CF Roundtable, produced by USACFA, is an invaluable resource for anyone dealing with CF, whether it be patient, caregiver, or medical professional. CF Roundtable provides first hand accounts of what it’s like to actually live with CF and is also a fine source of information and research. CF Roundtable is inspirational, to say the least, as are the volunteers who produce it.
CF Roundtable is one of the most valuable resources currently available for adults with CF as well as caregivers of those with CF. It provides a unique perspective of living with the disease as well as practical information and research. Given the fact that it is produced by volunteers who all have CF makes it particularly remarkable. Kudos to those who do such a fine job of keeping the CF community so well-informed and so connected.
As a 52 year old with, I have been reading, enjoying and benefiting from the roundtable for about a year. It is an important resource for people with CF, parents and family members, providing information about scientific developments in easy to understand language. Thanks to all the people working on this.
As a 49 yo CFer, I have been reading, enjoying and benefiting from the Roundtable since its inception many moons ago. It is an important resource for people with CF, parents and family members, providing information about scientific developments in real-speak, a column highlighting studies and news related to CF, ideas and stories written by USACFA members and guest writers on how not only to live with CF, but thrive. It has done a great job keeping up with the exciting and dramatic developments in medication and treatments. Roundtable is a critical tool for a small community, bringing us together and keeping us informed, inspired and hopeful. A treasure kept alive by incredibly dedicated people for whom I am very thankful!
The CF Roundtable provides a very informative newsletter for those with cystic fibrosis. I have learned a lot from it. It also has very good blog posts about important news that comes up in between newsletters. It brings a sense of community to those with CF as well as understanding to the many complexities of this challenging disease.
Awesome organization! Community sourced information that is important for all members of the community. Special focus on adults living with CF. Would highly recommend this organization to anyone looking to stay up on all aspects of cystic fibrosis, science, social and more.
My wonderful wife has CF and USACFA (and the CF Roundtable) are an invaluable source of information that helps to keep me up-to-date on the latest CF news but also serves as a space of inspiration and reflection with every issue. Thank you to the USACFA team and all of the incredible CFers out there. You're the best!
I have been a board director for USACFA since 2013. Prior to joining USACFA I was a long-time reader of CF Roundtable, which is published by USACFA. The board directors are dedicated to educating, empowering and sharing valuable information with the CF community. I am honored to be part of this organization!
USACFA is an excellent non-profit organization serving adults living with Cystic Fibrosis. CF Roundtable is a useful and relevant source for information pertaining to CF including patient experiences and clinical trials.
CF Roundtable was one of the first resources I found for living with cystic fibrosis after my delayed diagnosis as an adult. This newsletter, the blogs and Facebook updates continue to support my education about this disease we share.
This is a great source of support fr those who have cf and their families.
The US Adult CF Assn (USACFA) is an excellent organization that I have been proud to be part for 7 years. CF Roundtable and the accompanying website are tremendous support for me and, I believe, for the CF community. I'm able to meet others with CF through the CF Roundtable social media sites, share our stories, learn from each other and laugh too.
The newsletter is engaging and chockfull of information on all aspects of CF. I look forward to its arrival in my mailbox. I encourage any adult with CF to subscribe to it!
CF Roundtable is fabulous source of support for me, my husband and family. The articles are so informative and inspiring such as Beth's legal and Laura's research updates, Isa's spirituality, Julie's Wellness and Kathy's getting older columns. The focus topics often leave me chuckling, commiserating, awed or taking notes depending on the topic. I read it cover-to-cover as do members of my family. We feel great after reading from the validation that there is world out there that understands!