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June 16, 2010

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Review from Guidestar
June 16, 2010

This is an amazing family, one of which I am very blessed to be a part of. When I found out at 16 that I had this disease, it could have affected me in one of two ways-give up and give in, or adapt and move on. I chose the ladder. Having the deater disease for over thirty years there have been good days and bad, but the good always out weigh the bad. I wear braces that allow me to stay very active. I have lost all of my fingertips except for my thumbs from infection. And just three weeks ago I had a total knee replacement, which was a huge success, thank God, and I am walking better than I had in 10 months. All that to say, we are very close to finding a cure that would prevent our future generations from getting this. What I have gone through and what so many in my family have endured can be stopped. Won't you please help us with this final stage to blot out this disease. If you can't support us financially, your prayers are always welcome. thanks!

The Great!

I've personally experienced the results of this organization in...

We recently did a study of a possible cure for the disease and although I, being on a very low dose, didn't feel any different, my brother and many others noticed a distinct difference. We are very close and this is such an exciting time for our family.

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2009

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