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KathB

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NEPHCURE FOUNDATION
June 16, 2011

When my 12-year-old son was diagnosed with the rare kidney disease called Nephrotic syndrome/FSGS when he was 18 months old there was NO organization to turn to meet others who knew what we were going through and no one was directing research to cure it. We felt powerless to help him. Thankfully this is no longer the case --NephCure is dedicated to helping families and fund the research.

NephCure gave us HOPE that we can work together to cure this disease that is the second leading cause of kidney failure in children. Please help this worthy rare disease nonprofit so no other child will have to experience kidney failure, dialysis and a failed transplant.


The Great!

I've personally experienced the results of this organization in...

Through NephCure I have met numerous families at our local chapter meetings, at our walk, as well through their online community. I've also been able to meet the researchers NephCure is funding at free patient seminars.

Ways to make it better...

If I had to make changes to this organization, I would...

Increase volunteer participation and find more funding

MY ROLE:
Board Member & I help run my local NephCure support group and walk to raise funds for research.