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Michele28

132 profile views
1 reviews

Review for National Tuberous Sclerosis Association Inc, Silver Spring, MD, USA

Rating: 5 stars  

This organization was our saving grace when my daughter was diagnosed at 9 months old. Our daughter's first dr, told us the probable diagnosis and then told us not to research it on the internet, making it sound like there was no hope. I didn't listen to his advice and quickly found the TS Alliance which gave us hope for our daughter's future. The Alliance has provided us with guidance, community, the latest research, and most importantly hope. It has been our guiding light throughout our daughter's 11 years dealing with this condition.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer