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KathB

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1 reviews

Review for Nephcure Kidney International, Berwyn, PA, USA

Rating: 5 stars  

When my 12-year-old son was diagnosed with the rare kidney disease called Nephrotic syndrome/FSGS when he was 18 months old there was NO organization to turn to meet others who knew what we were going through and no one was directing research to cure it. We felt powerless to help him. Thankfully this is no longer the case --NephCure is dedicated to helping families and fund the research.

NephCure gave us HOPE that we can work together to cure this disease that is the second leading cause of kidney failure in children. Please help this worthy rare disease nonprofit so no other child will have to experience kidney failure, dialysis and a failed transplant.


Role:  Board Member & I help run my local NephCure support group and walk to raise funds for research.