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FRAXA Research Foundation
September 20, 2013

FRAXA is the future for our children. The research FRAXA is funding to find treatments for Fragile X is the future for our children. The medications that will be developed will be key for helping our children to live as happily and as independently as possible. And FRAXA funds and facilitates a tremendous amount of excellent research on a very small budget.

Ways to make it better...

If I had to make changes to this organization, I would...

Dramatically increase the dollar amount of contributions coming in since so much of the brain research FRAXA is funding to find treatments for Fragile X will help other brain disorders as well.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Volunteer

FRAXA Research Foundation
June 8, 2011

FRAXA began in 1994 with a dream of curing Fragile X -- now fast forward to 2011 -- there are currently clinical trials for medications to treat the core deficits of Fragile X going on in several centers around the country. Moonshot to the mind is the next frontier in medical research. Being a single gene disorder makes Fragile X a great model for other disorders of the brain as well, and could ultimately lead researchers to treatments for possibly autism, Parkinson's and Alzheimer's. FRAXA is an extremely efficient organization, and the people who are involved with FRAXA are totally committed to this cause. If you want your charitable dollars to really make a difference in the world, make a donation to FRAXA. My son is 14 years old and has Fragile X, and FRAXA gives me great hope that there will be medications in his lifetime that allow him to be happy and self-sufficient.

The Great!

I've personally experienced the results of this organization in...

I hope to get my son involved in some of the clinical trials currently or soon to take place so we can see first hand the benefits of the drugs FRAXA has been nurturing along for years now. FRAXA is gaining recognition as the model for a cure-oriented charitable foundation.

Ways to make it better...

If I had to make changes to this organization, I would...

Much work still needs to be done. Just like AID's, treating Fragile X will mean a cocktail of medications. The brain is very complicated so the basic research continues for the next components of the cocktail. Funding and great research will help FRAXA reach it's goal.

MY ROLE:
Volunteer & I left my work in tv news to give my time to FRAXA when my son was diagnosed in 2000.

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