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Lung Cancer Alliance
August 23, 2009

When my husband received the shocking diagnosis of lung cancer (he didn't have any easily identifiable risk factors at the time), we turned to the well-know cancer/lung organizations to volunteer for Lung Cancer Awareness Month. Their response? Nothing, really. They only focus on smoking (my husband was a lifelong adamant non-smoker). The one organization which did respond immediately - Lung Cancer Alliance. LCA not only helped us organize a rally in a matter of days, but they continued to provide direction, training and support to further our advocacy withiin the state. Eventually I became volunteer C-Chair for LCA-CA. In all my experiences with LCA, I have seen their determined persistence and unrelenting efforts in the face of overwhelming stigma and apathy toward the disease. They produce an immense amount of work with an unprecedented low number of paid staff. This was made abundently clear to me when I would note the times on their return calls/emails during the late night or very early mornings. I have seen an immense change in the level of public discussion and a new interest in the disease (rather than simply the issue of smoking) on the part of established organizations over the six years since my husband's diagnosis. This is due directly to the efforts of Lung Cancer Alliance. I whole heartedly recommend this organization. With a significant increase in resources and support, we CAN achieve the LCA goal of NO MORE LUNG CANCER!

The Great!

I've personally experienced the results of this organization in...

Better awareness in the general public, medical professionals and among legislators, which has resulted in formal recognition (proclamations) and supportive legislation on state and federal levels. More support of the disease in other organizations.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand its capabilites with use of new technologies to improve its networking capabilities.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

Their dedication and responsiveness.

The kinds of staff and volunteers that I met were...

completely dedicated to this cause and often worked themselves to exhaustion

If this organization had 10 million bucks, it could...

probably make a huge impact on lung cancer survival rates by increasing the rates of early detection and intervention.

Ways to make it better...

LCA appears to do all within its power to achieve its goals.

In my opinion, the biggest challenges facing this organization are...

improving public awareness of the organization and obtaining more resources.

One thing I'd also say is that...

Two thumbs UP, way UP on Lung Cancer Alliance.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & Co-founder and former Co-chair of LCA-CA.