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Sasa Zorovic

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1 reviews

Review for Fraxa Research Foundation, Newburyport, MA, USA

Rating: 5 stars  

FRAXA is the hope for all those affected with Fragile X and their families. The organization is singularly focused on funding research to cure Fragile X. It is very efficient in terms of using donor funds in putting it towards research--a cut above most other organizations funding medial research. The organization is able to sollicit excellent research proposals from research community and has a spectacular record in funding most promising avenues towards a cure. It is examplary in its collaboration with parents and families of those affected by Fragile X, researchers and the scientific community, pharma companies. FRAXA is the hope--and promise--of a Fragile X cure.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Researched it on the Internet, spoke to families affected by Fragile X and scientist conducting research on Fragile X.

What is this organization's top short-term priority?

Increasing fudning for Fragile X research--so that effective treatments and a cure can be brought to all affected by Fragile X faster.

What is its top priority in the long run?

Curing Fragile X; that is a wonderful thing about FRAXA that it remains so focused and determined, unwavering in its pursuit of a cure.

When was your last experience with this nonprofit?

2011

Role:  Board Member & Fundraise for FRAXA.