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Julie Halston

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Pulmonary Fibrosis Foundation
October 28, 2012

My husband was diagnosed with Pulmonary Fibrosis in 2008 --He was told he had maybe 2-3 years left to live. We had never even heard of this disease. For years he was diagnosed with asthma, a common misdiagnosis. Thankfully , he received a new lung in 2010 ( on our 18th wedding anniversary!) and his life expectancy has been extended for many more years . This journey has been very difficult to say the least but the PFF has been there every step of the way -They are pushing very hard to spread awareness of this devastating disease as well as trying hard to get federal funding . This disease is being seen more and more ( particularly among men around 60 plus years ) and as Americans get older the expectation is that we are going to see more and more cases of this illness--an illness that many people don't even know about --so research, awareness and treatment options are CRUCIAL --The PFF is in the forefront and as the disease is growing I would like to see the Foundation have a deep and solid base of operations forever as it has become very apparent to me that this non -profit operation is going to become a major force to help fight this disease. Julie Halston

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer