DANNY DID FOUNDATION
June 30, 2011
I was recently added as a new board member following my involvement with the organization over the past 18 months. The Danny Did Foundation is a newly formed oganization whose mission is to help spread the word about SUDEP and help prevent deaths caused by siezures. I became involved because my friend lost her 4 year old child to SUDEP. Although the loss of Danny certainly hit close to home, I also realized this could have happened to anyone. As a mother, my friend did everything Danny's doctors asked. The problem is that they knew more than they shared with her. Many of us know others who deal with seizures. I know a number of people including my nephew, a co-worker and another friends son. Since I have been involved with DDF, I have heard many personal stories about their experiencs with seizures. It is significantly more common that I ever realized. Do you know that more people die from SUDEP than from breast Cancer? We need awareness and understanding. We need doctors speaking openly and candidly about SUDEP. We need devices to monitor seizures. DANNY DID is helping to accomplish all of these things. I am proud to serve as a board member for this organization! The people behind the foundation are extremly motivated, dedicated and are people who will make things happen. I wish I could give people back the loved ones that were taken by SUDEP. Since that's not posible, I plan to spread the message of The Danny Did Foundation to the best of my abilites with the hope that we can help others.
I've personally experienced the results of this organization in...
My son was having ticks and possilbe silent siezures. He went though a few days of testing. Test results came back negative but because of the Danny Did Foundation I asked a lot more questions and and had the test results double checked. As a new board member I am honored to be part of such a high energy group of people who are going to make a differnece in this world. The people behind the organization are extremly driven, motivated, and determined to make a difference.
Ways to make it better...
If I had to make changes to this organization, I would...
Enlist the help of more people to enhance our ability to spread the word and help others.
Will you volunteer or donate to this organization beyond what is required of board members?
How much of an impact do you think this organization has?
Will you tell others about this organization?
How did you learn about this organization?
I know the founders personally
What is this organization's top short-term priority?
spread SUDEP Awareness
What is its top priority in the long run?
Prevent deaths caused by siezures
When was your last experience with this nonprofit?
Board Member & I share the mission of the DDF with the hope that it can educate and help other people and their familes/friends. .