Spondylitis Association of America

Great organization that provides members with resources, knowledge, community, and more!!!
Really appreciate all that SAA does for all involved from clients, to volunteers, to doctors and caretakers. They make a difference for all.

SAA has provided me with many educational resources to help me manage my condition and maintain a better quality of life. I am so grateful the organization exists to provide support to both patients and providers.

useful resources on the website, in the quarterly magazine, monthly newsletter and most recently spondycast. SAA is always available for questions, open to feedback, and innovative on how to serve the SAA community, both patients and medical professionals.

I have worked with a great number of corporations and organizations throughout my career. I can say without hesitation or bias, Spondylitis Association of America is made up of some of the most dedicated individuals I have seen. Selfless. Empathetic. Driven. Individually and collectively, the people that make up SAA live by the nonprofit’s mission. They are a credit to the organization and the people they serve in the spondyloarthritis community.

SAA is THE go-to for high-quality, accurate information about the family of spondylitis conditions. The SAA supports patients, advocacy work, and doctors. The SAA provides patients with easy-to-read research, treatments, and tools to communicate with others about their condition.

I can't say enough good things about the humans shaping and leading the charge at SAA. Talk about a powerhouse team and organization that is really doing the work and making a difference. I've had the opportunity to share my ankylosing spondylitis story on multiple platforms with the Spondylitis Association of America, from their My Story piece on their website, to being a guest on Spondycast. The Spondylitis Association of America team is energetic, enthusiastic and all about uplifting and inspiring the people they serve. I have to give a special shout out to Sean Ewert, the Director of Member Engagement. I connected with Sean years ago and he continues to check in, to stay in touch and to help provide opportunities for me to make a contribution to the SAA cause. This is an organization doing so many things right.

The SAA has been amazing at helping me navigate my disease. Their website it one of the most thorough and comprehensive sites I have ever seen for a nonprofit. Everyone that works there is accessible and extremely helpful. I can't say enough good things. They are doing everything for this disease and support those affected.

When I was first diagnosed, I was directed to this organization for information and support. The free webinars, podcasts, support groups and website have helped me tremendously. And somehow, even though this disease is life-long and can be debilitating, the message I have received through it all is one of empowerment. There is so much energy in in the Spondylitis Association of America that I get excited, not frustrated, by the postings on social media and through the emails I receive. I can't think of a better run organization. Wow!

SAA is such a supportive organization that connects patients with the support they need. It’s tough living with an invisible disease like AS, but with the support of organizations like The Spondylitis Association of America, I feel I can stand tall!

The Spondylitis Association of America is a fantastic nonprofit. Money raised or donated goes to spreading awareness, sharing resources and finding a cure.
The people working for SAA are quick to respond to questions and are very caring and helpful.
They publish newsletters/a magazine to keep members informed of what's going on with research, sharing people's stories (making us feel less like we are the only ones with these experiences) and share information and stories about illnesses related to those with Spondylitis, like uveitis, IBD issues and fatigue.

The Spondylitis Association of America is a very forward thinking organisation, they understand the struggles of people living with Spondylitis and are very committed to improving the quality of life for their community. I have had the privilege of working with some of their staff and they are all amazing people with a true passion for what they do. I cannot recommend the SAA's work enough, from their resources to research, to advocacy work they are leading the way.

This non profit is higly responsive and always talking with a live person.
Whenever I have a question regarding current research or I need a connection they are there. If they don't have the answer right away they get back to me with the research. They provide support groups, materials and keep in contact not to just ask for money but to sincerly provide services to our people in need! They provide seminars, media promotions for education as well. They work tirelessly in the communties across the nation to bring awareness to this health condition to patients and the medical commuity that affects so many people without a diagnosis. They are the backbone of our support community.

I have had such genuine relationships develop because of SAA. They provided me with a platform to share my story, and with that, came healing. I greatly appreciate their empathetic and genuine approach .

The Spondylitis Association of America is an exceptional non-profit organization dedicated to improving the lives of those affected by spondylitis conditions. Their commitment to research, advocacy, and patient support is truly commendable.
SAA's dedication to advancing medical knowledge through research funding has led to significant breakthroughs in spondylitis treatment and understanding. They tirelessly work to raise awareness about these conditions, ensuring that individuals receive timely diagnosis and proper care.
In an era where healthcare is of paramount importance, the Spondylitis Association of America stands as a shining example of an organization that truly makes a difference in the lives of those it serves. Their commitment to improving the quality of life for spondylitis patients is truly inspiring, and they deserve the highest praise for their exceptional work.

I was diagnosed with ankylosing spondylitis during the height of the pandemic. On top of the isolation that the pandemic caused, I experienced this addition sense of isolation upon learning that I have a disease I didn't know much about. In a Google search, I found SAA, and I am so glad I did. Reading the stories of other people living with SpA helped me to feel less lonely; I felt a sense of relief knowing that I was part of a community of people with a wide range of experiences. SAA's website is an incredible source of medical information, research, and opportunities for advocacy. And I appreciate seminars and other opportunities to interact with experts in the field.

The SAA's advocacy work on behalf of those with spondyloarthritis is outstanding. The staff and the programs are helpful, informative and they strive to be a leader in information and a trusted resource.

As a former employee who recently returned to the Spondylitis Association of America (SAA), I can't express enough how much I love this organization. SAA excels in patient education, offering accessible and scientifically sound resources to help individuals manage this complex disease. SAA also provides a community for those diagnosed with spondylitis through its network of support groups as well as a toll-free telephone line, both offering personal connection and assistance. SAA also has a strong commitment to furthering research, by partnering with top researchers to drive scientific advancements. I'm incredibly proud to be a part of an organization that truly advocates for the spondyloarthritis community.

SAA is a fantastic organization! This disease affects everyone differently and patients can have a difficult time finding information specific to their symptoms. Sometimes doctors don't fully understand that there is no standard "playbook" when it comes to how the disease starts and progresses. Even with a family history of Ankylosing Spondylitis, the way the disease affected me was completely different than what my family knew as "normal" symptoms. SAA's extensive information, caring/engaging staff and their support groups helped me make sense of my condition and the way it affected my life! I can't say enough good things about the positive impact SAA has had on my life.

As someone living with multiple chronic autoimmune diseases, it is not lost on me how amazing the folks at the SAA are to us. Like a lifeboat on rapid waters, the SAA pulls us out of the murky waters and keeps us going. Five stars for SAA! Thanks for all that you do to help us.

SAA has been so supportive to so many people with related diseases, including me! Their monthly magazine is well written, personal, and filled with the latest research info and holistic guides to healthy daily living practices . They offer support groups in many cities - in which I have participated. They share personal stories from people with the disease on zoom and in the magazine. They link us to drug companies that offer financial assistance. SAA is just what the doctor ordered!!!

The SAA and their staff provide incredible resources and support for those managing spondylitis! The efforts of Sean Ewert engaging with patients and sharing their stories helps to instill hope for others to push forward.

Can say in all sincerity, SAA has saved my life! I have Ankylosing Spondylitis and Psoriatic Arthritis, and it was my rheumatologist who suggested checking out the SAA website for a support group. I did and to my surprise there was one in my community. I joined and left my first meeting bouncing off the walls! Why, because I found others who are going through similar as me, who listened and empathized with what I was feeling. Instead of being left out in the dark, I am now a part of a group of like feeling individuals.

