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Spondylitis Association Of America

Rating: 4.85 stars   92 reviews 19,166

Nonprofit Issues:

Health

Address:

PO Box 5872 Sherman Oaks CA 91413 USA

Mission:

Our mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For over 25 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.

Programs:

SAA provides public and patient education programs to facilitate early diagnosis, promote effective treatment, and encourage self-help care for optimal quality of life. 

SAA’s website, www.spondylitis.org, is updated regularly with the latest news and information about spondylitis treatment, medications and research. In addition, information about SAA events and seminars, supportive programs and the online Message Board community can also be found here.

SAA hosts free educational seminars in different metropolitan areas throughout the United States each year. All seminars include an experienced rheumatologist who provides an overview of spondyloarthritis along with current medications and other available treatments. Secondary speakers complement the program with presentations on other topics of interest including exercise, physical therapy, occupational therapy, the emotional impact of living with spondylitis, etc. These seminars provide an opportunity for attendees to ask questions and meet other people from the area impacted by spondylitis.

SAA offers free online seminar events, referred to as webinars. These webinars allow people to learn about specific spondylitis-related topics in the comfort of their home without having to travel. SAA hosts approximately 3 webinars each year; the live event is free and open to everyone in the spondylitis community. 

SAA provides a library of audio interviews (podcasts) to SAA members, which include questions posed to spondylitis experts to provide information on a wide range of topics including spondylitis symptoms, medications, treatment, complications, etc. Members are also asked to submit their own questions to be answered during future podcasts.

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More Info

(800) 777 - 8189
http://www.spondylitis.org

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Reviews for Spondylitis Association Of America

Rating: 5 stars  

I am 57 years old, I've had AS for more than 20 years. Please help this cause. Many suffering people go undiagnosed for years just like I did. I still suffer with disabling pain but someday they will find a cure. Now, I have HOPE !!!

 
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Role: General Member of the Public
Rating: 5 stars  

My mother has AS, and SAA has been a fantastic resource for us these past few years. There's so little out there for patients and caregivers, but this resource is great quality and I would recommend it to anyone affected by AS. Thank you SAA!

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I have RA and SpA , this organization has helped so much.When I was first diagnosed, I knew so little about the diseases, thanks to SAA, I am better informed and therefore better able to cope.

 
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Role: General Member of the Public
Rating: 1 stars  

SAA is a bunch of whiners who listen to the medical profession's prescriptive bs, while ignoring the causes of AS, and the only natural solution... elimination of starch in the diet.

 
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Rating: 5 stars  

1 person found this review helpful

When my son was diagnosed with AS I wanted to get all the information I could. The web site is a great source of useful information; and it has links to support groups, doctors, written material, and seminars. As a parent, and advocate I'm grateful for all the knowledge I've gained. And I know any donations made go where they can do the most good.

 
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Rating: 5 stars  

1 person found this review helpful

This is a website I go to frequently as we navigate my son's treatment.

 
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Rating: 5 stars  

1 person found this review helpful

I absolutely love the SAA. They have been such an amazing resource and source of support for my family and I during this very challenging adjustment to life with Ankylosing Spondylitis.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I have received a lot of helpful information and updates at the disease. I was on two online support groups until it became too difficult listening to people argue, watching members die, and hearing that members committed suicide. This is a way for me to receive updates without all of that.

 
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Rating: 5 stars  

1 person found this review helpful

SAA is at the forefront of research and information for Spondyloarthritis and its' family of diseases. With as little as 2 million dollars a year, they are succeeding in their quests. This, however is a very little known autoimmune disease and needs a bigger spotlight so more funding can be donated by the general public. This disease effects more people than Lou Gehrig's disease, MS, and Cystic Fibrosis combined, but is very unknown it seems. SAA calls every single person that makes a donation to the association. Not just a typed form letter, but a phone call from a real person that truly cares about what he/she is doing. I am a proud supporter of SAA and a patient with Ankylosing Spondylitis.

 
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Rating: 5 stars  

1 person found this review helpful

When I was diagnosed with ankylosing spondylitis I knew nothing about what I was facing. The sources that I found on th Internet was more scary than helpful, some with bad information. SAA filled the information gap left by my doctor for me with scientifically grounded info, videos, and newsletters. My favorite part was their collection of stories. Whenever I feel alone in this fight, I go back to the stories and know that I have a team behind me.

 
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