Raynauds Association Inc
Rating: 4.87 stars 39 39 reviews 1,099
11 Topstone Road Redding CT 06896 USA
The Raynaud''s Association was founded to help Raynaud''s sufferers cope with day-to-day activities for maintaining or improving their quality of life. The organization is committed to: (1) Member Support Services - offering sharing, support, and education to fellow Raynaud''s sufferers. (2) Increasing Public Awareness of Raynaud''s - so more sufferers recognize the symptoms and seek treatment. (3) Helping the Medical Community Research Treatments and Potential Cures for Raynaud''s - through patient recruitment and, eventually, funding for research.
The organization is committed to:
(1) Member Support Services - offering sharing, support, and education to fellow Raynaud''s sufferers.
(2) Increasing Public Awareness of Raynaud''s - so more sufferers recognize the symptoms and seek treatment.
(3) Helping the Medical Community Research Treatments and Potential Cures for Raynaud''s - through patient recruitment and, eventually, funding for research.
2015-2016 Awareness Campaign results: TV Stations have aired over 16,000 public service announcements, generating over 238 million impressions worth over $6 million in donated media dollars. The spots continue to generate excellent media exposure throughout the warmer season. Facebook and YouTube videos have generated over 23,000 views. Social media posts announcing the video reached nearly 85,000 followers.
Direct beneficiaries per year:
The website had more 285,000 unique visitors in 2015 with monthly traffic during peak season averaging 40,000 visits. There are also more than 13,000 Facebook fans and 2,000 Twitter followers engaged on our social media platforms. We host an active Discussion Forum with 9,500 participants on our newer platform and nearly 70,000 users on our older platform where hundreds of guests browse our archived content each day.
Services include a toll-free hotline and a website with an active discussion forum, informative blog, newsletter, social media pages and numerous other resources. In 2015 we launched an Awareness-Building Campaign to reach the 80 percent of the 15-30 million people with Raynaud’s who do not realize their pain and discomfort has a medical explanation. Awareness and medical attention are important to prevent permanent blood vessel damage and to rule out more serious autoimmune diseases.
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Reviews for Raynauds Association Inc
After years of feeling alone. I am not.
Barbara R Dean
This is a disease that is all most silent, when it is cold my hands, fingers and toes turn blue, white and sometimes black. It is not easy at all my fingers n toes just ache on a daily basis and also my joints. I am so happy there is this site to help us and others understand what this is and how they can help someone. And the vendors too are great giving ideas for warmth and special deals on pricing..best site ever..
I was diagnosed with Raynauds in 2013. This website is very much appreciated. My doctor couldn't really give me any tips on daily living, so your blog is invaluable.
I first experienced Raynaud's about 12 years ago and had no idea what it was. I went to my doctor, he didn't know what it was... I lived that way just "dealing with it" until I conducted some research, took that info to another doctor, and was officially diagnosed with Raynaud's. I was the only person I knew with this condition. Since that time, I have discovered the Raynaud's Association and am a huge fan of their site. They continue to keep me and several others up to date with the newest research, potential methods to help reduce the frequency of a Raynaud's flare up, as well as new gadgets that can help! It is definitely my "go to" for the latest and greatest for trust worthy information. It also helps to be able to hear the stories from others that experience this and to know that I'm not alone. I highly recommend this site!!!
I was diagnosed at age 52, 10 months ago. I had no idea there was a name for what I'd been experiencing. I was given minimal information from my doctor other than "keep warm". In searching the Internet, I found the Raynaud's Association. THERE I found useful information and was connected with a network of support. I've learned so much and am so grateful to have this resource. The things I experience can be scary at times, and thru this organization, I don't feel alone since I don't know anyone personally who has this condition.
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The Raynaud's Association is, without a doubt, the best source of information for anyone with Raynaud's. They are always sharing the latest medical information, information about products and tips to help Raynaud's sufferers. So many people have Raynaud's but are undiagnosed because of the lack of awareness for this condition. The Raynaud's Association are working very hard at providing that awareness. I have found out more helpful information from them, than I have from my doctor.
1 person found this review helpful
I was diagnosed with Raynaud's 3 years ago and with little information from my Doctor I went to the Internet, and there I found the Raynaud's association Inc website. This group of dedicated individuals provide many fellow Raynaud's sufferers with a great resource for information, support, and awareness that I have found nowhere else. They provide information that helps living with Raynaud's more bearable!
When I was diagnosed with Raynaud's six months ago, I knew nothing about this disease but needed information. My online research led me to the Raynaud's Association website which provided information on the numerous symptoms, medical research, tips and information of products that help protect a Raynaud's sufferer. I have since purchased some of these products and they truly help me deal with this disease on a daily basis. I am also very thankful for their Facebook page and website forum that provides advice and information from others and reminds me that I am not the only one with this condition. Without the Raynaud's Association I would not have a useful resource for information nor would I know of the great products like my Volt Heated slippers. I appreciate all that this Association does, they are awesome!
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Helps me not feel like I am not alone,gives me a way to stay connected to new products and the newest medical findings. Or new medical ways to treat Raynaud's.
When i was finally able to capture an episode òn my cell to show my doc, he said "just as i thought,but there's nothing we can do about it...but these ppl may be able to help" and gave me the raynauds website. Finally a whole group of ppl who know exactly what I'm going thru and even tips and products that really help. I can't tell you how much it means to not feel all alone. FROSTIES ARE COOL!
Great resource! Incredible experience and caring people.
The Raynaud's Association has given me a platform to speak about my journey with Raynaud's Phenomenon. I felt alone, but once I found this association I met thousands of other sufferers. I have found some really great products to help ease the pain.