As I continued my journey of life with AS and PsA, the SAA has been there every step of the way. Their website is sourced with information that many of our medical professionals simply don’t provide us after an official diagnosis. Thank you SAA for being a very important part of my life!

Walter Ramirez

There is so little out there to inform people regarding this unknown debilitating diagnosis. Grateful for this organization for giving me a voice and letting me share my journey with AS.

Thank you for your effort
It was the only time I received emotional support

I've had a great experience working with SAA as a SAA Storyteller and having my story out in the world was really important to me. I hope this association continues it important work in the future! Everything was organized really good and I plan to contribute in the future if possible.

I connected with SAA through their Director of Member Engagement after sending them my TEDx talk where I share a small piece of my AS story. Sean Ewert (Director of Member Engagement) asked me to share "My Story" on their site and that entire experience was empowering and multi-layered. Having "My Story" on their site to inspire others to dig deep and lean in, despite being the midst of an AS flare or new diagnosis gives purpose to my AS journey and I'm grateful for the platform that SAA has provided. I'm a big fan of SAA for all that they do to inspire and uplift people (especially young people) navigating their own journey with ankylosing spondylitis. My hat goes off to the Spondylitis Association of America.

This is a great organization. The work really hard to build a community among their patience and they provide excellent information that is really helpful.

SAA has been a wonderful resource of information and encouragement to my wife (the WARRIOR of the family) as well as me, my daughter, and her extended friends and colleagues. I cannot think of a better organization or advocate for those living with AS.

There is no doubt that the Spondylitis Association of America Spondylitis Association of America (SAA) Is the patient voice for those with Spondylitis. They are caring - sure that is expected.

But they are also patient and information active. They have my highest endorsement.

I began as a member of the Spondylitis Association during my diagnosis of AS. The staff of the organization were extremely supportive and caring. Any chronic disease is scary and I felt alone at first and know many others who felt the same. SAA goes above and beyond to make sure you don’t feel alone in the fight. For me, they provided education and resources (support groups, exercise videos, targeted articles)to better understand and learn how to manage the disease. Years later, I am much stronger because of SAA and credit them for being a guiding hand in making my journey one that has allowed me to understand the disease manage it. I’ve been empowered to support and get support from the AS Community. As a result of my experience as a member, I recently joined the board of directors to continue to drive the Organization’s mission and be a part of ensuring that what is on the Horizon continues to add immeasurable value to people with AS through advocacy, education and true caring.

Committed Leadership at Management and Board Levels. Staff dedicated to advancing SAA's mission - Thank you!

SAA provides education, support and resources for patients dealing with spondyloarthritis and theIr loved ones. It’s an amazing organization!

Spondylitis Association of America is a great organization that helps so many people in need. It has been a great pleasure working with the wonderful staff for such a wonderful cause. Everyone has been so kind, helpful, and the whole team really go above and beyond at what they do. They are very focused on their mission to help people who suffer from this disease.

I have been with SAA since 2005 and have seen what a truly first class nonprofit can do for those with ankylosing spondylitis and related diseases. Your monetary support goes a long way to educate and empower the spondyloarthritis community and champion scientific research to find a cure.
SAA has been an important chapter in my life that continues to help others in many ways.

I really and thoroughly enjoyed my time working at SAA. The staff was welcoming and truly made it feel like home from the very first day. They are doing great work and helping so many people, I felt very lucky to be a part of that. It’s very refreshing to work for a company that really takes the time to do things the right way, and treats each and every person with the respect they deserve. SAA helps a tremendous amount of people, and I’m thankful to have seen that firsthand when working there.

The Spondylitis Association of America is the foundation of research of all things related to spondylitis. I sincerely appreciate having the SAA as my go to resource for accurate and reliable information as well as multiple educational resources about spondylitis. They are always professional, expeditious and extremely informative. They have been amazing to work with through my volunteer efforts to personally advocate for spondylitis. The presence of the SAA is changing the way that the world views spondylitis which ultimately shortens the duration to patient diagnosis and assists with patients getting proper treatment much sooner than.

They have excellent patient education materials. Far and away the best available on Spondylitis. They also do a great job of sponsoring research on Spondylitis and they have put together a fantastic network of support groups for people living with this disease.

This organization truly believes in their peer support groups. The groups are where you can come together and meet folks that know what you are going through. So happy to be able to lead one of them.

I cannot express the welcome I felt when working with the people at Spondylitis org. I came to help to give back to the community , but what I got was much more than that. I received a extended family and a lot of friends. My experience I will never forget

SAA is truly a great nonprofit and it has dedicated individuals who genuinely care about the organization's purpose. SAA undoubtedly cares about its cause more than anything and it definitely shows through all the hard work,effort, and careful planning. I really enjoyed my time volunteering and I'm grateful that I had such a fulfilling opportunity since I was able to help this wonderful organization so they could keep helping others.

I am so grateful to SAA - for their support groups, for the research they sponsor, for the sense of community they foster, for the awareness they raise about spondyloarthropothies, and for the education they provide people living with these conditions to empower them to participate in their own health decisions. Thank you!

An amazing organization with a great team behind them!

I'm so glad I chose to volunteer my time with the Spondylitis Association of America while completing my post-baccalaureate program at UCLA. They were very friendly and welcoming to me, which showed how grateful they are to their volunteers. Would highly recommend to my fellow pre-health/ pre-med students interested in the non-profit sector. I'm so thankful for the opportunity and experience I gained that I hope to implement in my future career as a clinician.

Wishing SAA and the members a successful and bright future!

SAA has been a most valuable resource. Most of the treatments and therapies that have helped me were found through the SAA. For Spondylitis patients The SAA is the only place where we can garner knowledge and become literate enough to be proactive with our disease treatment. As well as find a physician and support group all in one place.

I was diagnosed with AS in 2015. I have a fabulous MD who, after I reacted to Sulfasalazine recommended Remicade. I have been on Remicade for four years. It has definitely helped the AS disease progression. I am so thankful and appreciate his attention to my details. I also take chair yoga twice a week. Fantastic for anyone who wants more flexibility. The ASS
Has been helpful with direction on how to hep yourself.

Rarely have I come across a more personal, committed staff at a nonprofit. In the past few years SAA has doubled, yet remains small and close-knit. Spondyloarthritis is not rare, but it's treated like it, and the only national nonprofit committed to funding research, raising awareness, and supporting patients is the SAA. They have a heavy lift and are doing a great job. If anything needs changing, it's that more materials need to be translated to reach more people.

I recently had an opportunity to volunteer at the Spondylitis Association of America. It was a great opportunity to work with sincere and hard-working team. They were always ready to help me even if someone had to step out of a meeting so that I could continue to work on my given responsibilities. Everyone at SAA were great team players, knowledgeable and always ready to assist when asked. It was a pleasure to volunteer at SAA.

I love this non-profit!

I began volunteering here in February 2019 and have been blown away by the dedication and professionalism of the staff.

Creative, energetic, caring, giving people who love what they do and it shows!

I hope to be associated with SAA for a very long time.

I recently volunteered and have to say it was one of the best experiences I've had. The office staff were so friendly and helpful. They went out of their way to make me feel comfortable. If I requested help with the project I was working on, someone was always there. The Spondylitis foundation is a wonderful place and a fantastic office to for volunteering.

I recently volunteered for the Spondylitis Association of America and I found the experience to be very rewarding. I enjoyed participating in the association's efforts to spread AS awareness. The staff was attentive and welcoming from the start and they provided me with all the help I needed. I will not hesitate to volunteer for such a great organization in the future!

