USACFA, publishers of CF Roundtable

Rating: 4.89 stars   72 reviews 859

Issues: Health

Location: PO Box 1618 Gresham OR 97030 USA

Mission: As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.
Results: The past 12 months have been spent revamping our website, connecting to social media sites, and making CF Roundtable free for all.
Target demographics: Adults with Cystic Fibrosis
Programs: 1. CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www.cfroundtable.com. 2. Website blog, resources, links to facebook and twitter.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

This is an excellent publication. Anyone touched by cystic fibrosis should subscribe. Terrific and moving articles written by adults with cystic fibrosis.

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Rating: 5 stars  

1 person found this review helpful

USACFA’s publication CF Roundtable has been one of my major sources for information about Cystic Fibrosis for the past 10 years. It was first introduced to me by my CF Center and I’ve been a subscriber ever since.

Each issue is eagerly anticipated. Upon its receipt, it is immediately skimmed. Then, during the next two weeks it is read in detail.

While almost all of each issue is of interest, I especially like the regular “Ask The Attorney”, “Speeding Past 50”, and “Information From The Internet” articles. As a 73 year old with CF, seeing the increasing ages of people in the "Milestones" section has been very encouraging.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2015

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Rating: 5 stars  

2 people found this review helpful

CF Roundtable is a great publication published by USACFA. In addition they have great information posted on their website and their Facebook page. USACFA provides useful information for the health of both the mind and body.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

I have been a reader of CF Roundtable for as many years as I can remember. The newsletter is a great comfort as many of the articles share the experiences of other CFers dealing with the same things I've gone through. The articles often take a topic that is very serious and help us see things in a positive light. It's a great resource and way to connect in various ways with other CFers. Also, it's not completely free due to the hard work of the board and generous contributions and grants.

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Rating: 5 stars  

2 people found this review helpful

CF Roundtable is one of the most valuable resources currently available for adults with CF as well as caregivers of those with CF. It provides a unique perspective of living with the disease as well as practical information and research. Given the fact that it is produced by volunteers who all have CF makes it particularly remarkable. Kudos to those who do such a fine job of keeping the CF community so well-informed and so connected.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

CF Roundtable and its parent organization, USACFA, provide a much needed resource for those with CF. While aimed at adults with CF, its content is also useful to parents, caregivers, and those in the field. It provides a perspective that isn't found in other materials that are available to peruse. Those who produce the newsletter are a very dedicated group of adults with CF who give much of their time and effort to make sure that this is available to us on a quarterly basis. I have been subscribing for 20 years and will continue to do so for as long as this publication is in existence.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

CF Roundtable is an outstanding newsletter for anyone with an interest in CF (adults, parents, medical personnel). It provides a forum for those who live with CF to write about their experiences, hopes, and problems. It is the Voice of CF.

If I had to make changes to this organization, I would...

not change a thing.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

I was honored to become involved as a volunteer with the US Adult CF Association (USACFA) 6 years ago. Before that I was an avid reader (and still am) of USACFA's outstanding newsletter, CF Roundtable, due its wonderful support, education and resources in all things CF. As a volunteer I was able to witness how the directors are constantly striving to improve the publication. It became free to anyone who wants it 3 years ago and at the same time the website was revamped to offer online editions of the newsletter and more interaction between subscribers. USACFA is a quality group of devoted volunteers, all adults with CF.

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Rating: 5 stars  

1 person found this review helpful

CF Roundtable is an incredibly valuable source of information, particularly for the adult Cystic Fibrosis community of which I'm a part. The newsletter addresses nearly every aspect of living with Cystic Fibrosis, masterfully weaving in topics ranging from clinical trials and preclinical research to travel tips, legal information and everything in between. There aren't any other sources of such rich, varied and consistently high quality content for the adult CF community. I look forward to receiving the CF Roundtable in my inbox and I heavily rely on it as a source of trusted and useful information. CF Roundtable is a huge asset to the CF community!

