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Sheila S.

454 profile views
1 reviews

Review for Ntm Info & Research Inc, Coral Gables, FL, USA

Rating: 5 stars  

As a newly diagnosed patient with NTM, I have found the NTMir website to be very helpful. In fact, it is the only practical information for quality of life issues on the internet! I also attended the inaugural Washington, DC, support group lunch, and I found it to be extremely affirming. We are in this together, and it was so great to be able to ask questions and see the nods in understanding! Thank you for your work to shine a light on NTM and how it changes lives.

I've personally experienced the results of this organization in...

Seeking helpful and practical information about how to live with NTM. Especially helpful when connecting with other patients living with my particular "brands" of mycobacteria.

If I had to make changes to this organization, I would...

Highlight even more practical advice for people newly diagnosed with NTM. I can't seem to get enough information to feel comfortable with the major medical treatment I am about to begin. Launch an electronic "mentoring" program, pairing newly diagnosed patients with others who have blazed the trail for the specific treatment regimens.

Role:  Client Served & Participated in support group meeting in Washington, DC.