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USACFA, publishers of CF Roundtable

Rating: 4.88 stars   76 reviews 900

Nonprofit Issues:

Health

Address:

PO Box 1618 Gresham OR 97030 USA

Mission:

As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.

Results:

The past 12 months have been spent revamping our website, connecting to social media sites, and making CF Roundtable free for all.

Target demographics:

Adults with Cystic Fibrosis

Programs:

1. CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www.cfroundtable.com. 2. Website blog, resources, links to facebook and twitter.

2015 Top-Rated Nonprofit
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More Info

http://www.cfroundtable.com/

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Reviews for USACFA, publishers of CF Roundtable

Rating: 5 stars  

Roundtable is a wonderful resourse for support, information, sense of community and hope for all those coping with CF.

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Rating: 5 stars  

1 person found this review helpful

Super informative for non CF persons, and also for persons with CF.

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Role: General Member of the Public
Rating: 4 stars  

1 person found this review helpful

As husband to someone with CF, the CF Roundtable gives good info and support to me. I read every issue, cover to cover. Excellent.

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Rating: 5 stars  

1 person found this review helpful

This publication has been a wonderful source of information and support for me for over 2 decades!

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Rating: 5 stars  

1 person found this review helpful

This is an excellent publication. Anyone touched by cystic fibrosis should subscribe. Terrific and moving articles written by adults with cystic fibrosis.

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Rating: 5 stars  

1 person found this review helpful

USACFA’s publication CF Roundtable has been one of my major sources for information about Cystic Fibrosis for the past 10 years. It was first introduced to me by my CF Center and I’ve been a subscriber ever since.

Each issue is eagerly anticipated. Upon its receipt, it is immediately skimmed. Then, during the next two weeks it is read in detail.

While almost all of each issue is of interest, I especially like the regular “Ask The Attorney”, “Speeding Past 50”, and “Information From The Internet” articles. As a 73 year old with CF, seeing the increasing ages of people in the "Milestones" section has been very encouraging.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2015

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Rating: 5 stars  

2 people found this review helpful

CF Roundtable is a great publication published by USACFA. In addition they have great information posted on their website and their Facebook page. USACFA provides useful information for the health of both the mind and body.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

I have been a reader of CF Roundtable for as many years as I can remember. The newsletter is a great comfort as many of the articles share the experiences of other CFers dealing with the same things I've gone through. The articles often take a topic that is very serious and help us see things in a positive light. It's a great resource and way to connect in various ways with other CFers. Also, it's not completely free due to the hard work of the board and generous contributions and grants.

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Rating: 5 stars  

2 people found this review helpful

CF Roundtable is one of the most valuable resources currently available for adults with CF as well as caregivers of those with CF. It provides a unique perspective of living with the disease as well as practical information and research. Given the fact that it is produced by volunteers who all have CF makes it particularly remarkable. Kudos to those who do such a fine job of keeping the CF community so well-informed and so connected.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

CF Roundtable and its parent organization, USACFA, provide a much needed resource for those with CF. While aimed at adults with CF, its content is also useful to parents, caregivers, and those in the field. It provides a perspective that isn't found in other materials that are available to peruse. Those who produce the newsletter are a very dedicated group of adults with CF who give much of their time and effort to make sure that this is available to us on a quarterly basis. I have been subscribing for 20 years and will continue to do so for as long as this publication is in existence.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

CF Roundtable is an outstanding newsletter for anyone with an interest in CF (adults, parents, medical personnel). It provides a forum for those who live with CF to write about their experiences, hopes, and problems. It is the Voice of CF.

If I had to make changes to this organization, I would...

not change a thing.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

I was honored to become involved as a volunteer with the US Adult CF Association (USACFA) 6 years ago. Before that I was an avid reader (and still am) of USACFA's outstanding newsletter, CF Roundtable, due its wonderful support, education and resources in all things CF. As a volunteer I was able to witness how the directors are constantly striving to improve the publication. It became free to anyone who wants it 3 years ago and at the same time the website was revamped to offer online editions of the newsletter and more interaction between subscribers. USACFA is a quality group of devoted volunteers, all adults with CF.

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Rating: 5 stars  

1 person found this review helpful

CF Roundtable is an incredibly valuable source of information, particularly for the adult Cystic Fibrosis community of which I'm a part. The newsletter addresses nearly every aspect of living with Cystic Fibrosis, masterfully weaving in topics ranging from clinical trials and preclinical research to travel tips, legal information and everything in between. There aren't any other sources of such rich, varied and consistently high quality content for the adult CF community. I look forward to receiving the CF Roundtable in my inbox and I heavily rely on it as a source of trusted and useful information. CF Roundtable is a huge asset to the CF community!

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