THE NATIONAL ADRENAL DISEASES FOUNDATION INC
Rating: 5 stars 2 2 reviews 17
Location: 505 Northern Blvd Great Neck NY 11021 USA
Results: We are working on a large project to stop death from undiagnosed adrenal disease. We have earned a lot of money, but still have a long way to go before we can implement the project.
Target demographics: individuals who have adrenal disease, along with their loved ones and caregivers.
Direct beneficiaries per year: We have 2600 people on our mailing list, most of them people with adrenal disease.
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I called NADF looking for a support group. While they didn't have one in my area, I immediately took on the role of Support Group Leader in my area. NADF sends out life-saving information. I am so much more knowledgeable about my disease since joining NADF, and I'm able to help others and support others. The Executive Director and the President of NADF are the most caring, compassionate, and trustworthy people you'll ever meet.
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After having Addison's Disease for 3 years, I decided I needed some support. I contacted NADF, and I ended up starting a New England-based support group for people with Addison's Disease. It was the first time I met other people with Addison's. Everyone is so helpful. I've gotten more common sense advice on taking care of myself than I did through my regular endocrinologist.
I've personally experienced the results of this organization in...
I've learned so much from talking with others, and it gives me great satisfaction helping new people with questions.
If I had to make changes to this organization, I would...
I would like to make NADF more visible to those people looking for help on adrenal issues.