When I was diagnosed with Ankylosing Spondylitis, my rheumatologist referred me to the SAA. They not only provided me with knowledge and tools, they gave me a sense of community and let me know I was not alone.

Earlier this year, I had the honor of performing volunteer work for the Spondylitis Association of America. From the moment contact was initiated, I felt very appreciated for any effort I was able to contribute. It is easy to see that the backbone of this organization comprises genuinely warm and caring people. As an added bonus, my contribution was possible to do virtually in the comfort of my own home! What I also appreciated was the open communication with SAA personnel in a "no pressure" environment. Highly recommended if you are looking for a volunteering opportunity! :)

I volunteered with SAA since February 2019 to June 2019. All I can say is this nonprofit is amazing. The staff working here are one of the most friendliest and hardworking people you will ever meet. They make you feel very welcomed! I would volunteer with them in a heartbeat!

I had a wonderful experience volunteering at SAA for 4 weeks in the spring of 2019! Everyday I witnessed how their dedicated, compassionate efforts helped change the lives of those who are suffering. Their kind and supportive staff made me feel right at home. I highly recommend SAA, and would volunteer there again in a heartbeat!!!

SAA has been such a great resource for me. I only wish I would have found them when I began my journey with AS 15 years ago.

Having a child with Spondylitis is scary and causes our family to feel alone or lost quite often. SAA has been instrumental in helping us find information, resources, help, a sense of belonging and HOPE. We are grateful to all of the employees at SAA that make us feel heard and that we are not alone in this fight against Spondylitis!

SAA is an amazing non-profit doing important work. I volunteered at SAA for 5 weeks over the summer and every day I came into the office, I saw people working extremely hard to help people with Spondylitis and create awareness about this relatively unknown condition. Not only does SAA donate large sums to research to help cure the disease, but it also provides support groups for those affected by Spondylitis. Great organization.

When I was diagnosed, SAA was right there to provide information and support. I immediately joined a support group, and between the leaders and the members, I was given hope and direction as to how to live well. When I moved, I became a leader for SAA myself to help others.

Love it a great help. An great information from them

The SAA has shown themselves to me and my family to be honest, kind, genuine and concerned with my wife and her battle. We have been honored to partner with the SAA to raise money and awareness over the last two years and plan to do so for years to come. Highest recommendation!

SAA is a wonderful non-profit organization. Being an AS warrior, I am so thankful to have an organization like SAA.

I had undiagnosed AS for decades. My pain was intense, but seemed to attack at random times and in random locations. I had back pain only occasionally. To be honest, although I knew the pain was real, I felt guilty about it and wondered if I was a hypochondriac. Thinking of AS as a back issue, I was skeptical of the diagnosis at first. The information on the SAA Web site was life-changing. My symptoms were atypical, but perfectly normal! Essentially all the resources I have to deal with my disease have come from SAA. Spondylitis Association of America is a lifeline. My rheumatologist provides prescriptions, but SAA provides information, community, and hope.

The Spondylitis Association of America is doing a great job of helping people with AS get diagnosed, find care, understand treatment and exercise safely. AS can be especially devastating when you don’t know what’s happening to you and SS of A is constantly trying to educate health care workers and the public as well in order for diagnosis to take place in a timely manner. Five stars all around!

Great for people with the disease , great information , great support

SAA has been extremely valuable for me. A fantastic resource for anyone effected by spondyloarthritis and related conditions. I've been a member for several years and particularly enjoy the support group/educational meetings they host. Very grateful for SAA!

Had a wonderful experience at their recent event. Very well organized and a great resource for families dealing with AS. Richard is a real gem - they are lucky to have him at the helm!

SAA has kept me informed with their information on studies and up to date info. The treatment plan that I saw helped me and my doctor. I recently switched some medication due to this info. There is support from SAA and all the members.
They are great!

They have worked closely with me to start my state's first support group. I have absolutely loved every aspect of working with this organization. They have by far the most accurate knowledge of any other source and they have a strong dedication to raising awareness.

I have received pamphlets explaining my condition from SAof A after seeing their info to request more. I get more info by seeing what they post online/ their Facebook posts. It is often good info to share with others to help them understand my condition and what I have gone thru. It's great to have validation about what to many is an " invisible disability" that is very real and debilitating!

The SAA is the best, most ethical non profit group I have ever attended. They really help you cope with a horrible disease that most people cannot even spell or have even heard of. I learned the most by attending meetings and meeting other members. The SAA embraced me like family and is run like a family as well. I would highly recommend this nonprofit.

After my diagnosis 17 years ago SAA was the first great website I found. It was full of information and reassurance about a disease most people had never heard of! They have stayed on the forefront of new developments and continually expand their information and support for all of us.

Since I was diagnosed with Spondyloarthritis, the Spondylitis Association of America has been a huge source of support for me. Their support group has been a lifesaver! It helps me to meet others with similar experiences, feel that I'm not alone, and get useful information on doctors, treatments, and lifestyle changes. I also appreciate SAA's Facebook posts, and the magazine Spondylitis Plus, which have both provided me with crucial information. The existence of SAA makes life much more manageable for people like me with spondylitis!

The SAA is a World Class organization, run by a remarkable, dedicated, and brilliant leadership team. I will forever be indebted to this amazing organization and the phenomenal individuals who work so hard everyday to advocate and improve the lives of spondyloarthritis patients.
In 2009 I had my first case of Uveitis and tested positive for HLA-B27. Since 1999 I had been riddled with chronic joint pain, "phantom" illnesses which included gut problems, not being able to walk some days, swollen fingers and crippling fatigue. Finding the Spondylitis Association of America was like Manna. I finally had access to all the medical information I needed and an amazing support group of professionals and peers who were also experiencing so much of the frustration of having an undiagnosed condition. I was quickly fully diagnosed through Doctors recommended through the network, was able to manage my physical condition through exercise and treatment recommended through the SAA. I often wonder what my life and health would look like if the SAA didn't exist. This is a beautiful and truly altruistic organization.

SAA is passionate about spondylitis research, advocacy, and education - and they're the only non-profit out there dedicated specifically to spondylitis. Ive been a member for many years; my father and uncle both had Ankylosing Spondylitis, and now I do, too. I am so thankful this non-profit exists!

I've had AS for 35 years and only discovered the group a few years ago. Since them they have helped so much plus now I know there are others out there, it's not just me. Now,with there help I distribute information when asked. A lot of people would be completely alone without SAA.

Spondylitis of America is an exemplary non-profit striving to find a cure for persons suffering from ankylosingspondilitis and other related diseases. I proudly serve on the board of directors for Spondylitis of Ameica and strongly support our mission.

I have had AS for 48 years and when the Spondylitis Association of America began we who have this disease started seeing progress toward better management of the disease and its many ramifications. The research has been fruitful and continues to give us more than just hope; it gives us tangible paths to a better, more productive life.

Spondylitis Association is a go to site for anyone needing up to date information on Spondylitis! I am the Spondylitis support Group Leader in our area and find this site extremely helpful as well as the entire association!
I often send people to this site if they have symptoms of spondylitis but aren't even sure about their condition.

I have been a member of the Spondylitis Association of America for 20 years. The SAA is the most accurate source of current information regarding the diagnosis and treatment of A.S. and other types of spondyloarthritis. There website has a wonderful catalogue of past issues of the quarterly news magazine "Spondylitis Plus". The SAA also provides support groups in many areas of the country. Finally there is a wide selection of literature available on line along with many webinars.

