Jacob's Cure, Inc.
June 30, 2011
Jacobs Cure is an amazing organization. It is an incredible resource for families affected by Canavan Disease. It allow families, like ourselves, the opportunity to share and learn from each other. Because of Jordana's strength and tireless efforts, she has helped raise awareness and bring research to the forefront of Canavan Disease. Jordana is an inspiration to all and has provided hope for all Canavan familes.
I've personally experienced the results of this organization in...
I have been able to meet other Canavan families and share our children's experiences.
Ways to make it better...
If I had to make changes to this organization, I would...
Wouldn't change anything. Jordana and Sarah are doing a wonderful job!
Volunteer & I attended the first Canavan Family conference.