GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

ceberson

ceberson - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
23 Profile Views
1 Reviews

Login to send private message
Click here to get your favorites badge.
Rare Disease United Foundation
October 30, 2012

Finally, patients with rare diseases and their families are not alone! The RI Rare Disease Foundation is there to provide support and friendship. While every disease is different, families of children with rare disorders all share common struggles and can now benefit from the experiences of those who have "been there, done that". The friendship and camaraderie among these great families is truly heartwarming. It is an honor and privilege to be associated with this group that gives a voice to those struggling with a rare disorder

More feedback

Will you volunteer or donate to this organization beyond what is required of advisors?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Advisor