TYLER TYPE 1 DIABETES FOUNDATION

Rating: 4.92 stars   13 reviews

Issues: Health

Location: 713 WSW Loop 323 STE H PM Box 196 Tyler TX 75701 USA

Mission: Our mission at Tyler Type 1 Diabetes Foundation is to better equip insulin dependent people to live longer, healthier lives. We serve children and families living with Type 1 Diabetes (also known as Juvenile Onset Diabetes) in Tyler and the East Texas area. For people with Type 1 Diabetes, insulin is not a cure...it's life support. We provide immediate assistance and one-on-one guidance for newly diagnosed families struggling to adjust to having an insulin dependent child. Type 1 parents and trained volunteers will help these families implement physician instructions (we don’t give medical advice) using day-to-day scenarios and ideas for practical application. Understanding the relationship between carbohydrates and insulin is imperative to the life of a person with Type 1 Diabetes. That is why we also offer nutrition and lifestyle education and support groups. Through this, we hope to empower those who are insulin dependent to make healthy choices every day. This will dramatically decrease the chances of complications in the years to come.
Results: 60 Newly diagnosed children and families visited 150 Parents and grandparents attended Diabetes 101 550 Facebook fans (268 active monthly users) 750 Children and families attended support group 500 People attended first fundraising and awareness event 3,500 Unique visitors to our web site (www.TylerTypeOne.org) 6,000 Total visitors to our web site (40 unique nations) 10,000 Views of our Type 1 awareness PSA on YouTube at www.YouTube.com/typeonevideo *—Also just won a Bronze Telly Award for this video
Target demographics: Children and Families living with Type 1 Diabetes.
Geographic areas served: Tyler and East Texas (90 miles from Dallas, TX)

2011 Top-Rated Nonprofit
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Community Reviews

Rating: 4 stars  

Tyler Type 1 Diabetes Foundation is a great organization. I have been Type One diabetic for 34 years. When I was a child growing up with this disease, I thought that I was all alone. Tyler Type One helps children in our community realize that they are not alone. Families living with this disease can get together and share ideas and just let each other know that they know what they are going through. The monthly meeting provide a great time to learn new things on the horizon for diabetes care and to share stories. Tyler Type One holds diabetes classes for the families of newly diagnosed children and their families that provide great resources on how to handle the changes in everyday life that diabetes causes. I highly recommend Tyler Type One Diabetes Foundation to anyone that is type one diabetic or who has family and friends living with this disease.

I've personally experienced the results of this organization in...

Learning about the new insulin pumps and glucose monitoring systems available.

If I had to make changes to this organization, I would...

no changes needed.

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Rating: 5 stars  

Tyler Type One is an incredible organization that reaches out to newly diagnosed families as well as being a support group for all insulin dependent families. When you hear the news that your child will forever be required to give himself shots just to live for the rest of their lives and check their blood 8-10 times and day and if he makes a mistake it can be life threatening --- You are in shock and overwhelmed. Tyler Type One continues to serve through educating families, connecting families, and providing resources! I could not have imagined how alone my son would now feel without this amazing organization to encourage and educate him. They are also doing an amazing job to raise awareness in our community about the realities of being insulin dependent for life.

I've personally experienced the results of this organization in...

When my son was diagnosed, I didn't have any idea where to turn or what to say as I looked into the tear filled eyes of my son through my tears-- it was such a blessing when a Tyler Type One member, Margie Boyd and her son, walked through the door with big smiles and a huge basket of goodies! It was amazing to be met right there in the Doctor's office, IV in my son's arm and a room full of emotion. They were a huge blessing of knowledge and concern. They have continued to provide education and support.

If I had to make changes to this organization, I would...

Continue to help the organization grow.

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Rating: 5 stars  

Since my mother contracted Type 1 diabetes with adult on-set of juvenile diabetes and passed away in her early sixties, I have remained aware & sensitive to insulin-dependant people of all ages. After hearing about Tyler Type 1 Foundation, I educated myself in what they do to educate and assist the parents, family members and care-givers of those just discovering they have this awful disease. I am excited and encouraged to see hope being given to the hopeless and fears being greatly reduced through Tyler Type 1 members giving a special 'touch' of hope through education and regular support meetings

I've personally experienced the results of this organization in...

being blessed to see the faces of recipients of the free Medic Alert bracelets!

