Over 1.8 million nonprofits and charities for donors, volunteers and funders

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Nonprofit Overview

Causes: Health, Specifically Named Diseases Research

Mission: The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, educational, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach, and sponsored functions.

Target demographics: individuals with Williams syndrome

Direct beneficiaries per year: hundreds of families with resources and information regarding Williams syndrome

Geographic areas served: United States

Programs: Family Assistance Program assisting individuals with Williams syndrome with medical, developmental, educational, therapeutic and recreational resources.

Community Stories

85 Stories from Volunteers, Donors & Supporters

7 Tyler5

Client Served

Rating: 5

Williams Syndrome Changing Lives Foundation helped us in a time when we thought there was no help. They offer educational material and HOPE for parents who first find out they have a William's Syndrome Child. They send out newsletters keeping parents informed of current WS news and inspirational stories to keep our chins up. The CEO, Penny Perez, is nothing less than a Saint. She is not only the CEO she is a parent to a child with William's Syndrome. My wife regularly seeks advice from her from advocating for our children to other general parental concerns. The non-profit is well executed and managed and makes a real difference in people's lives. Thank you Penny and William's Syndrome Changing Lives Foundation for all that you have done to help our family and our son Ethan (16mo old).

1 Katia I.

Volunteer

Rating: 5

Williams Syndrome Changing Lives Foundation has helped me a lot with my son Rudy..it has great resources.

2

Donor

Rating: 5

The Williams Syndrome Changing Lives Foundation has done a wonderful job in raising awareness of Williams Syndrome and in providing assistance to individuals with Williams Syndrome. The Foundation provides an enormous amount of information on their website and interacts very often with their large following on Facebook. It has been our pleasure to donate goods for the past several years, and look forward to working with such a great non-profit in the future.

1 Leigh D.

Client Served

Rating: 5

The William Syndrome Changing Lives Foundation has been a wonderful tool for my family and friends. My daughter Mazzi is 12 and has WS. During times of confusion I ask questions and get caring, loving and compassionate responses. I have also been able to meet families in my city because they are apart of the group. Most importantly, my family gets to see first hand of the struggles that parents of WS have. They also get hope by seeing the milestones each child passes and celebrate with our WS families. At this point I wouldn't know what to do without Penny Perez and the people of this foundation. I highly recommend them and know that no matter what I'm going through they are there for me and most importantly, Mazzi. Thanks for allowing me to share, Leigh

1

Client Served

Rating: 5

I am a volunteer and parent to a Williams Syndrome child and I can't thank Williams Syndrome Changing Lives enough for all they do in our WS community. The constant awareness efforts, support and information is wonderful, practical and useful. We have found so many resources through the foundation and we are forever grateful!

2 Dawgs64

Professional with expertise in this field

Rating: 5

I am honored to work with Williams Syndrome Changing Lives Foundation. Their awareness efforts and community reach is frowing rapidly and very muxh needed.

Support services are outstanding and we look forward to our continued work with them.

Previous Stories
3

Professional with expertise in this field

Rating: 5

I have worked with Williams Syndrome Changing Lives Foundation on a couple of projects and have found them to be completely professional and with a very clear vision.

I am honored to assist them with their efforts and will continue to do so. We will continue to reach out to them for information about Williams syndrome and their resources.

2 Kids Companions

Donor

Rating: 5

The William Syndrome Changing Lives Foundation advocates for their cause is a very professional way. We are always impressed by their Facebook posts and their web site. The people behind their newsletter have to be congratulated and thanked for publishing such a first class way of getting valuable information to their subscribers.

Previous Stories
4

General Member of the Public

Rating: 5

The Williams Syndrome Changing Lives Foundation with Penny Perez as CEO & Founder has an excellent Newsletter. Their newsletter is educational and very interesting! Ms. Perez has beneficial posts on Facebook and LinkedIn for parents with children with special needs. Families with a child with Williams syndrome must definately join this group. Our company, SentioLife Solutions, Ltd., has donated sensory chewelry necklaces for events organized by this foundation and find the folks working there very efficient and knowledgeable. Hope you have a great 2014!

Read more
2

Donor

Rating: 5

I am happy to be a monthly donor to this organization. I have found them to be ethical and true to their mission. I am both a personal donor as well as a company donor and will continue to do so to enhance their very important work.

Previous Stories
3

Donor

Rating: 5

I am honored to assist WSCLF again this year in their awareness campaign. What a worthy cause! Thank you for allowing me to be part of it.

Read more
3 Desira I.

Volunteer

Rating: 5

I found out that my son had williams syndrome not knowing anything about it and being terrified not knowing anything about it, I turned to the williams syndrome page and found out everything I needed to know it's scary when a doctor diagnoses your child with a rare disorder and have no where to turn to for help and support, thank god for this page cause I was truly stressed and scared at the same time when we found out

3 Becki2

General Member of the Public

Rating: 5

Williams Syndrome Changing Lives Foundation provides invaluable resources to parents to assist with their loved ones from diagnosis to adulthood through infographics and support groups. Many individuals have been provided with once in a lifetime opportunities that the may not have been possible without the assistance program or Project 7.

3

Client Served

Rating: 5

My grandson had WS and his parents rely heavily on Changing Lives for information, education and medical referrals and resources as well as support. We would be lost without them. Thank you for you kindness and your willingness to always be available and guide us in the right direction.

Previous Stories
3

Client Served

Rating: 5

I am very thankful for this foundation and it's work with my family. We knew very little about Williams Syndrome and what to expect. They walked us through so much and Penny was available to answer so many questions and provide information to our family.

We can't thank you enough and thank you for the resources.

Read more