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Anne Ortegren

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The CFIDS Association of America, Inc.
June 25, 2012

When I was diagnosed with CFS eleven years ago, I researched where to turn for hope and help, and I found the CFIDS Association of America to be one of the most important places to turn to (the nonprofit Phoenix Rising is another). I had quickly realized that awareness of ME/CFS in the medical community is low and that ME/CFS research is hugely underfunded - and that until reasonable funding is directed towards biomedical research, I will remain severely ill and isolated from life. I needed to turn to people and organizations who could make things change. We need a dedicated and tireless effort to foster biomedical research, and right now it's up to us patients and our nonprofits. Without actors in the field like the CAA and Phoenix Rising I don't know where I'd be.

More feedback

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public