If I had to make changes to this organization, I would...

see if the Chamber of Commerce would allow word to be sent via email or snail-mail about Tyler Type One such as a short explanation of its purpose and benefits to the community.

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Rating: 5 stars  

I had never been exposed to Type 1 Diabetes until I met my wife and her son. I knew that there was much to learn and a great deal of responsibility when it comes to the care of my step son. The Tyler Type 1 folks have been a wealth of information and tools for helping me learn what is needed to help care my step son. There is a lot more that I need to learn and I know that they have the knowledge, resources, and contacts to help. I can't thank them enough!

I've personally experienced the results of this organization in...

This organization has given me so much information that it is almost overload. They make it easy to understand and have been there whenever I have had any questions.

If I had to make changes to this organization, I would...

I would not make any changes to this organization.

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Rating: 5 stars  

I am 9 years old and I was told that I had diabetes when I was three. I remember not feeling good and I can remember spending a week in the hospital with IV's in me having to get fluid and insulin. This was not fun. I didn't feel good and my family was very sad. I was scared. My mom was scared. My uncle and grandma were there and they were scared too!
I found out that I would have to get shots every day just so I could eat food. If I eat anything that has more than 5 carbs, I have to have insulin so my blood sugar doesn't get high. The only time I get to eat without getting a shot is if my blood sugar is low. Usually if my reading is below 70 my mom will let me have something to eat, like a box of raisins, or a small banana or spoon full of peanut butter. Sometimes I get to eat chocolate or candy. That's usually good :)
I am glad we started going to Tyler Type One Meetings because I got to meet other kids with type one diabetes too.

I've personally experienced the results of this organization in...

I meet other people with type one diabetes and sometimes we talk about how it affects us; but sometimes we just play together and have fun.

If I had to make changes to this organization, I would...

I like it the way it is.

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Rating: 5 stars  

My nephew Cody was diagnosed in 2005 with juvinile diabetes in 2005 and it was very sad to see. My sister and I had to learn alot in a short perion of time, carb counting, shots and understanding. I started attending Tyler Type 1 with my sister Colleen a couple years ago and what an eye opener. I never realized how many people it affected and the different tools now available. Even though my sister lives in Tyler now and I in Carthage I still plan to attend Tyler Type 1 meetings occasionally
to keep updated through the very informative lectures and talks. I encourage anyone with Type 1 or 2 diabetes to attend these meetings and especially if you have a child living with Diabetes.
Sincerley: Allen Millerman

I've personally experienced the results of this organization in...

My day to day life have lived with a child with typy 1.

If I had to make changes to this organization, I would...

would not!

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Role: General Member of the Public
Rating: 5 stars  

My son was diagnosed with Type One in 2005. It was a terrifying experience and I had nowhere to go and nobody to talk to. We were referred to UTMB Galveston and the drives down there were very hard on a single mom and newly diagnosed 3 year old. We were so happy when we found Dr. Luis Casas in Tyler in 2008. We were even more excited when he introduced us to Tyler Type One! Even though we had three years experience under our belts this was the first time my son had EVER been around another child with the same disease he had... wow! A whole new attitude was developed... for the first time since his diagnosis, he did not feel alone! What a gift to be able to meet with these people (parents and children) who know how you feel, what you're going through, and open themselves up to share their knowledge and lives with you.
I just remarried and my husband and his two children now attend the meetings and we will be taking the next Diabetes 101 class together so that everyone has a full understanding of how this illness effects everyday life and what can be done to improve it!
We have been blessed to participate with this group of people and I hope that I can help by volunteering with the Tyler Type One organization.

I've personally experienced the results of this organization in...

Just listening to the stories, knowing someone is out there who cares and understands has helped decrease my anxiety. My child being able to see he is not alone with this disease was the best experience ever... it completely changed his life!

If I had to make changes to this organization, I would...

