Spina Bifida Association Tri State Region

Rating: 4 stars   1 reviews

Issues: Cancer

Location: 84 Park Ave Flemington NJ 08822 USA

Mission: The Mission of the Spina Bifida Association of the Tri-State Region is to empower the lives of people with Spina Bifida and promote the prevention of Spina Bifida through advocacy, education, collaboration, public awareness, research and programs. The Spina Bifida Association of the Tri-State Region (SBATSR) has roots in New Jersey as far back as the early 1970?s. It was during these early years that parents of children with spina bifida in numerous communities throughout the state formed self-help groups in an effort to address the emotional strain and financial expense of caring for children with special needs. In 1982 the Spina Bifida Coalition was founded and in 1992 incorporated as The Spina Bifida Association of New Jersey.Based on the expressed needs and desires of the community, the Association expanded its mission in 1999 to include a larger service area and became the Spina Bifida Association of the Tri-State Region.

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Rating: 4 stars  

I started volunteering with SBRN in March of 2009 and I am still there! It's been really nice to have people to reach out to that completely understand your situation, meaning having spina bifida. You meet friends that just "get it.", which I don't feel happens too often. It's also very convenient for me to have the office right in Flemington because I can take the Link there to volunteer.

I wanted to start volunteering at SBRN because I have spina bifida and I wanted to see what,, if anything I could do for them. Turns out I have gotten a lot out of that in return. I've made friends, received support from the organization, and had the opportunity to attend many different activities, all centered around spina bifida!

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I've personally experienced the results of this organization in...

I've had the Family Support team go with me to doctor appointments, check up on how I'm doing, etc. They really take an interest in who you are, aside from the spina bifida. But if you need something, especially support, they're right there to help.

If I had to make changes to this organization, I would...

I would put the word out there more about SRBN. I know we're doing that and branching out more, but the way I even found the number for SBRN was on the Internet. I didn't really know anything about it before I called about volunteering.

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