Raynauds Association Inc
Rating: 4.93 stars 28 28 reviews 936
11 Topstone Road Redding CT 06896 USA
The Raynaud''s Association was founded to help Raynaud''s sufferers cope with day-to-day activities for maintaining or improving their quality of life. The organization is committed to: (1) Member Support Services - offering sharing, support, and education to fellow Raynaud''s sufferers. (2) Increasing Public Awareness of Raynaud''s - so more sufferers recognize the symptoms and seek treatment. (3) Helping the Medical Community Research Treatments and Potential Cures for Raynaud''s - through patient recruitment and, eventually, funding for research.
The organization is committed to:
(1) Member Support Services - offering sharing, support, and education to fellow Raynaud''s sufferers.
(2) Increasing Public Awareness of Raynaud''s - so more sufferers recognize the symptoms and seek treatment.
(3) Helping the Medical Community Research Treatments and Potential Cures for Raynaud''s - through patient recruitment and, eventually, funding for research.
2015 Awareness Campaign results by June: TV Stations have aired over 4,600 public service announcements, generating over 100 million impressions worth over $1.4 million in donated media dollars. The spots continue to generate excellent media exposure throughout the warmer season. Facebook and YouTube videos have generated over 20,000 views. Social media posts announcing the video reached nearly 85,000 followers.
Direct beneficiaries per year:
The website had more than 260,000 unique visitors in 2014 with winter traffic this past year averaging 30,000 to 50,000 monthly visits. There are also more than 10,000 Facebook fans and 1,700 Twitter followers engaged on our social media platforms. We host an active Discussion Forum with over 7,000 participants on our newer platform and nearly 70,000 users on our older platform where hundreds of guests browse our archived content each day.
Services include a toll-free hotline and a website with an active discussion forum, informative blog, newsletter, social media pages and numerous other resources. In 2015 we launched an Awareness-Building Campaign to reach the 80 percent of the 15-30 million people with Raynaud’s who do not realize their pain and discomfort has a medical explanation. Awareness and medical attention are important to prevent permanent blood vessel damage and to rule out more serious autoimmune diseases.
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Reviews for Raynauds Association Inc
I've learned so much about this disease here and I'm grateful for the work they do!
Because of the Raynaud's Association I have become aware of several items that can help me cope with my symptoms. I also feel like a part of community that understands what I experience. Kuddos the Raynaud's Association!
Incredibly helpful and useful resource for an underfunded cause. So many sufferers and even more who remain undiagnosed. Thanks.
Has a great facebook site with lots of information for Raynauds sufferers. Thank You Raynauds Association Inc!
This organization had helped me with ways to explain what Raynaud's is and how it affects me and my family. It is a great website to go for products that have been tested by Raynaud's suffers, instead of having to Google products and be overwhelmed by so many search results. It is great to be able to share stories ,advice, and help others.
I have it in my toes.....I look it up on the web and found this organization. I found out a lot of information and had questions.with them I was able to put my questions out their and found out I was not alone. Others was having the problems I was.It also offer help for u there. I purchase the toes Warmers that I found on that site.
As a fairly new Reynaud's sufferer it's great to see this organisation spreading the word and providing support.
I have Raynauds and it is a great help to have this resource
I have been a member for over 10 years. I am also a forum moderator. I enjoy meeting others who have Raynaud's and answering their questions. We share our experiences with Raynaud's.It helps to have someone listen to our stories and makes us feel that we are not alone.
1 person found this review helpful
I have been a member of the Raynaud's Association since 2005. I became a moderator on the discussion forum shortly after joining. It is so rewarding to interact with others and support fellow frosties who are seeking a diagnosis and treatment. Many people with Raynaud's are seeking help and information about Raynaud's. This website provides products, information and support to sufferers.
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It is so wonderful to have a resource for my condition. They provide me with support and resources that I can't get elsewhere.