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Review for Jacob's Cure, Inc., Rye, NY, USA

Rating: 5 stars  

Because of Jacobs cures dedication to the fight against Canavan disease, there is hope. Hope that one day there will be a cure for this devastating illness that has claimed the life of my daughter, Amber, and threatens the lives of my other daughters, Ariel and Kaydi. There are no words that can adequately convey my gratitude to this organization, and to Jordana and Sarah, for their endeavors on behalf of my children and the other children out there who are struggling daily because of canavans. The research that Jacobs cure supports has made significant progress in the treatment of canavans with pharmacologic approaches. There are also promising treatments on the horizon involving gene therapy and stem cell transplantation.

I've personally experienced the results of this organization in...

Ariel has been the youngest recipient of the gene therapy, undergoing the procedure at just 3 months old. This is something that insurance would not cover and that we certainly could not afford. And more recently, we were able to attend the first family conference hosted by Jacobs cure. It was truly amazing being able to meet other families and their beautiful children in a loving and caring environment so full of hope.

If I had to make changes to this organization, I would...

Not change a thing. They are doing everything right and far exceeding my own expectations of what a charity embodies.

Role:  Client Served & Because of the efforts of Jacobs cure I have been inspired to plan fundraisers in my area to benefit Jacobs cure and the research they have been instrumental in developing.