Mission: The Spina Bifida Association of Massachusetts is dedicated to enhancing the lives of individuals in Massachusetts and surrounding New England states affected by Spina Bifida, by providing a community of support, education and advocacy.
Geographic areas served: Massachusetts, New Hampshire, Vermont, Maine and Rhode Island
Programs: The organization provides activities open to all to provide education relative to the effects of spina bifida. Activities also provide for social networking essential for coping with this desease. In addition a newsletter is published.
Tell your story here and help others understand this charity
Even though we live in Maine this organization has welcomed us with open arms. We worked to help raise money for them a few weeks ago and had a great time at the walk raising awareness and meeting other families. They are working with some families in Maine to start a regional group to help other families in Northern New England.
Provides education and support services for adults & children with spina bifida. Offers annual benefit to help pay for equipment that is not covered by insurance. Great way to meet people who also have spina bifida. Contacts greatly help assist with medical & education decision making.