SAA has been a life saver for me after my diagnosis with AS three years ago. I came into my first meeting a shell of a human being after having suffered months of constant soul crushing pain before doctors finally figured out what was going on in my body. I found a community of people that were willing to listen, share their own experiences and offer support. Like so many things in life, there is strength in knowing you are not alone. Since then, I have learned that SAA is the foremost expert on a disease that is still widely misunderstood, even within the medical community. The disease can present itself very differently from one person to another and it is great to have a group to go to with questions about how it's affecting you. Odds are that someone has experienced a similar symptom or found success with a certain treatment. If you have a question that is harder to answer, SAA is willing to do the work to look for answers.

Through a lot of rehabilitation and recovery, I am now feeling great and in the best shape of my life, but still enjoy going to meetings to see the friends I have made and be there for others who need support.

I have been diagnosed AS here in Italy but wasn't given many information, especially as far as the entheropatic form is concerned.
The SAA website was a happy discovery and I decided to become a member, not only to support it but also to keep updated with the latest discoveries. I love the webinars.

I am so grateful to this organization. My journey with psoriatic arthritis/spondyloarthritis started 4 years ago. The Spondylitis Association website has been and still is my go-to source for information beginning with my diagnosis and continuing through various treatments. It publishes the most informative educational blogs and articles, works with the best doctors, specialists and researchers, and offers webinars with doctors updating members on the latest information available. I wish I could support this organization with more than my small donations, because they have helped me so much.

SAA has been a great resource for me since finding out about their organization in early 2007.
I suffer from AS and up until I found them, most people didn't know or care about AS, including many people in the health profession. For years I was misdiagnosed until I finally went and saw a rheumatologist in 1995 and got confirmation from the Mayo clinic that I had AS. Back then, the treatments were not nearly as advanced until several of these new biologic injections became available. I started on Enbrel in early 2007 and the relief was immediate but the cost was very high even with my health insurance and deductible. It was SAA that unlocked the opportunity to be able to purchase on a copay program, which drastically reduced my out of pocket cost. Since that time, I had to change medications and I've been on Humira now for 8 years. These drugs were life changing for me and I only have mild AS, unlike many others who have a chronic case of it. The SAA newsletters and emails have helped to provide me much information on AS that offer me support in my continual battle with the disease. I encourage anyone dealing with AS or many of the other inflammatory disorders that are in the same family to utilize SAA as their resource in dealing with these diseases. Thank you SAA!

I am 57 years old, I've had AS for more than 20 years. Please help this cause. Many suffering people go undiagnosed for years just like I did. I still suffer with disabling pain but someday they will find a cure. Now, I have HOPE !!!

My mother has AS, and SAA has been a fantastic resource for us these past few years. There's so little out there for patients and caregivers, but this resource is great quality and I would recommend it to anyone affected by AS. Thank you SAA!

I have RA and SpA , this organization has helped so much.When I was first diagnosed, I knew so little about the diseases, thanks to SAA, I am better informed and therefore better able to cope.

SAA is a bunch of whiners who listen to the medical profession's prescriptive bs, while ignoring the causes of AS, and the only natural solution... elimination of starch in the diet.

When my son was diagnosed with AS I wanted to get all the information I could. The web site is a great source of useful information; and it has links to support groups, doctors, written material, and seminars. As a parent, and advocate I'm grateful for all the knowledge I've gained. And I know any donations made go where they can do the most good.

This is a website I go to frequently as we navigate my son's treatment.

I absolutely love the SAA. They have been such an amazing resource and source of support for my family and I during this very challenging adjustment to life with Ankylosing Spondylitis.

I have received a lot of helpful information and updates at the disease. I was on two online support groups until it became too difficult listening to people argue, watching members die, and hearing that members committed suicide. This is a way for me to receive updates without all of that.

SAA is at the forefront of research and information for Spondyloarthritis and its' family of diseases. With as little as 2 million dollars a year, they are succeeding in their quests. This, however is a very little known autoimmune disease and needs a bigger spotlight so more funding can be donated by the general public. This disease effects more people than Lou Gehrig's disease, MS, and Cystic Fibrosis combined, but is very unknown it seems. SAA calls every single person that makes a donation to the association. Not just a typed form letter, but a phone call from a real person that truly cares about what he/she is doing. I am a proud supporter of SAA and a patient with Ankylosing Spondylitis.

When I was diagnosed with ankylosing spondylitis I knew nothing about what I was facing. The sources that I found on th Internet was more scary than helpful, some with bad information. SAA filled the information gap left by my doctor for me with scientifically grounded info, videos, and newsletters. My favorite part was their collection of stories. Whenever I feel alone in this fight, I go back to the stories and know that I have a team behind me.

When my husband was diagnosed we found great resources on SAA's website. It was nice to feel part of a community instead of all alone. We have donated for the last 4 years and feel the money is well spent. They honestly care and do everything they can. I could hardly believe it when we had a personal thank you on out answering machine for making a donation. Great organization with great people.

They have given me valuable information about my illness.

When I was diagnosed with Spondylitis, the Spondylitis Association of America was my go-to spot to learn more. I refer to their website frequently, subscribe to their Spondylitis Plus magazine, and participate in their online support forums. Their staff is always friendly and helpful. They support research and have made a real difference in people's lives.

I was diagnosed with Ankylosing Spondylitis 3 1/2 years ago, and, despite having a great doctor, felt like I was in a raft in the middle of the ocean with no rescue in sight. Then, the SAA formed a local support group, and I started attending monthly gatherings, and eventually joined the organization and became a monthly donor. The support group, seminars and educational material provided by SAA has been a lifeline as I deal with the day-to-day reality of living with this chronic illness. It is amazing how much this organization does to educate the medical community and the public about Ankylosing Spondylitis and related diseases, and also fund research to help those with the illnesses have a better life. I can't recommend it highly enough.

I am biased - I have been a contributing member of SAA for 20 years and joined the staff 1 1/2 yrs ago. I have an MBA in non-profit management and have been honored to work at many amazing non-profits over the last 25 years. So, from an inside, outside and professional viewpoint, SAA is a truly wonderful organization. EVERYONE on the staff is professional, dedicated and knowledgeable. SAA stays focused on the mission with every decision - to be a leader in the quest to cure AS and related diseases and to empower those affected to live life to the fullest. 2.7 million people live with SpA. Yet it is often an invisible and lonely disease that does not get the attention & funding that other issues get. With a relatively small budget -all from donations- the staff and volunteers produce high quality programs and continuous support. SAA is behind the scenes everyday pushing for advancement in the search for cure and care for people living with SpA. In this age, with so much mis-information circulating, SAA is a beacon of correct information. It's such a blessing to be a part of this team. When people are diagnosed, it is the SAA that provides an opportunity to meet others with AS. It was & continues to be the SAA that provides the information needed to manage the disease.

When I was diagnosed with ankylosing spondylitis in 1990, I felt totally alone. My brother also had it, but he lived in another state. I met a fellow AS sufferer at an Arthritis Foundation aquatics center. She gave me old copies of the Spondylitis Association's newsletter. I will be forever grateful to her. I joined the association that year and have been a member ever since. I have attended SAA educational forums in two states, attended support group meetings, participated in the online message board, and promoted SAA at health fairs in my state where I also represent the Arthritis Foundation. One of the most important ways the SAA has helped me was by printing an article in its newsletter by a rheumatologist in my home state. When I moved back home, I looked up that rheumatologist's office, and even though he had retired, I was able to find my new rheumatologist at his old office. That doctor is still my rheumatologist 13 years later. I know that I can count on the SAA to put the money it receives to good use: investing in research, sponsoring educational forums, and providing the information AS patients and their families need to know.

