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Raynauds Association Inc

Rating: 4.94 stars   32 reviews 1,026

Address:

11 Topstone Road Redding CT 06896 USA

Mission:

The Raynaud''s Association was founded to help Raynaud''s sufferers cope with day-to-day activities for maintaining or improving their quality of life.

The organization is committed to:

(1) Member Support Services - offering sharing, support, and education to fellow Raynaud''s sufferers.

(2) Increasing Public Awareness of Raynaud''s - so more sufferers recognize the symptoms and seek treatment.

(3) Helping the Medical Community Research Treatments and Potential Cures for Raynaud''s - through patient recruitment and, eventually, funding for research.

Results:

2015-2016 Awareness Campaign results: TV Stations have aired over 16,000 public service announcements, generating over 238 million impressions worth over $6 million in donated media dollars. The spots continue to generate excellent media exposure throughout the warmer season. Facebook and YouTube videos have generated over 23,000 views. Social media posts announcing the video reached nearly 85,000 followers.

Direct beneficiaries per year:

The website had more 285,000 unique visitors in 2015 with monthly traffic during peak season averaging 40,000 visits. There are also more than 13,000 Facebook fans and 2,000 Twitter followers engaged on our social media platforms. We host an active Discussion Forum with 9,500 participants on our newer platform and nearly 70,000 users on our older platform where hundreds of guests browse our archived content each day.

Programs:

Services include a toll-free hotline and a website with an active discussion forum, informative blog, newsletter, social media pages and numerous other resources. In 2015 we launched an Awareness-Building Campaign to reach the 80 percent of the 15-30 million people with Raynaud’s who do not realize their pain and discomfort has a medical explanation. Awareness and medical attention are important to prevent permanent blood vessel damage and to rule out more serious autoimmune diseases.

2015 Top-Rated Nonprofit
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More Info

(800) 280-8055
www.raynauds.org

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Reviews for Raynauds Association Inc

Rating: 5 stars  

When i was finally able to capture an episode òn my cell to show my doc, he said "just as i thought,but there's nothing we can do about it...but these ppl may be able to help" and gave me the raynauds website. Finally a whole group of ppl who know exactly what I'm going thru and even tips and products that really help. I can't tell you how much it means to not feel all alone. FROSTIES ARE COOL!

 
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Rating: 5 stars  

Great resource! Incredible experience and caring people.

 
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Rating: 5 stars  

The Raynaud's Association has given me a platform to speak about my journey with Raynaud's Phenomenon. I felt alone, but once I found this association I met thousands of other sufferers. I have found some really great products to help ease the pain.

 
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Rating: 5 stars  

I'm very thankful for this site..it has given me lots of information and hope as I am not alone. Thanks for being there for me when I have questions, they are usually answered in some of your available posts.

 
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Rating: 5 stars  

2 people found this review helpful

I've learned so much about this disease here and I'm grateful for the work they do!

 
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Rating: 4 stars  

1 person found this review helpful

Because of the Raynaud's Association I have become aware of several items that can help me cope with my symptoms. I also feel like a part of community that understands what I experience. Kuddos the Raynaud's Association!

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

Incredibly helpful and useful resource for an underfunded cause. So many sufferers and even more who remain undiagnosed. Thanks.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

Has a great facebook site with lots of information for Raynauds sufferers. Thank You Raynauds Association Inc!

 
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Rating: 5 stars  

1 person found this review helpful

This organization had helped me with ways to explain what Raynaud's is and how it affects me and my family. It is a great website to go for products that have been tested by Raynaud's suffers, instead of having to Google products and be overwhelmed by so many search results. It is great to be able to share stories ,advice, and help others.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I have it in my toes.....I look it up on the web and found this organization. I found out a lot of information and had questions.with them I was able to put my questions out their and found out I was not alone. Others was having the problems I was.It also offer help for u there. I purchase the toes Warmers that I found on that site.

 
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