ANGELS PEDIATRIC HEART HOUSE
May 16, 2011
Our first encounter with Dr. Perez was at the birth of our son in 1995. Dr. Perez was able to diagnose his problem as Tetrollogy of Fallot. From that time on not only did we count Dr. Perez as our doctor, but also our friend. When Dr. Perez passed away, we felt a great loss. We were very excited to be invited to the beginning of APHH, a picnic, given in Dr. Perez's honor. What we found in APHH was more than an organization that would have an event here and there, it became a lifeline to connecting with children and families that were experiencing some of the same fears and questions we were facing. We were able to talk to parents who knew about the things we knew about. APHH held a Big Hearts Big Adventures Family Fun Day & Mini Symposium a few weeks ago. There were speakers there that spoke about when our children reach a certain age they are considered legal adults and their medical issues would become a private mattere between them and their doctor. During her portion, I found myself realizing our family was just a few years away from that time. Another speaker spoke of making sure our children know about their condition and being able to tell the doctor themselves. This information was very important to me. The doctor who spoke for Joe DiMaggio Children's Hospital, was excellent and I learned of many of the advancements being made in heart surgeries, a comforting thought since our son has a surgery planned for June of this year. I appreciate APHH because it connects you with families that are currently in the same battle as we are. My husband and I have enjoyed connecting w/ these parents again and again to hear their successes and their sadnesses. We truly are grateful that even through a terrible tragedy, as the loss of Dr. Perez, that something wonderful has come of it and that is Angel's Pediatric Heart House.
I've personally experienced the results of this organization in...
attending events and being a part that is impacted by the events and people who help this organization.
Ways to make it better...
If I had to make changes to this organization, I would...
I would not make any changes. The people have been nothing but supportive and kind, both in words and in actually showing up at the hospital when necessary.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
How did you find this group?
Dr. Angel Perez was our cardiologist
What, if any, change in your life has this group encouraged?
It has helped me to hold on when things have happened that I cannot change
When was your last experience with this nonprofit?
Client Served & spent the day receiving valuable information at the symposium.
Review from Guidestar