The only change I'd like to see is to have this organization explode into many more offices and locations with people who care as much as the board members of Tyler Type One!

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Rating: 5 stars  

My son was diagnosed almost a year ago. The TTO was ready to help me through this difficult diagnoses. I thought I didn't need a support group or need to know anyone else who had this disease. Let me tell you I was wrong!! I called someone from the TTO 2 days after his diagnoses and they were ready to help me. Still unsure if I needed them or not I talked with them. It took a few months later before I decided to go to a meeting. It has been the best decision I could have ever made. We have come to know so many wonderful people and families. The first time he got sick they were there. It was at night and they stayed up with me on the computer asking me questions, reminding me of things I needed to do. Now that it has been almost a year I have in return helped out other families. This is a scary disease and you must be educated to care for you child/children. Speaking of educated they offer FREE Diabetes Education Classes to the public!! These classes cost around $1000.00 each and they provide them to the child, parents, grandparents, caregivers for FREE. My son looks forward to going to the meeting each month and visiting with other kids just like them. As for me its a time for the kids to visit and parents too. I can feel safe for my child to be in another room for 1 1/2 hours being supervised by an adult who can take care of a diabetic child. My mind is at ease during this time. I don't have to worry about him dropping to low and not taking care of himself. No matter what is on our schedule when it comes to the day of the meeting everything is put on hold so we can attend! We love the TTO and recommend it to any person/family living in the Tyler area to check them out. To know you are not alone and you have support is a wonder blessing. I thought I could do it alone but I can't! We all need the help of each other and that is what the Tyler Type One does! Support for each of us!

I've personally experienced the results of this organization in...

I was home alone with a sick child and they were there ready to help me.

If I had to make changes to this organization, I would...

I am not sure if I would change a thing! They are well organized and seem to have things under control.

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Rating: 5 stars  

My daughter was diagnosed with type 1 diabetes last year, and it was a sickening blow to my family. Suddenly my daughter's very survival depended on our success in managing her blood sugar, which is a minute-by-minute activity hinging on our mastery of the endocrine system - something even most medical professionals don't understand. I was completely overwhelmed! But before the day was out, I had received two phone calls from Tyler Type 1 volunteers offering support. They knew what I was going through and were ready to help at any hour of the day or night. Within a few days they had provided us a basket full of snacks and goodies that were appropriate for my daughter's condition. They followed up on our progress and answered questions I thought were silly without making me feel dumb. When I attended my first TTO meeting and they learned that I needed a glucose monitor, they had one in my hands (with test strips!) before I went home. And over the course of the next few months, they connected me with resources that have proven invaluable to managing my daughter's condition. My husband, daughter, and I attended Diabetes 101 (a class TTO provides for FREE! ) and learned a ton from the diabetes educator - things we are still using all these months later. I speak almost daily to people I met through TTO; there is tremendous emotional benefit to knowing that others share my experience. TTO offers hope in an often hopeless situation.

I've personally experienced the results of this organization in...

...the management of my child's life-threatening disease.

If I had to make changes to this organization, I would...

...get them as much funding and publicity as possible, because they are ready and willing to help even more people if they only have the resources to do it.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

My doctor told me about them on the day of my daughter's diagnosis.

What, if any, change in your life has this group encouraged?

I have been encouraged to educate myself about type one diabetes: to become my child's primary healthcare provider, because this disease manifests itself differently in each patient, and nobody else can know my daughter's particular case as well as she and I can. Now, instead of being lazy and neglecting her disease, I am making progress toward controlling it. She is much healthier as a result!

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

I have seen how dedicated the volunteers at TT1 are and I hold them in deep respect. Having a Type 1 grandson who went through his early years without such a support group, I know how much this means to everyone associated with the disease.

I've personally experienced the results of this organization in...

talking to the volunteers and hearing their recounting of the children and parents to whom they have given support. Fundraising is difficult and they manage to work many extra hours on that aspect of their voluntarism.

If I had to make changes to this organization, I would...

keep the emphasis on support and extend the board now that the number of people they service is growing so rapidly.

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