My Nonprofit Reviews
Review for No Stomach For Cancer, Inc., Madison, WI, USA
Two years ago, I discovered that a mutation in the CDH1 gene runs in my family and I tested positive for it. What this means is that I would face a extremely high risk of developing a stomach cancer that is so difficult to detect, it is usually not found until it's already in stage 3 or 4. It also puts me at a very high risk for a certain type of breast cancer. The best option for dealing with this risk, right now, is complete removal of the stomach, which is an overwhelming proposition. I've spent the past two years researching, debating, and just plain stewing over this decision. Without the help, advice, and connections made on NoStomachForCancer.org, I would be lost. This organization has made me realize, that although there are only somewhere around 100 families living with a CDH1 mutation, they are facing the same kinds of decisions I've had to make, and they are thriving. How many other families like mine are out there - families with a long history of cancer feeling that they are simply "doomed." Although learning of the scientific proof that I am at a high risk was difficult, I feel so much gratitude that I now know. And, although the best solution to this problem is a difficult one, I feel lucky to have one. I also hope that through organizations like No Stomach For Cancer, we'll be able to raise awareness so that future generations will have better options, possibly even a cure.
I've personally experienced the results of this organization in...
the most important decision in my life.
If I had to make changes to this organization, I would...
spread the word about it to others.