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Donna Y.

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FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
October 18, 2013

My granddaughter was diagnosed over six yrs ago. All the literature out there told us she would never walk, talk or do things for herself. It is by the grace of God that a mother of another child with AS had the dream of forming an organization made up up fellow Angelman families/friends that wanted more for their children. More for my granddaughter. That is when FAST was formed and they began searching for researchers that saw the possibilites, researchers that BELIEVED in our children/grandchildren. Researchers that would dedicate their lives to finding a cure for AS. To my knowledge FAST is the only organization in the world to fund a human clinical trial on Angelman Syndrome. That speak volumes considering they have only been in existence 5 yrs. My support, my prayers and my families devotion lies with the Foundation for Angelman Syndrome Therapeutics. They have the drive and willingness to bring our children born with AS a cure one day soon. Hope Reigns Supreme!

Ways to make it better...

If I had to make changes to this organization, I would...

Change nothing~

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
April 5, 2013

I nominate the Foundation for Angelman Syndrome Therapeutics for their continued outstanding support of my granddaughter and her fellow angels born with Angelman Syndrome. It is because of this organization that we just completed the first ever human clinical trial on a medication that may bring hope to her and all her friends with AS. This organization has been in existence less than 5 yrs and is totally nonprofit, ran by parents and friends of those with AS and ALL funds go for research projects. Not one board member collects a pay check. They are all volunteers working towards a cure for AS.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
November 7, 2012

FAST in 100% non profit and ran strictly by a board of highly professional, motivated parents and business people striving to raise awareness and fund pertinent research towards finding therapeutic treatments to enhance the lives of all children born with this rare genetic disorder. They are currently funding the first human clinical trial with Dr Edwin Weeber for which my granddaughter is one of 24 participants. This is HUGE for a organization that is less than 5yrs old and my family like many others are beyond grateful to FAST for the amount of public awareness they have raised regarding Angelman Syndrome in their short existence. They are currently bringing together researchers from around the world to work as a team sharing their individual expertise in hopes of reaching the ultimate goal of finding the cure for all our angels. May God be with them as they push forward in the days ahead. Hope Reigns Supreme, thanks to FAST's dedication and strive towards excellence.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served

FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
June 20, 2012

The Foundation for Angelman Syndrome Therapeutics and its entire board are the most dedicated organization for Angelman Syndrome to date. They work endlessly towards funding clinical trials to improve the lives of every single angel across the world. They ARE the greatest Non profit organization in existence when it comes to support of our angels. Every single dime is utilized towards finding a cure and not one single board member receives a penny in compensation. Thank God for F.A.S.T. and their desire to think out of the box and push towards curing AS.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served