well as the parents and the family as a whole. It is a wonderful thing!
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MY ROLE:General Member of the Public