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Rating: 5 stars  

1 person found this review helpful

The CF round table is a excellent newsletter for the CF community. Sharing feelings and ideas are so beneficial to the community. It helps families not to feel alone in the fight that we have all encountered. Keep up the good work!

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1 previous review
Rating: 5 stars  

1 person found this review helpful

The CF Roundtable is a great magazine. It helps the CF community to share their experiences and help others to feel that they are not alone in this fight. The articles are filled with heart warming stories which helps everyone to understand the battle that these people go thru on a daily basis. It gives great information for people with this disease and others that are not familiar with the disease. We need to get the word out to more people in order to make others aware of what CF is all about. Good work by all!

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1 previous review
Rating: 4 stars  

My daughter, Jennifer Hale, was diagnosed with CF at 2 1/2 years old and is now 41. Even before she started writing for the CF Roundtable, I was reading all the great articles these courageous people write. This publication is not only good for people with the disease, but it is good for caretakers and others who would like to learn more about what a CF patient goes through each and every day. Hearing these stories are very heartwarming often funny and great to hear from these brave people. My daughter and the rest of the writers express themselves with such courage and wit. If you have never read any of these stories, I thoroughly recommend getting the issues to see what these CF'ers have to say. It nice to know that these stories of their life is so very helpful to others. I can't wait to hear more stories with happy endings!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

1 person found this review helpful

As one of the older persons who have CF, I am 70, I find that CF Roundtable keeps me connected with others who live with CF on a day-to-day basis. I always learn from each issue.
I have been a volunteer for USACFA, the publishers of CF Roundtable, for almost 25 years. I know that it has been time well spent. I recommend reading this newsletter to all who have CF or who care for anyone who has CF.
And best of all, none of the Directors, officers or columnists are paid. All are volunteers.

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1 previous review
Rating: 5 stars  

1 person found this review helpful

For 24 years CF Roundtable has been providing a forum for adults who have CF, their families, friends and caregivers to share information and the latest news in CF research. I have been associated with this group (USACFA) from the beginning. I feel that my 24+ years of service have been a great investment. I have met many wonderful people through this newsletter and I cherish those friendships. And, yes, I have CF.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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1 previous review
Rating: 5 stars  

CF Roundtable is the newsletter for adults who have CF. It offers a way for adults who have CF to be connected with each other, with no concerns about cross-infection issues. It allows me to keep in touch with friends all over this country and others.
I have been a volunteer for USACFA for 24 years and feel that it has been time well-spent. All of the money that is donated to USACFA goes to publish the newsletter. There are no paid employees.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

I have volunteered for CF Roundtable for more than 22 years. I have found it to be rewarding work. I know that we have been able to reach many people who would have no contact with others who have CF, if it weren't for CF Roundtable. Most articles are written by people who have CF and it gives them the opportunity to communicate with others who have CF. Many physicians and caregivers read it too. It is the only newsletter especially for adults who have CF in the USA. By the way, I have CF and I am 69 years old.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I am a young adult who enjoys reading CF Roundtable. The stories are real and help me continue to learn about this disease. I am given insight into potemtial issues and struggles but also gives me hope to see the older population continue to grow. Aside from the stories, there is legal advice and medical updates. Its a mini one stop summary of things new in the CF world. The magazine ties me to the CF community without actually knowing these people and I know I'm not alone in this battle. I absolutely love it and would reccommend it to anyone fighting CF or their caregivers.

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Rating: 5 stars  

1 person found this review helpful

As a 34 year old Cystic Fibrosis patient, I value the information in the CF Roundtable! In fact, I have wrote and been published in it! What a great resource it is for us living day in and day out with this disease. This publication touches on subjects that we all deal with from insurance issues, to exercise, to new findings that come about in medical research. The staff is made up of those with CF, which to me makes it more credible (after all, you don't truly know our struggles unless you live a day in the life..). It is wonderful to be able to receive this publication as a free service to me and so many others. THANK YOU!!!!

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