Whittemore Peterson Institute

Rating: 4.16 stars   79 reviews

Issues:

Location: University of Nevada, Reno - MS 0552 1664 N. Virginia Street Reno NV 89557-0552 USA

Mission: The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
Results: WPI has devoted millions of dollars directly to research for neuro-immune diseases. Whether you are a patient, a volunteer, or someone impacted by the disease, there are many ways you can make a difference in the quest for answers. Contact us at any time about how you can help. Contact us: info@wpinstitute.org
Target demographics: HELP WPI FIND A CURE 17,000,000 suffer from neuro-immune disease. There is no cure or any treatment approved by the FDA. 1 in 300 suffers from ME and CFS 1 in 150 suffers from fibromyalgia 1 in 110 children falls within autism spectrum disorder Lyme disease is a fast growing epidemic in the U.S. (Many sufferers go on to develop a chronic illness identical to ME and CFS) 225,000 service men of the 600,000 from the 1991 Gulf War have a multisymptom illness similar to ME and CFS called Gulf War illness (GWI)
Geographic areas served: Worldwide
Programs: Research is the key to understanding how and why these complex diseases occur. In addition to our own labs, we are leveraging an international network of dedicated virologists, immunologists, geneticists and other highly skilled researchers. Our driving goal is to translate this work into meaningful treatments, and someday a cure, for the patients who inspire us. http://www.wpinstitute.org/research/research_overview.html

2011 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I'm continually encouraged by the work the institute is doing to help patients with neuro-immune diseases. The institute is committed to finding answers. I'm proud to regularly donate to the institute.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 1 stars  

1 person found this review helpful

In 2011 my son and I were notified that we had been awarded a full Scholarship/Sponsorship to travel to. be seen evaluated tested and treated by WPI and their staff including Dr. Fredericks. All costs were covered and we only made the long trip up there because we had been chosen and awarded this from WPI and we were very ill and it presented a ray of hope for recovery of some life quality to my son and me. We made the long exhausting trip with my parents paying for all the fuel lodging and food. They have not yet been reimbursed for their costs. We were not received well by the staff at the WPI clinic and thus went directly to Annette Whittemore office. She personally assured us we would be treated with the utmost courtesy from then on. that we would receive our promised Sponsorship and all that it entailed and had been promised to us. She said to have ALL bills sent to her directly.We returned home and were discouraged to find that they were not going to fulfill the treatment for us. We were made more ill by the stress of the long trip.Then began receiving bills for blood draws we never gave permission for. These totaled over 4600.00 EACH. We forwarded to Annette as we thought the WPI Clinic had just made an error. These bills stated 4600.00 in costs for blood drawn from my son and from me and were marked " OTHER" and no explanation was ever given as to why and what they drew this amount of blood from us for. What they did to us was unethical and we just want them to do what they promised in awarding us the full Sponsorships.I am holding them to their promised Sponsorship and ask that they be held accountable to uphold as well what they awarded us in full.I worked hard for my good credit rating and am hoping WPI and Annette Whittemore will do the right thing and restore this to me.Thank you for your help in resolving this for us. WPI and Annette Whittemore need to honor the full Sponsorhips they awarded to my son and me and restore my good credit rating to me.

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

The Whittemore-Peterson Institute provides hope for patients with ME through hard work of research. I am thankful for the Whittemore and their research team led by Dr Lombardi because their hard work to build the institute from ground zero is paying off.

Recently Dr Lombardi published a paper in collaboration with other scientists from around the world. This cutting edge work provides new clues for patho-physiology and ethiology of our illmess. i am sure more work is under way and I am looking forward to the next publication.

i am convinced that the work of WPI will make a difference for all patients. Thank you and keep upthe good work!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Thank you Kati for your very helpful and kind review.

Rating: 1 stars  

1 person found this review helpful

Odd, isn't it that the Whittemores backed the research until their own daughter had recovered, then they decided not to reveal what cured her and switched to pushing supplements instead of research. Obviously, their real interest was in their own daughter's health, not in helping others who suffer from neuroimmune disorders.

