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magtwin

124 profile views
1 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

I was diagnose VHl over 20 years ago, my doctors knew very little about the disease so for many many years it was a case of fumbling in the dark. On a trip to Chicago , I was introduced to the VHL Family Alliance - it was such a relief to talk to other people in a similar situation. The VHL Family Alliance has been literally a "life saver", the support, experience, understanding and contact with groups are amazing - a friend whom you can turn to when in need of advice and help. With VHL we all have to manage our own health and that of our families and VHL Family alliance give us the information and knowledge to do that.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served