My son was diagnosed with MDS in November and then Fanconi in January 2012. We have been unable to get any help. Because my son moved into my home, we have been refused any help except this organization and a small 100 grant from the Lymphoma society. We are very grateful as it pays two months of his health insurance premium allowing me the funds I would have had to use to pay someone else of his "normal" bills. My son has normal bills, co-pays, meds and many other items not covered that I am trying to keep up with. I am self employed and not making enough to do it all.SO A HUGE THANK YOU!!!!!!!!!!!!!!