My Nonprofit Reviews
Review for NBIA DISORDERS ASSOCIATION, El Cajon, CA, USA
My daughter was diagnosed with this devastating disorder 5 years ago. She is now completely dependent in all aspects of daily living.
NBIA is a rare genetic disorder that slowly and sometimes not so slowly takes control of your body. There is no treatment or cure.
NBIA Disorders Assoc. is helping raise awareness, connecting families and researchers until a cure can be found.
For more information about NBIA log on to www.NBIAdisorders.org and for more information about my daughters journey, log on to www.queenbeeworld.com
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