I suffer from AS and benefit greatly from the work of SAA. I also donate because of how effective they are.

When I first started becoming symptomatic, it was very difficult the the medical community to diagnose me. I went to several different doctors, then to specialists. Finally, with a preliminary diagnosis from the Mayo Clinic, then confirmation from UCSF, I had some homework to do. There was only one place that clearly explained to me what I was dealing with and provided needed resources, knowledge and connections with others who suffer this debilitating disease. That would be the Spondylitis Association of America. Not only was I able to educated myself about this disease, but also was able to direct members of the medical community to the Spondylitis Association of America. It's wonderful to know that this resource is out there for me and others. I'd be lost without it. I just wish the public at large were more aware. Explaining it is sometimes a bit overwhelming.

When my doctor told me that I probably has AS, I was mystified as to what that meant. All the information that I initially found told me that I would eventually turn into a bent over, stiff-spined, disabled victim. I am so grateful to SAA for all the current, thorough information that they offer. From their educational articles I learned that this didn't have to be my fate, and from their discussion forums, I got my questions answered by others with the same experiences that I had. The support and valuable conversations I have had there have changed my life, and now, 10 years later I am able to offer words of support to others. SAA is the best!

I love receiving information that will benefit me in my area. I enjoy finding others in my area that are like me and places my family can join me for support and learn more about my condition. I also love finding information about new medicines that I can review with my rhumeytologist.

Since like many with various forms of Spondylarthritis who are served by this mostly volunteer group, I got very sick years BEFORE I met the diagnostic criteria of Dr.s. So their information was hugely helpful when Dr.s used long words and talked to me about blood tests & XRays. Over the years I've been to several seminars this organization has run for patients to share information, to encourage the right kind of exercise, to answer questions. They've also been active in getting the word to first responders in our various communities how we should be intubated without damaging our vulnerable stiff necks. With only a few paid employees, this largely volunteer organization has greatly served a large group of patients and their families.

My AS journey started sixty years ago with chronic hip-back-neck pain with frequent flare-ups. For forty years the DX and treatment plan was whatever was popular in the rheumatological community at that point in time. AS was never mentioned in that forty years, and I received little or no relief. Twenty years ago I took charge, and started reading which lead me to SAA which quickly became my primary source for information.

My personal DX was AS, and my treatment plan revolved around a healthy diet, daily exercise and a positive attitude. Fifteen years ago my DX was confirmed by two rheumatologists, but my treatment plan was rejected by my doctors. To date I have never taken a RX drug for my AS and, I continue to eat a healthy diet, exercise daily and my AS mantra is "pain is certain, suffering is optional."

I am grateful to SAA with special kudos to their staff and volunteers. SAA is still my go-to source for AS information, and I wish them continued growth and success in meeting their mission statement and goals. What SAA does is making a positive difference in the lives of many people with physical and emotional pain. What better calling in life could anyone ask for?

Namaste, Russ McDonald

I have spondyloarthritis and Ehler's Danlos(EDS) Hypermobility. I was diagnosed with Ehler's Danlos in January 2013 (after years of pain) and spondyloarthritis (for sure Axial spondyloarthritis (AxSpA)) with possible ankylosing spondylitis June 2013. While I have been getting worse for a number of years, this past year progression has been more rapid. I am grateful to find a rheumatologist that does listened and realized EDS/hypermobility does not explain all my symptoms and to make matters worse, I do not know much family history (and cannot obtain). Once diagnosed with spondyloarthritis, I had never heard of it an was directed by rhuematologist to rheumatology.org to for more information. This gave me little information, and I was thrilled to find SPONDYLITIS ASSOCIATION OF AMERICA, it provided so much information! Once I showed my husband he said join, they are helpful. This is significant considering our current financial issues (I have been out due to pain, & orthostatic intolerance since June, my husband is looking for work but laid off 10 months ago. We try to conserve money as much as possible as we are broaching bankruptcy, foreclosure, & looking medical insurance; yet both agree information obtained from SPONDYLITIS ASSOCIATION OF AMERICA: made cost of joining invaluable. Thank you for helping me understand spondylitis & not feeling alone.

The Spondylitis Association of America is the ONLY nonprofit organization that is dedicated to helping people diagnosed with Ankylosing Spondylitis. They not only help patients, but they work with the doctors that are researching this disease and treating patients. They advocate for health care knowledge by providing informative materials, magazines, educational events available in person or as a webinar. They strive to reach out to people in as many ways as possible.

One thing that I find particularly impressive is the personal contact. Every year when I make my annual donation, I get a thank you letter personally signed by the Executive Director Laurie Savage. I also get a phone call to thank me. Those personal touches mean a lot to me.

This is the organization to go to whether you are newly diagnosed or have been living with AS for decades.

I was diagnosed with AS 23 years ago. This organization has been a lifeline to inform and validate me. Our family has taken part in the research. This research is groundbreaking. Over the years it has helped me to bring information to doctors I am dealing with. It has explained to me why I have symptoms that would seem to be totally unrelated to AS.
Early on there was a conference in Minneapolis and it was so great to see others there and to get information. I know that these conferences continue to be presented around the country. This small but powerful organization has been a godsend to me.

I absolutely LOVE the SAA. When I was first diagnosed I didn't know what A.S. was and had no one to talk to. I immediately found them on line, received support and signed up to help in any way I can.
I still check the forum page and learn new things each day about A.S. and related diseases.
They are ALWAYS willing to answer calls and emails too.
YAY!!!

I'm newly diagnosed, and the Spondylitis Association of America, through their educational materials, has helped me understand this condition so much. It has taken the fear out of my condition just by helping me to understand what is happening to my body. I could never thank them enough!

I was diagnosed with AS at 26 and didn't think much of it as I was placed on a high dose of anti-inflammatory meds. But at age 45 when Crohn's disease prevented me from taking NSAIDS a wall of pain knocked me down........an unbelievable disabling condition! Living in Nebraska I felt isolated and alone in my condition. Spondylitis Association of America helped to educate me, my friends, and some of my care providers. I could not be more appreciative of this group, and hope awareness of this disabling condition continues to grow through them and their work..........................

As a longtime employee of the Spondylitis Association, I may be biased in my opinion but I hear everyday the firsthand outpouring of gratitude from the people who turn to SAA for information, resources, support, and sometimes just someone to listen who understands what they're going through. Knowing that the organization is making a difference is a powerful motivator and all of us here are honored to do our part for the spondylitis community.

W H Y !... charities must stop funding the historical failure of animal research (youtube.com/ms4mulla1). B I L L I O N S of dollars every year prove the failure of animal research. a l s o, the TRUTH about polio by albert sabin, m.d., no LIE can live forever!... animal research has never been validated.

Both my daughter and I have Ankylosing Spondylitis. They have been a fund of accurate information and support. I do not hesitate to recommend them and my wife and I support their ongoing work

When I was diagnosed in 2007 I had no idea what Ankylosing Spondylitis was. I had never heard of it and was scared to say the least. I started searching for information and thankfully I found SAA. They provided up to date info which I couldn't find anywhere else. I also found support from people who understand how I was feeling. I've read everything they've put out since and will continue to support SAA. Thank you for all you do!

