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PO Box 1618
Gresham
Oregon 97030
USA
Website
2013 Top-rated nonprofits and charities

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Target demographics: Adults with Cystic Fibrosis

Programs: 1. CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www.cfroundtable.com.
2. Website blog, resources, links to facebook and twitter.

Mission:
As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.
Results:
The past 12 months have been spent revamping our website, connecting to social media sites, and making CF Roundtable free for all.

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43 Reviews
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Average rating:
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07/31/14
For 24 years CF Roundtable has been providing a forum for adults who have CF, their families, friends and caregivers to share information and the latest news in CF research. I have been associated with this group (USACFA) from the beginning. I feel that my 24+ years of service have been a great ... more »
06/28/14
CF Roundtable is an outstanding newsletter for anyone with an interest in CF (adults, parents, medical personnel). It provides a forum for those who live with CF to write about their experiences, hopes, and problems. It is the Voice of CF... more »
04/20/14
I know how hard my cousin works on the Newsletter and the impact it has on those with CF - it is an invaluable resource for those with CF... more »
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