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scott1971

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DANNY DID FOUNDATION
June 30, 2011

The Danny Did Foundation has been instrumental in helping my family gain valuable information for our five year old daughter who has epilepsy. They have helped direct us to a company who makes a seizure detection device as well well as enabled us to open the lines of communication with our doctors regarding epilepsy and SUDEP (Sudden Unexplained Death in Epilepsy). We are now working with the DDF to help our state epilepsy foundation give information packets to the treating physicians who can then pass the information along to patients.

The Great!

I've personally experienced the results of this organization in...

...acquiring a seizure detection device that alarms us when our daughter is having a seizure in her sleep. The DDF is trying to change the perception of epilepsy and help gain awareness of SUDEP and because of this, I am now volunteering at events and trying to raise awareness in Indiana.

Ways to make it better...

If I had to make changes to this organization, I would...

do all I could to help raise funds for the DDF to help make it easier to get the word out about epilepsy and SUDEP awareness.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

They have helped me WANT to raise awareness of epilepsy and SUDEP>

How did this volunteer experience make you feel?

It feels good to educate people and help others who might be affected by epilepsy.

When was your last experience with this nonprofit?

2011

MY ROLE:
Volunteer & I have passed along information from the DDF to my state epilepsy foundation.