SAA has been wonderful in all aspects of my having AS. The organization mailed me a FREE ice-chest with ice packs inside for travel purposes, a FREE container to dispose of my injection (Enbrel) syringes, many FREE pamphlets and brochures. SAA also assisted me in obtaining financial relief for the cost of Enbrel. I have supported SAA with financial contributions, albeit small donations at times as my finances are tight. The toll-free phone assistance is PRICELESS as there is ALWAYS someone there to answer questions and have a person there to help me through emotionally rough times. SAA is a God-send!!!!

As one who has Ankylosing Spondylitis, I have benefited greatly from information obtained from SAA's web site and other publications. They provide helpful practical advice for people dealing with this family of diseases, which affect a surprisingly high number of people.

Not very many people know about Spondylitis. SAA is a remarkable organization because they step in and effectively fill a void. They get much needed information out to their community, they also campaign on behalf of patients. They raise awareness, and bring peace of mind to patients. I've always trusted the information I've received from SAA. I've also enjoyed the events they organize. They have well exceeded my expectations.

My daughter has been diagnosed with spondyloarthritis for about one year now. The support that we have received from SAA has helped us feel not so alone. I have a different autoimmune disease and there is no national support group for my specific disease. The SAA, which deals specifically with the cluster of spondylitis disorders, has been a great and thorough resource of disease information, but more importantly for my daughter, the SAA has provided the forum and opportunity to network with others, including health care providers to get her the best comprehensive care.

SAA has been an absolute godsend. I suffered with symptoms since the age of 14 but was not diagnosed until the age of 42. SAA keeps me on the cutting edge of treatment and brings a whole community to my door. It wasn't that long ago that people thought AS was a death sentence. SAA makes me proud and gives me encouragement.

After going to a chiropractor for many years, and my pain, and stiffness getting worse, I finally went to a doctor who diagnosed my symptoms as ankylosing spondylitis in 1992. Because my condition went untreated for many years, and even worse, because I went to a chiropractor who had no idea what he was doing, nor ever heard of my condition, for over 10 years I had a very difficult time managing my illness. Thank God, now, after many difficult years, I am better able to manage my condition. I credit, in large part, SAA for helping me manage, and deal with my disease. Their information, and helpful suggestions, have been a vital part of my care. I am fully comitted to this organization, and greatly encourage everyone to support this vital cause, and hopefully, someday, with their help, this dreadful illness will be curred, and not hurt anyone else. In the meantime, this wonderful organization adds tremendous knowledge to the world, who before their vital work, had vey little information about this illness.

Since my diagnosis in 1997 I have learned so much about AS and it's treatments, symptoms, etc. It has been a tremendous resource to me and has introduced me to many others in the same situation. I will be a life long supporter.

I am 70 years old, and had my first AS symptoms at age 17. I was not correctly diagnosed until the age of 30. When I discovered SAA years later, it became a valuable resource. It provided up-to-date information, opportunities to link to others with AS, and opportunities to get involved in the quest for better treatments and hopefully a future cure. I am most excited about their support for research which gives me a chance to volunteer as a research subject. Major advancements in understanding AS are being made. New and improved medication options are available. If these options had been available earlier, I would not have to look at the ground when I walk because of my almost totally fused neck and spine. These options, however, have been vital in helping me continuine to lead an active and wonderful life with much less pain than I had 20 years ago. My use of pain medications is almost nil. It is the least in the past 50 years. I hope this trend continues. With the wonderful work our association, SAA, is doing , I am hopeful for a better future for all AS- afflicted individuals. Marvin Veselka, Austin, Texas

I have A.S. and SAA has been a blessing. They have so much to offer and great information for anyone with this disease and even for the ones that help us daily with our issues. If not for our loved ones having access to this information I feel that we would be very misunderstood and relationships would suffer greater tragedies. This Organization has given me hope when I had none and the information I needed to get through another day. Without the Lord and this site I would be VERY VERY lost with my disease. Thank you SAA!!!!!!!!!!!!!!!!!!!

I have two children with spondylitis and the Spondylitis Association of America is invaluable in giving me information on how to deal with their disease and ways to help them have a more normal life. They have exercises to help them keep limber, they give me the the latest research information, and keep up updated on what is going on!

My indentical twin sister has AS, and I'm very glad that she has an organization such as this to turn to. It is a relatively unknown diease that most people don't even know exists. This organization not only provides her with info and advice, but allows her friends and family the benefit of info, as well.

My husband was diagnosed with AS in 1980. At that time there was no organization specifically for AS patients. Sometime after his diagnosis his doctor, Dr. Rodney Bluestone's office invited my husband and myself to a meeting with other AS patients, families, friends, spouses, etc., in Beverly Hills. Yes, my husband (now deceased) and myself were at the very first meeting with a group that has become the Spondylitis Association of America. We were among the first 35 people to join the ASA as SAA was first known.

It was my desire to have ASA/SAA provide support to AS patients and families more on a social level. Thank goodness Jane Brukel had the wisdom and vision to bring SAA through to the organization it has become.

Jane saw SAA as a vehicle to initiate and promote research for the cause and cure of AS. I did not have vision and did not believe this was possible. Again, thank goodness Jane did. So much of the research that has been done over the past 20 - 25 years has been because of Jane's vision and the very fact that SAA was an organization. There was a time when the Rhumetologists were having a convention and one researcher developed a rat that had AS! The researcher developed the rat because of SAA! Imagine that, prior to his develpment of the rat there was no animal, save man that had AS. With his development of the rat, the medical and research community had a lab animal with which to study AS.

I cannot tell you how I came to hate trying to define the "MIssion Statement," not understanding what it would do for the organization. But even though my vision for the organization differed from Jane's my husband and I served on the Board as directors for many years, and I served as VP of the Los Angeles Chapter when it seemed as though having chapters through out the US would be the direction to take ASA/SAA.

We tried many things in the early days, but mostly we tried to help each other, to educate doctors and the general public about AS.

As it turned out all those hours we put in, and meetings and seminars that we attended all helped SAA become the organization it is today. A wonderful source of information for patients, a driving force for research, a forum for patients, a wealth of knowledge to share with patients, family and friends.

Having seen the organization from day one, knowing the struggles, and sacrifices of all involved, I am proud to say, I was there and stood up and was counted in the fight.

I cannot think of a more deserving organization that SAA for this recognition.

Thank you for allowing me to share my story and voice my opnion.

My now deceased father had AS and now my identical twin daughters have AS. I have found SAA an invaluable source of information and inspiration, both for understanding the disease and for learning how my daughters can live with it. Many thanks to SAA for being there for me and for my family!

The SAA provides valuable research and drives awareness of a terrible disease that afflicts millions of North Americans every year.

15 years ago my daughter was diagnosed with AS. We became members of the AS Association, went to many of their meetings, and became friends with some of the stuff and patients. We are very happy to have such a strong support system, since sometimes one can feel terribly alone and depressed battling this kind of disease. We support the Spondylitis Association whole-heartedly.

SAA gave me so much support and resources when none could. Not just for me but for my loved ones too. They give me a lot to look forward to and connected me with other like me, they also had a hand in providing me with great care with the top doctors in the field. They were there when I needed them most and they continue to be there for all that are suffering with this disease.

