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The Fpies Foundation

Rating: 4.91 stars   33 reviews 1,002

Nonprofit Issues:

Health

Address:

P.O. Box 304 Stewartville MN 55976 USA

Mission:

The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.

Results:

In the last year, we applied for and received our official 501(c)(3) tax-exempt status from the IRS, allowing us to further expand our programs and services for the FPIES community at large. We have created a brand new, extensively expanded website. It is packed with FPIES resources for medical professionals and families alike, once more supporting our mission of FPIES education and awareness. Our database of FPIES-friendly medical professionals is a keystone to our web offerings. We have partnered with our esteemed Medical Advisory Board to create an in-depth Q&A. This document provides medically responsible answers to questions asked by the FPIES community. Be sure to follow our activities during Food Allergy Awareness Week 2013!

Target demographics:

Families and their children affected by FPIES, medical professionals that serve those diagnosed with FPIES

Geographic areas served:

Worldwide

Programs:

A Toolbox for families including Food journals, ER Care, symptom checker, doctor visits, label reading tutorial,… Cooking and Nutrition website pages for tips, tools, and resources Provider Directory to find family-recommended knowledgeable FPIES practitioners Medical Journal Article links and glossary Printable education materials FPIES Q&A: Questions from the FPIES community, Answers from the Medical Advisory Board Food Allergy Fair participation Inspiring Family story share program Resource lists Partnering organizations Foundation Social Media for awareness and support: Facebook page/Twitter/Pinterest Foundation Blog/ The Foundation YouTube channel How to Help an FPIES family today article Hugs for Hero’s and other volunteer programs Ongoing Fundraising and Awareness programs Easily accessible website and support forum Multidisciplinary Medical Advisory Board, leaders in FPIES treatment and management 1023 submission and 501c3 non-profit designation

2014 Top-Rated Nonprofit
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www.fpiesfoundation.org

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Reviews for The Fpies Foundation

Rating: 5 stars  

1 person found this review helpful

After giving my grandson a taste of oatmeal at the age of 4 months he went into a severe reaction. Vomiting until he went into shock. At the ER we were told that he had a case of the flu. Fast forward a few weeks, we again tried the oatmel and Stephen had the same reaction. My daughter knew that this was no ordinary flu that was going on with him. She pour herself into researching his symptoms and came across the FPIES Foundation. When we took him to the hospital we came armed with information about FPIES. The doctors and staff had no clue about FPIES, they did after that visit. Stephen is now 2 1/2 years old and has only a few trigger foods that give him minor reactions. We are so grateful that the FPIES Foundation with all of their valuable resources and termendous support has helped us through this.

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Rating: 5 stars  

2 people found this review helpful

As a parent of a child with FPIES, the FPIES Foundation has been an invaluable resource for our family and others struggling with this confusing and difficult diagnosis. With such a rare condition, many families are left to find information on their own as they try to understand how to manage this form of allergy. The FPIES Foundation has brought together a wonderful combination of support from others going through the same struggles, as well as expertise from the medical field to provide insight as the knowledge and information grows on how to diagnose and treat children with FPIES. They have put together so many resources to help families in one central place. This foundation has also been so instrumental in furthering research on FPIES and spreading awareness to the medical field and the general public. The sooner a child can be diagnosed, the sooner their families can start on the path to healing and finding safe food choices. We are so thankful for the FPIES Foundation and all of their hard work to provide all of the support that they do!

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Rating: 5 stars  

2 people found this review helpful

What a great non profit that truly supports the families affected by FPIES and the most current research. My children have food allergies, not FPIES, but I have taken some great information from this source. I know a wonderful little with FPIES, please keep up the good work!

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

My grandson has FPIES and I have seen first-hand the frightening effects of FPIES, espectially for the child who is clueless as to what is happening and why. The FPIES Foundation is a wonderful resourse for both the medical profession and families affected by FPIES.

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

Both of my boys have food allergies, not FPIES, but we can relate on so many levels! FPIES has a great community and support system that all parents need when dealing with any food related challenges with kids!

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

Having a child is challenging enough. Having a child with FPIES can be overwhelming. Your infant can't tell you what's wrong and trial and error is excruciating. I had never even heard of the condition until my friend's son was diagnosed with it. The diagnosis, as hard as it was, was a silver lining. Support is critical. The FPIES foundation has been invaluable to my friend and her entire family. It provides emotional and intellectual support, and I have seen first hand how it has buoyed my friend's spirit and resolve. While her family and friends never left her side, the FPIES foundation did for her, her husband and her children what we couldn't, give hope and understanding. Thank you from the bottom of my heart.

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Role: General Member of the Public
Rating: 4 stars  

1 person found this review helpful

Having children with food allergies is very challenging. Thanks for all the good work.

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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My friend's child has FPIES. She and her family have found incredible support from this organization. It is so nice to know that families suffering from this rare condition have an organization like this to help them adjust to their new lifestyle.

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1 previous review
Rating: 5 stars  

A good friend if mine had a child that suffers from this disease. Her family has found this organization to be incredibly helpful.

If I had to make changes to this organization, I would...

None

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

1 person found this review helpful

I have a cousin who has FPIES and has seen everything he has gone through. The FPIES Foundation has been a huge resource for him our family.

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Rating: 5 stars  

1 person found this review helpful

Both of my girls have FPIES. We spent over a year going from specialist to specialist trying to find answers about my toddler. It was the FPIES foundations website that finally gave me some needed information and the provider locator that helped us find the right specialist to treat her. Now even though our new baby also has FPIES, we are able to see her thrive and enjoy her first year because we knew what it was right away and how to deal with it. We are very thankful for the FPIES Foundation getting information out there about this rare condition so people like us can find answers when nobody seems to have any.

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