My Nonprofit Reviews
Review for ICAN, International Cancer Advocacy Network, Phoenix, AZ, USA
I am proud to be a Founding Trustee of ICAN and to have underwritten the first paycheck of its CEO, the first IRA bequest, the first corporate donation, the first matching funds donation, and the first Will and Trust beneficiary clause. I have been involved with the organization since day one. Most of the members of our ICAN boards and councils have witnessed some of the desperation of the cancer patients who first call our office in terms of the uncontrolled sobbing and anguish of patients’ family members. And we have also witnessed the euphoric relief at the end of that first conversation that they’ve finally found an organization who will never let them down and which will chart out strategic options for them that their first medical team overlooked. Personally, I have referred cases to ICAN, ranging from lung cancer to bladder cancer to mantle cell lymphoma to rare brain tumors to benign tumors. I even refer cases outside the cancer area when no other organization has a handle on the patient's diagnosis.
No one has named or identified any other organization that does what ICAN does, and many of our patients initially had sought help from multiple cancer organizations--whether nationally known breast, lung, myeloma, brain, pancreatic, melanoma, leukemia and lymphoma, colon, prostate, or thyroid organizations to name just “the majors.” The telling tribute to us is that our patients stay with ICAN for the duration of their battle or recovery. One Ohio patient, who had been written off as a hopeless case six years ago, recently e-mailed ICAN that her latest scans showed the much-coveted “No Evidence of Disease” status. ICAN had played a huge role in outlining the strategic options she chose in her battle for life and in encouraging her to choose the combination chemotherapy that ultimately has prolonged her life.
I've personally experienced the results of this organization in...
its life-saving provision of patient advocacy services in every kind of diagnosis imaginable and in the well-run operations of this world class organization.
If I had to make changes to this organization, I would...
shout from the rooftops that ICAN needs major funding from all possible sources to be able to reach the millions of cancer patients worldwide who could benefit from these top-notch advocacy services, physician referrals, and clinical trials research. ICAN serves Stage IV patients, and it would be great to have the organization have the resources to expand to cover all cancer patients no matter what stage.
Will you volunteer or donate to this organization beyond what is required of board members?
How much of an impact do you think this organization has?
Will you tell others about this organization?
How did you learn about this organization?
I was a lead founder of it.
What is this organization's top short-term priority?
Fundraising, fundraising, fundraising to be able to expand its waiting-listed services.
What is its top priority in the long run?
Reaching millions of patients with its unique advocacy services.
When was your last experience with this nonprofit?