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USACFA, publishers of CF Roundtable

Rating: 4.89 stars   89 reviews 1,643

Address:

PO Box 1618 Gresham OR 97030 USA

Mission:

As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.

Results:

The past 12 months have been spent revamping our website, connecting to social media sites, and making CF Roundtable free for all.

Target demographics:

Adults with Cystic Fibrosis

Programs:

1. CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www.cfroundtable.com. 2. Website blog, resources, links to facebook and twitter.

2016 Top-Rated Nonprofit
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http://www.cfroundtable.com/

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Reviews for USACFA, publishers of CF Roundtable

Rating: 5 stars  

1 person found this review helpful

CF Roundtable, produced by USACFA, is an invaluable resource for anyone dealing with CF, whether it be patient, caregiver, or medical professional. CF Roundtable provides first hand accounts of what it’s like to actually live with CF and is also a fine source of information and research. CF Roundtable is inspirational, to say the least, as are the volunteers who produce it.

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

CF Roundtable is one of the most valuable resources currently available for adults with CF as well as caregivers of those with CF. It provides a unique perspective of living with the disease as well as practical information and research. Given the fact that it is produced by volunteers who all have CF makes it particularly remarkable. Kudos to those who do such a fine job of keeping the CF community so well-informed and so connected.

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

CF Roundtable and its parent organization, USACFA, provide a much needed resource for those with CF. While aimed at adults with CF, its content is also useful to parents, caregivers, and those in the field. It provides a perspective that isn't found in other materials that are available to peruse. Those who produce the newsletter are a very dedicated group of adults with CF who give much of their time and effort to make sure that this is available to us on a quarterly basis. I have been subscribing for 20 years and will continue to do so for as long as this publication is in existence.

 
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1 previous review
Rating: 5 stars  

3 people found this review helpful

CF Roundtable is an outstanding newsletter for anyone with an interest in CF (adults, parents, medical personnel). It provides a forum for those who live with CF to write about their experiences, hopes, and problems. It is the Voice of CF.

If I had to make changes to this organization, I would...

not change a thing.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2014

 
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

As a 52 year old with, I have been reading, enjoying and benefiting from the roundtable for about a year. It is an important resource for people with CF, parents and family members, providing information about scientific developments in easy to understand language. Thanks to all the people working on this.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

As a 49 yo CFer, I have been reading, enjoying and benefiting from the Roundtable since its inception many moons ago. It is an important resource for people with CF, parents and family members, providing information about scientific developments in real-speak, a column highlighting studies and news related to CF, ideas and stories written by USACFA members and guest writers on how not only to live with CF, but thrive. It has done a great job keeping up with the exciting and dramatic developments in medication and treatments. Roundtable is a critical tool for a small community, bringing us together and keeping us informed, inspired and hopeful. A treasure kept alive by incredibly dedicated people for whom I am very thankful!

 
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Rating: 5 stars  

1 person found this review helpful

The CF Roundtable provides a very informative newsletter for those with cystic fibrosis. I have learned a lot from it. It also has very good blog posts about important news that comes up in between newsletters. It brings a sense of community to those with CF as well as understanding to the many complexities of this challenging disease.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

Awesome organization! Community sourced information that is important for all members of the community. Special focus on adults living with CF. Would highly recommend this organization to anyone looking to stay up on all aspects of cystic fibrosis, science, social and more.

 
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Role: General Member of the Public
Rating: 4 stars  

1 person found this review helpful

My wonderful wife has CF and USACFA (and the CF Roundtable) are an invaluable source of information that helps to keep me up-to-date on the latest CF news but also serves as a space of inspiration and reflection with every issue. Thank you to the USACFA team and all of the incredible CFers out there. You're the best!

 
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Rating: 5 stars  

1 person found this review helpful

I have been a board director for USACFA since 2013. Prior to joining USACFA I was a long-time reader of CF Roundtable, which is published by USACFA. The board directors are dedicated to educating, empowering and sharing valuable information with the CF community. I am honored to be part of this organization!

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

USACFA is an excellent non-profit organization serving adults living with Cystic Fibrosis. CF Roundtable is a useful and relevant source for information pertaining to CF including patient experiences and clinical trials.

 
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Rating: 5 stars  

1 person found this review helpful

CF Roundtable was one of the first resources I found for living with cystic fibrosis after my delayed diagnosis as an adult. This newsletter, the blogs and Facebook updates continue to support my education about this disease we share.

 
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Rating: 5 stars  

1 person found this review helpful

This is a great source of support fr those who have cf and their families.

 
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Rating: 5 stars  

The US Adult CF Assn (USACFA) is an excellent organization that I have been proud to be part for 7 years. CF Roundtable and the accompanying website are tremendous support for me and, I believe, for the CF community. I'm able to meet others with CF through the CF Roundtable social media sites, share our stories, learn from each other and laugh too.
The newsletter is engaging and chockfull of information on all aspects of CF. I look forward to its arrival in my mailbox. I encourage any adult with CF to subscribe to it!

 
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1 previous review
Rating: 5 stars  

CF Roundtable is fabulous source of support for me, my husband and family. The articles are so informative and inspiring such as Beth's legal and Laura's research updates, Isa's spirituality, Julie's Wellness and Kathy's getting older columns. The focus topics often leave me chuckling, commiserating, awed or taking notes depending on the topic. I read it cover-to-cover as do members of my family. We feel great after reading from the validation that there is world out there that understands!

If I had to make changes to this organization, I would...

As a volunteer and director for several years, USACFA and its CF Roundtable are constantly improving on all aspects - website, newsletter, etc through infusion of new ideas with the result being a continually improving organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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