June 21, 2011
My daughter has been diagnosed with spondyloarthritis for about one year now. The support that we have received from SAA has helped us feel not so alone. I have a different autoimmune disease and there is no national support group for my specific disease. The SAA, which deals specifically with the cluster of spondylitis disorders, has been a great and thorough resource of disease information, but more importantly for my daughter, the SAA has provided the forum and opportunity to network with others, including health care providers to get her the best comprehensive care.
The Great!
I've personally experienced the results of this organization in...
The care and health for my daughter.
Ways to make it better...
If I had to make changes to this organization, I would...
None
MY ROLE:
Donor & Attended seminars and spoken to medical experts.