I didn't know much about this disease when I was first diagnosed and it scared the heck out of me, and like most with an illness I sought answers. I eventually became unable to work, therefor loosing the only resources I knew of at the time making it that much more difficult in dealing with this disease. But just when I was starting to give up I found SAA or I should say it found me, and they gave me hope, then they gave me support, then they gave me the resources to cope.

I can honestly say they are the best nonprofit around, their dedication never ceases to amaze me, and their compassion is unbeatable, they truly care and will take care.

SAA provides great educational sessions free of charge to persons affectd by SAA and offerings are planned in different areas of the country so that many can take part in those sessions. The learning from speakers and other attendees has been invaluable. I've developed friendships and contacts from attending sessions that have continued for several years and would not have been possible without SAA.

As a disabled Veteran who is partially crippled and always having to deal with pain that was mis-diagnosed for over 20 years. . I myself who was finally diagnosed by one of the best MD's at age 39. I had to close a business which i loved but could no longer endure the pain with the Arthritis without some real hard drugs from the Doctor. Well, i got some relief but the hard drugs were destroying my life. I went through a divorce after almost 10 years of marriage. I lost everything in the courts and I was at my lowest point i think in my life at the time. My sister (Lori) who works with the Cancer Society herself became a victim last year. She is doing well now after the chemo and is considered a survivor. In 1999, she had heard about this small group for Anklyosing Spondylitis and paid for my first year as a small gift to me for my Birthday. I think it was one of the best Birthday presents i have ever received. I have gotten to know others on the internet and even submitted my story of years (16) of mis-diagnoses from Doctors who just didn't know any better. Becoming a member with SAA it helped me to start to understand what was happening to my body. I found some friends here that understood what i have been up against for most of my adult life. I consider myself to be a life long member and consider this a great way to help others who have been through the tough times as well. Now i understand to feel better that i have to deal with the pain and depression that all of us Spondy's endure everyday of our lives. Most spondy's will tell you It keeps most of us single and our friends at a distance so this website is something that helps fill the gap especially on some of our most painful days when an understanding friend just to talk with when you are hurting can make all the difference in the world. Thank You SAA and keep up the great work keeping all of us Spondy's up to date.

I was diagnosed with AS about 10 years ago, when I was 29 years old. Soon after I found SAA online and became a member. I can't tell you how much their website and quarterly magazine have helped me over these past 10 years, not only with great articles, forums, and exercises, but SAA has given me real hope that one day there will be a cure for AS. It always lifts my spirits when I get their latest quarterly in the mail. They cover such a wide range of topics in their magazine, and it always leaves me feeling hopeful. I always look forward to reading it when it arrives in my mailbox, and I always learn something new and they are always working towards a cure. SAA also has events where you can meet other people with AS. I think anyone with AS or even someone with a friend or loved one who has AS can benefit from this incredible organization.

I've been pleased with the materials and responsiveness of SAA.

SAA has webinars giving me the latest information on research into spondylitis.

This disease has impacted my life for 40 years. It has only been about 10 years since I was diagnosted with Spondylitis. At that point I needed help learning about the impact this disease was going to have for the future. This is when SAA helped me with education, a local support group and generally filling in the blanks from the previous many years. This is a truely great nonprofit that continues to educate the community at large, medical personel, and emergency responders while pushing research in many areas of the disease.

The Spondylitis Association of America has been a great help to me in providing information pertaining to treatment options, as well as lifestyle and excercise tips. Because of the rarity of ankylosing spondylitis, and difficulty in diagnosis, many patients are often misdiagnosed for years, especially females. For that reason I am grateful for an organization that actively educates both physicians and patients specifically about the disease. The organization is also dedicated to research and public education as well. I give this organization 5 stars!!

SAA is the only organization dedicated to Spondylitis. They do a great job with research and providing information that's helpful.

It took 14 years to find out why I was in so much pain. That is because many doctors still believe that women don't get this disease. I was very fortunate to find the Spondylitis Association right after my diagnosis. They responded quickly with accurate information, exercises to try, and an awesome newsletter. With the help of a good doctor and the Spondylitis Association my health improved. I now pass everything on to my daughter who has also been diagnosed with Spondylitis.

They provide extensive, and very helpful, information on treatments and alternatives. SAA also publishes stories showing how others handle the disease and provides group meetings which are quite useful.

The SAA represents the voice of individuals with A.S. in the United States. Their website provides the most accurate source of medical information on the internet. Webinars and Seminars allow the membership to both learn more about their disease and ask pertinent questions related to their personal needs. Support groups have been established in many areas of our country. They provide much needed interaction between individuals and families dealing with spondyloarthritis issues.

As someone living with Spondylitis having one site that I can get information on doctors, research, trials, treatments, and lifestyle hints is invaluable. For years I had been told that "women don't get this disease" despite the family history in two generations of men I did have it and research at Cedars helped prove it and got me the care I needed from my Rhumatologist. I continue to volunteer for trials because it is necessary for me and for others living with the disease to always have hope for the future.

When I was diagnosed with Spondylitis I had never heard of it and had know idea where to find reliable information.

That is why I was glad that my search led me to SSA. Their website has so much information in one place, so I don't have to spend pressure hours searching it down. They also keep me apprised weekly of new information on the disease, as well as send updates on new studies that have been started or old studies that have made progress.

They are very deserving of all the support of America, because you never know when you or someone you love will be diagnosed.

If you have Anklyosing Spondylitis (AS), there is no better organization to go to. I have attended webinars, seminars, forums, and read countless articles - all very beneficial in understanding AS.

There is not a lot of information out there about Ankylosing Spondylitis and what is on the internet isn't always accurate, so it is great to have a respected and trustworthy source of information. The stories, articles, and research data on the site and quarterly mailing are very helpful.

Exceptional charity, very accountable from top to bottom and as a donor and carrier of the disease I find them a great resource to help me and my family. They are driving research that may one day help to find a cure.

Based on several years of experience I have nothing but a vote of the highest confidence.

With 2.4 million people suffering from spondylitis, we NEED a place like SAA that can help spread knowledge and awareness of this terrible disease. I AM one in those 2.4 million and am so thankful to have found a place to gain more knowledge of this "not so known" disease and connect with those who share in "my pain". SAA is a great organization that I'm proud to be a part of. I thank them for all they have done and continue to do!

I was diagnosed with AS 20 years ago. I have been a member of SAA for about 10 years. I have been a volunteer leader of a support group in the past, have attended regional conferences and read the newsletter religiously. I have been amazed at the progress and change this organization has been able to affect. They are a wondeful resource for patients, do an amazing job educating the public, the government and physiscians, and the staff is the most caring and accessible group I have been involved with. I believe in what they do and how they do it!

Thanks to the SAA, I and thousands of others have been able to learn more about our disease. In turn, we are better equipped to raise awareness of the disease to the general public, and also help our familes cope with this lifelong condition that can so greatly impact our lives. The Spondylitis Association of America has been my ONLY trusted source of continuous, accurate AS information and education. In addition, the SAA has been extremely important in my efforts as a support person for others with AS, as I use the SAA as a professional source that they can count on for accurate and tmely information about the disease. I have heard other AS clients say that feeling isolated s one of the most difficult issues they face when newly diagnosed. I agee with this. Had it not been for the presence of the SAA, I would have continued to feel alone and isolated with this disease. I've been an SAA member now for many years, and plan to be a member as long as I draw breath. The Spondylitis Association of America is truly worthy of being known as a great non-profit.

