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Noreen

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1 reviews

Review for Jacob's Cure, Inc., Rye, NY, USA

Rating: 4 stars  

Jacobs Cure is an amazing organization. It is an incredible resource for families affected by Canavan Disease. It allow families, like ourselves, the opportunity to share and learn from each other. Because of Jordana's strength and tireless efforts, she has helped raise awareness and bring research to the forefront of Canavan Disease. Jordana is an inspiration to all and has provided hope for all Canavan familes.

Role:  Volunteer & I attended the first Canavan Family conference.