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Restless Legs Syndrome Foundation Inc

Rating: 4.82 stars   34 reviews 2,049

Address:

3006 Bee Caves Road Suite D206 Austin TX 78746 USA

Mission:

Restless legs syndrome (RLS), also known as Willis-Ekbom disease (WED), is a chronic neurological disease that affects approximately 7% of the world's population. The goals of the RLS Foundation are: 1) to increase awareness; 2) to improve treatments; 3) through research, to find a cure.

Results:

RLS Foundation has funded over $1.5 million in research grants to find a cure for RLS.

Target demographics:

men, women and children struggling with restless legs syndrome

Direct beneficiaries per year:

over 4000 Foundation members

Geographic areas served:

U.S. & Canada

Programs:

educational webinars and literature to educate and increase awareness, fund research to find a cure for restless legs syndrome

2015 Top-Rated Nonprofit
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More Info

512-366-9109
http://www.rls.org

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Reviews for Restless Legs Syndrome Foundation Inc

Rating: 5 stars  

The Restless Legs Syndrome Support group in Skagit Valley, Washington has been helping people struggling with this disease since 2002. They meet three times per month, providing education, information and support for victims and their families. I am a member of the steering committee, which plans, presents and evaluates the program. We also provide year-round telephone support offered by the 5 committee members. We advertise our meetings by email to interested parties and newspapers.

 
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Rating: 5 stars  

Shortly after I retired, I started having problems sleeping. The doctor that I consulted was of no help. After suffering for several years, I was finally diagnosed with RLS by a different doctor. Unfortunately, this doctor provided me with virtually no information about the disease. All of this is common for patients with RLS. While trying to educate myself, I came across the RLS Foundation. Not only did I find the information that my doctor did not provide, but I also learned about the research that is being done, the various treatments available and the fact that I was not alone with the experiences that I was having. My treatment went well for about two years, but then the medications stopped working. My doctors were of little help, but through the information that I had gained from the Foundation, I knew that I was augmenting on the drugs that were provided. This allowed me to find a new doctor who not only knew how to treat my augmentation, but who was not intimidated by the knowledge about treatments for RLS that I had gained through the Foundation. I am now almost symptom free for the first time in almost 8 years and am able to get a normal night's sleep. None of this would be possible if not for the information provided to both patients and doctors by the RLS Foundation. This is a relatively new disease that many doctors did not learn about in med school, so getting proper care from doctors can be a challenge. But progress is being made. Research being funded by the Foundation is finding more about the causes of the disease and awareness within the medical community seems to be increasing not only from the publications generated by this research but also from Foundation participating in relevant medical conferences. Without their efforts, thousands will continue to suffer due to the ignorance of doctors of even the existence of this relatively common disease.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I am very thankful for all of the great work these people do. They give us Hope for this very ugly disease we suffer from. They have so many contacts in the research field along with the TOP RLS doctors in the USA.

Thanks!!!!

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

The RLS Foundation is a one stop shop for all information regarding RLS - background, medications, state-by-state Dr. list, expert presentations and more. They bring together RLS sufferers through social media and their support group network. It is great work to bring together people who understand what it is like to suffer with a disease that the general public has limited knowledge about. I trust that the Foundation is making strides to not only bring more awareness, but to find a cure.

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

My niece and her sister both suffer from RLS during pregnancy. Her doctor doesn't know anything about RLS and we were able to download information specifically about RLS and pregnancy. There is so much information on their website to help patients get through some very difficult symptoms.

 
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Rating: 5 stars  

1 person found this review helpful

If you suffer restless legs you think you are alone with no help and no one to understand what you are going through day after day night after night, that is until you find out that RLS is there and what a relief it is that someone is trying to bring a voice to all sufferers out there.

 
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Rating: 5 stars  

2 people found this review helpful

As a friend of a strong young lady living with this disease, I am thankful to know that the RLS Foundation is there to provide support and trustworthy information for individuals and their families/friends who are affected by this disease. A truly great organization.

 
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Rating: 5 stars  

1 person found this review helpful

RLS plagues many of the women in my family and I am grateful the Foundation provides support and guidance on treatment and coping mechanisms for those who suffer from RLS and medical professionals treating RLS.

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

The Restless Leg Syndrome Foundation provides much needed up-to-date information on this syndrome which is difficult to understand for many - even those in the health care profession. After nearly 10 years of trying to educate my mother's providers at her skilled nursing residence, the staff still don't seem to understand her symptoms or how to best treat her. I'm thankful for the on-going efforts of this valuable foundation!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2015

 
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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

Fantastic organization.Trusted source for pertinent and useful information and guidance. They provide support to patients and families through awareness and education. I love this organization

 
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