My son was diagnosed with Ankylosing Spondylitis. In order to learn more about his condition, I did a an internet search and Spondylitis.org came up. It is the most comprehensive website offering everything from information, to support, resources, up-to-date studies, and directories. However, the message boards are most beneficial in my case. Connecting with people that are experiencing the same challenges or successes has been a godsend.

In addition, the Spondylitis.org newsletter, e-mail updates, and pamphlets are also very helpful.

I think as more awareness is brought to the autoimmune diseases in the Spondyloarthropathy category, Spondyltitis.org will serve as the go-to website for people that are searching for answers and for help.

My doctor recommended SAA when I was first diagnosed. It has been my saving grace when I needed answers. This organization is there for information, support, and is incredibly important for everyone. On the days when you think this disease will beat you, all you have to do is hop on the message boards and you realize that you are not alone and everyone has bad days. Tomorrow might be a good day. Thank you SAA.

I was diagnosed with AS about 6 years ago. I scoured the web for information and came across SAA. The SAA has been an invaluable resource providing information about medications, exercise, and living with AS. Through the SAA I have learned about genetic research and other longitudinal studies into the disease, and also found out about how I can participate in the research. They also host seminars across the country that provide an opportunity to hear presentations from rheumatologists and therapists, and learn about the latest research and treatments. The SAA is there to support patients with AS and their families, and to spread knowledge about this disease to doctors to help with earlier diagnoses. It is a very worthwhile cause.

Five years ago I was diagnosed with Ankylosing Spondylitis and within a month joined SAA. I needed information, from definitions of "new" termonology, names of the current medictions available, the enormous research facts accurately presented, and I needed everything fast. They are there to help.

The SAA website quickly became my primary source for AS. As a volunteer for the charity for the last four years my respect and appreciation for SAA continues to grow. The educational materials available to the members (from podcasts, web presentations, free seminars, free support group meetings, and countless informative articles), allows us to empower ourselves. Its' richly dynamic and informative website allows me and countless other AS sufferers to be proactive in our lives. There is not any charity for AS that provides as much as SAA does to the members, volunteers and public. They stay true to their mission, they respect those diagnosed with Spondylitis and become a real friend by helping patients, physicians, caregivers and family members.

The Spondylitis Associaion of America is the best charity I have ever been privileged to know of and be associated with.

I've been a member of the SAA since the late 1980's. As a volunteer, I have known and worked side by side with many of the fine folks there, and have to say the Spondylitis Association is, hands down, the best and most trusted source of accurate information about Spondylitis and its related diseases that you can find anywhere online. Their support groups are a Godsend for so many people struggling with this disease. Their free seminars help people with AS learn how to better cope with this often devastating disease. And if that weren't enough, the SAA has been involved in every major advance in Spondylitis research over the last twenty-five years. The question is; Why would anyone with Ankylosing Spondylitis or one of its related diseases NOT become a member of this remarkable organization?

So much information, such great people to help.

Even my Dr. recommends SAA!

The Spondylitis Association of America was the first association I found out about when I was looking for clear and trustable information about AS. I was diagnosed im 2008, and here in Brazil we don't have such an organized association that fight for AS patients rights. I had the oportunitty to speak with some people from the staff, and they were absolutely adorable with me! Thank you so much for all the information and help!

SAA rocks! Imagine this: you've got this new diagnosis with a name you can barely pronounce. You go online (natch) and freak yourself out learning all about this disease. Then, somehow, you find your way to SAA. You get information. Real information, as in facts. This is priceless. You get connected. You find out you are not alone. You find a doctor through SAA. This is beyond priceless. You even get something else: hope. I've gotten support, resources, even a mentor through SAA. I can't say enough good things about it, so I'll just say this: thanks, SAA. Thank you so much!

I was diagnosed with AS at the age of 18, after countless incorrect diagnoses. Over the years, the SAA has been a great source of information, treatment options, resources and support. It's incredibly comforting to know that there's an organization devoted to spreading awareness of a disease that many misunderstand or overlook. The treatment options and resources they provide are invaluable, fund-raising opportunities are endless, and their work is tire-less. Thank you for making every AS patient feel less alone and for all your incredibly hard work!

This organization has been instrumental in bringing the information of a formerly misunderstood disease to health care providers and the general public. From the time I first found SAA on line to the present, I have witnessed an increased understanding and more knowledge of AS from all my health care providers.

The Spondylitis Association of America has helped me in more ways than can ever be expressed. SAA has brought me to a community of my peers. They helped to give me the courage to face AS head on. The information and resources they provide help to educate not only myself on the disease but so many others. They are a voice of comfort. The remarkable work they do for AS is never ending. Thank you SAA for all of the support you provide! You have truly helped me in my AS journey!

The Spondylitis Association of America has been a true blessing in my life and the lives of those who love me. I was diagnosed at age 15, and they've been there from the start - offering tremendous personal support, spreading awareness, providing crucial information and new, fundraising, and working tirelessly toward a cure! Their staff is incredibly kind and generous; they've made me feel like part of the family. Thank you for everything that you do!

My son was diagnosed with Spondyllitis when he was 11 years old after eight years of trying to figure out what was wrong with him. The information and support of this organization has been very helpful in helping my family understand this disease and help him discover ways to deal with this devastating chronic disease.

I am recently diagnosed with AS, however, I've been in pain for over 10 years. Wanting to find more information on AS, I found Spondylitis Association of America and found lots of information on AS. It really helps knowing I am not alone fighting this disease.

I have gained so much knowledge about my condition from the Spondylitis Association of America. I appreciate all the information and the support available. Because the disease is fairly rare, there aren't a lot of library books or websites available. I am so thankful to be able to come to their website, ask questions and get answers right away.

I'm a newly diagnosed AS patient, however I've been suffering for 20 years in what started out mild but quickly ramped up. (knowing what I've been through I would say I've got a pretty big pain threshold). I ended up with a spine that is fusing and my pelvis is already fused. I'm having a hard time accepting my diagnosis and have been putting off starting Enbrel due to side effect concerns.

This website is helping me make these key connections and provides me with information so I can make an educated choice on how to manage this disease.

The Spondylitis Association of America is the premiere non-profit organization working to improve the quality of life of patients with Ankylosing Spondylitis and related diseases. They support disease specific research projects, work to educate medical professionals, and provide unequaled support to the patient population in the form of informative literature, patient education symposiums, and online tools.

As an AS patient, I have turned to the SAA time and time again for support and advice as I come to grips with my disease. As a research scientist, I appreciate and understand that this organization is the driving force behind several ongoing projects to identify better therapies and diagnositic tools.

My name is Jennifer Visscher and I have a disease called Ankylosing Spondylitis. The Spondylitis Association of America was the first place I turned when I received my diagnosis many years ago. The SAA is a resource for information, community forums, and research for a cure. The people at the SAA are dedicated and passionate about spreading awareness, hope, and the message that we can all "stand tall" in finding a way through our difficult chronic illness.
I was so moved to help the SAA with the work that they do that I started volunteering my time speaking up and speaking out about Ankylosing Spondylitis and they have embraced me and my efforts. For that I am extremely grateful. This is an organization to be proud to be associated with doing great work for their constituents every day.
Sincerely,
Jennifer Visscher
My Blog - http://thefeedingedge.com

This organization has saved my life. They are the experts in the field of Ankylosing Spondylitis, and they are warriors in the fight against this horrible disease. The SAA is on a mission, to educate, to support, to raise awareness and to find a cure for AS!