Pulmonary Fibrosis Foundation
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The mission of the Pulmonary Fibrosis Foundation (PFF) is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families.
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This group of folks is very supportive and informative. It has been a blessing to me. I have never met any of them. We share with one another and some folks have had that symptom and helps us with info. Most people, drs. Included haven't heard of PF or IPF. I was fortunate to get a very ... more »
I had the opportunity to learn about the Pulmonary Fibrosis Foundation from its outstanding Chief Operating Officer Patricia Tuomey. The organization serves many purposes including educating the public about this terrible disease, being a support system for those who suffer from it, and advocating ... more »
I began my journey with the Pulmonary Fibrosis Foundation as a caregiver and family member. We discovered the PFF after my father's battle with this horrible disease ended...but my experience and relationship with this fabulous Foundation was just beginning. Since his passing, I have helped to ... more »