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

When was your last experience with this nonprofit?

2013

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The information contained in this review is untrue. The Whittemores and the institute continue to be committed to researching neuro-immune diseases with the goal that the institute’s research will lead to effective treatment strategies and improved patient care. Neither the institute nor the Whittemores “push” supplements as this comment states.

Rating: 5 stars  

2 people found this review helpful

I became involved with the Whittemore Peterson Institute for selfish reasons. My wife suffers from Fibromyalgia and has done so for over 30 years.
Having seen the devastating effects of this disease close up I was excited when WPI came into existence.
Through the passion of Annette Whittemore's efforts to help her daughter I have hope that in the not to distant future there will be treatments and perhaps even a cure for this debilitating disease.
I have never been around a more passionate group than the staff at WPI. They will make it happen for all of us.
Sam Shad

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

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Thank you Sam for your review of Whittemore Peterson Institute. We are very lucky to have you as a board member.

Review from Guidestar
Rating: 1 stars  

1 person found this review helpful

This Whittemore Peterson Institute gave people suffering from Myalgic Encephalomyelitis (M.E.), sometimes erroneously called "Chronic Fatigue Syndrome" hope for effective treatment when they published their research paper on XMRV retrovirus being implicated in M.E. However that hope was dashed when Mrs. Whittemore summarily fired the dedicated researcher who had made the research possible, Dr. Judy Mikovits. This was worsened when the Whittemores filed criminal charges against Mikovits for theft of her own notebooks. (That charge was later dismissed.) The saga continued when Harvey Whittemore, Annette's husband, was criminally charged for making illegal political campaign contributions to Sen. Harry Reid, among others. This federal criminal charge is still pending against Mr. Whittemore. Does anyone need to know more to understand that this is not a reputable charity?

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

Was this review helpful? 

Unfortunately, Mr. Spangler is misinformed on a number of topics, and his comments are detrimental to the reputation of the institute. Dr. Mikovits was a member of a research team, not the only researcher at the institute. She was terminated for insubordination when she refused to return a colleague's research materials. As president and CEO of the institute, Annette Whittemore reported the theft of valuable institute property that was missing following Dr. Mikovits’ termination. The police investigated the matter and the district attorney’s office determined to pursue a criminal case against Dr. Mikovits. Finally, we think that it is important to emphasize that private matters involving Mr. Whittemore have nothing to do with the institute. Mr. Whittemore is a generous donor and a co-founder of the institute, but he has no responsibility within the institute.

1 previous review
Rating: 1 stars  

18 people found this review helpful

These are the same people who owned VIP Dx which sold useless XMRV blood tests to people with Myalgic Encephalomyelitis (M.E.) for hundreds of dollars--AFTER they knew the tests were worthless. Now they say they are doing research and treatment for people with "neuroimmune disease," but I don't believe it. They are the same money-grubbing people who sold the worthless tests. So far they have done nothing to help the people they say they are serving. And now they have their relatives posting good reviews on this website. Unbelievable!

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

It's a shame that personal comments by overly emotional individuals are allowed on Guidestar, jeopardizing the rating of an institute that is only trying to help the ME community. WPI's goal has always been to help severly ill people by solving the mysteries surrounding ME. WPI has helped legitimize a seriously debilitating disease and I believe they will continue to make a difference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 

Thank you so much for your very kind review of Whittemore Peterson Institute. Thank you for your hard work and dedication to our volunteer committee as well.

Rating: 5 stars  

1 person found this review helpful

I think that the WPI and its founders/employees are trying their very best in a very difficult field. I am glad that they are persevering despite the theft of their documents and continue to do research regardless of people's misunderstandings.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I have personally volunteered for WPI and I am confident that they are making a difference. It is sad that there are such harsh and bitter reviews. Just remember that most people review to complain rather than to say something positive.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2009

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I am a proud volunteeer and supporter of the Whittemore Peterson Institute. From the day-to-day work to the annual fundraiser event "I Hope You Dance", I have seen how many lives this organzitation positively touches and gives hope to so many people that didn't have answers before.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?