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Review for Jacob's Cure, Inc., Rye, NY, USA

Rating: 5 stars  

Because of Jacobs cures dedication to the fight against Canavan disease, there is hope. Hope that one day there will be a cure for this devastating illness that has claimed the life of my daughter, Amber, and threatens the lives of my other daughters, Ariel and Kaydi. There are no words that can adequately convey my gratitude to this organization, and to Jordana and Sarah, for their endeavors on behalf of my children and the other children out there who are struggling daily because of canavans. The research that Jacobs cure supports has made significant progress in the treatment of canavans with pharmacologic approaches. There are also promising treatments on the horizon involving gene therapy and stem cell transplantation.

Role:  Client Served & Because of the efforts of Jacobs cure I have been inspired to plan fundraisers in my area to benefit Jacobs cure and the research they have been instrumental in developing.