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Spondylitis Association of America

Rating: 4.85 stars   95 reviews 19,336

Address:

PO Box 5872 Sherman Oaks CA 91413 USA

Mission:

Our mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For over 25 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.

Programs:

SAA provides public and patient education programs to facilitate early diagnosis, promote effective treatment, and encourage self-help care for optimal quality of life. 

SAA’s website, www.spondylitis.org, is updated regularly with the latest news and information about spondylitis treatment, medications and research. In addition, information about SAA events and seminars, supportive programs and the online Message Board community can also be found here.

SAA hosts free educational seminars in different metropolitan areas throughout the United States each year. All seminars include an experienced rheumatologist who provides an overview of spondyloarthritis along with current medications and other available treatments. Secondary speakers complement the program with presentations on other topics of interest including exercise, physical therapy, occupational therapy, the emotional impact of living with spondylitis, etc. These seminars provide an opportunity for attendees to ask questions and meet other people from the area impacted by spondylitis.

SAA offers free online seminar events, referred to as webinars. These webinars allow people to learn about specific spondylitis-related topics in the comfort of their home without having to travel. SAA hosts approximately 3 webinars each year; the live event is free and open to everyone in the spondylitis community. 

SAA provides a library of audio interviews (podcasts) to SAA members, which include questions posed to spondylitis experts to provide information on a wide range of topics including spondylitis symptoms, medications, treatment, complications, etc. Members are also asked to submit their own questions to be answered during future podcasts.

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More Info

(800) 777 - 8189
http://www.spondylitis.org

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Reviews for Spondylitis Association of America

Rating: 5 stars  

I have been diagnosed AS here in Italy but wasn't given many information, especially as far as the entheropatic form is concerned.
The SAA website was a happy discovery and I decided to become a member, not only to support it but also to keep updated with the latest discoveries. I love the webinars.

 
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Rating: 5 stars  

I am so grateful to this organization. My journey with psoriatic arthritis/spondyloarthritis started 4 years ago. The Spondylitis Association website has been and still is my go-to source for information beginning with my diagnosis and continuing through various treatments. It publishes the most informative educational blogs and articles, works with the best doctors, specialists and researchers, and offers webinars with doctors updating members on the latest information available. I wish I could support this organization with more than my small donations, because they have helped me so much.

 
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Rating: 5 stars  

SAA has been a great resource for me since finding out about their organization in early 2007.
I suffer from AS and up until I found them, most people didn't know or care about AS, including many people in the health profession. For years I was misdiagnosed until I finally went and saw a rheumatologist in 1995 and got confirmation from the Mayo clinic that I had AS. Back then, the treatments were not nearly as advanced until several of these new biologic injections became available. I started on Enbrel in early 2007 and the relief was immediate but the cost was very high even with my health insurance and deductible. It was SAA that unlocked the opportunity to be able to purchase on a copay program, which drastically reduced my out of pocket cost. Since that time, I had to change medications and I've been on Humira now for 8 years. These drugs were life changing for me and I only have mild AS, unlike many others who have a chronic case of it. The SAA newsletters and emails have helped to provide me much information on AS that offer me support in my continual battle with the disease. I encourage anyone dealing with AS or many of the other inflammatory disorders that are in the same family to utilize SAA as their resource in dealing with these diseases. Thank you SAA!

 
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Rating: 5 stars  

I am 57 years old, I've had AS for more than 20 years. Please help this cause. Many suffering people go undiagnosed for years just like I did. I still suffer with disabling pain but someday they will find a cure. Now, I have HOPE !!!

 
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Role: General Member of the Public
Rating: 5 stars  

My mother has AS, and SAA has been a fantastic resource for us these past few years. There's so little out there for patients and caregivers, but this resource is great quality and I would recommend it to anyone affected by AS. Thank you SAA!

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I have RA and SpA , this organization has helped so much.When I was first diagnosed, I knew so little about the diseases, thanks to SAA, I am better informed and therefore better able to cope.

 
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Role: General Member of the Public
Rating: 1 stars  

SAA is a bunch of whiners who listen to the medical profession's prescriptive bs, while ignoring the causes of AS, and the only natural solution... elimination of starch in the diet.

 
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Rating: 5 stars  

1 person found this review helpful

When my son was diagnosed with AS I wanted to get all the information I could. The web site is a great source of useful information; and it has links to support groups, doctors, written material, and seminars. As a parent, and advocate I'm grateful for all the knowledge I've gained. And I know any donations made go where they can do the most good.

 
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Rating: 5 stars  

1 person found this review helpful

This is a website I go to frequently as we navigate my son's treatment.

 
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Rating: 5 stars  

1 person found this review helpful

I absolutely love the SAA. They have been such an amazing resource and source of support for my family and I during this very challenging adjustment to life with Ankylosing Spondylitis.

 
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