October 30, 2012
Finally, patients with rare diseases and their families are not alone! The RI Rare Disease Foundation is there to provide support and friendship. While every disease is different, families of children with rare disorders all share common struggles and can now benefit from the experiences of those who have "been there, done that". The friendship and camaraderie among these great families is truly heartwarming. It is an honor and privilege to be associated with this group that gives a voice to those struggling with a rare disorder
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