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Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Rating: 4.5 stars   2 reviews

Nonprofit Issues:

Health, Cancer

Address:

PO Box 502 99 Cherry St. Milford CT 06460 USA

Mission:

RSDSA, founded in 1984, is national not-for-profit organization whose mission is to promote greater public and professional awareness of Reflex Sympathetic Dystrophy Syndrome (RSD),also known as Complex Regional Pain Syndrome (CRPS). RSD/CRPS is a neurological syndrome characterized by severe and chronic pain. It is generally the result of an initiating trauma but the resulting pain is disproportionate to the injury. In addition to pain, skin sensitivity, abnormal color changes, temperature changes, and sweating are also common. Early diagnosis and appropriate treatment are essential to avoid disabling pain, but this syndrome is consistently under-diagnosed and under-treated. One of RSDSA?s primary goals is to educate physicians and other health care professionals and the community at large. a chronic nerve disorder that may affect more than 1.5 million Americans. RSDSA conducts the following programs: publication of RSDS Review, a quarterly newsletter, refers individuals with RSD/CRPS to support groups and treatment centers, funds RSDS-related research, provides a free, informative inquiry packet upon request,has published Clinical Practice Guidelines, developed an attractive 4-color poster to promote greater awareness (free upon request), exhibits at major medical meetings,and maintains an Internet web site, www.rsds.org.

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http://www.rsds.org

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Reviews for Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Rating: 4 stars  

I have had CRPS since 2005 and Jim and his organization have always shown that they care about people with this disease and helped me to understand more after I was finally diagnosed in 2008. First rate organization that is always willing to help with people's needs and certainly understand that in this ever changing environment, all support groups are vital.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

Mr. Jim Broatch is someone that spends his time helping and has helped me for nothing just educating me on my CENTRAL NERVOUS CONDITION CRPS TYPE II !I'VE HAD IT SINCE 1999 BUT NOT UNTIL 2002 DID I FIND THIS SITE AFTER DR. ROBERT G. SCHWARTZ TOLD ME TO LEARN ALL I COULD ABOUT IT BECAUSE EVEN DR. WEREN'T TAUGHT ABOUT IT IN MEDICAL SCHOOL UNLESS THEY WERE SPECIALIST !THE RSDSA HAS SENT INFO FOR FREE SINCE THE DAY I WAS TOLD THIS BY THIS GREAT STRAIGHTFORWARD DR AND THIS GREAT SITE!THANK YOU FOR LETTING ME REVIEW THIS SITE AND I'M ALSO A VOLUNTEER BY THE WORD OF MOUTH OF THE RSDSA AND MR. BROATCH!!ROBBYGAUDET@NAIDW.ORG

If I had to make changes to this organization, I would...

EXPAND IT ALL OVER THE GLOBE!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful?