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The Charcot-Marie-Tooth Association Overview
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When my son was diagnoses with CMT we had no idea what it was and the doctors in the Chicago area were not very helpful and had little knowledge of CMT. I started searching for information on the internet and found the Charcot-Marie-Tooth Association (CMTA).
The CMTA has been a wealth of ...
I find it odd that the adress listed on Charity Navigator is in Chicago, yet on here, their website and all past IRS form 990s it's a p.o. box in Pennsylvania . They claim to be funding many research projects, ect, but do not give an accounting of grant amounts or who received them.
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This "charity" is exactly NOT charitable. While the Board President has a financial and legal mess of a life, the Executive Director is pulling in a salary of $190,000 plus benefits. 2 staff were fired (one was paid to keep quiet) the other had to file with the Dept. of Labor to get her overtime ...
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