Prostate Cancer International

Rating: 4.67 stars   114 reviews

Issues: Cancer

Location: P O Box 66355 Virginia Beach VA 23466 USA

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

2012 Top-Rated Nonprofit
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Community Reviews

9,309 Views
Rating: 5 stars  

If you have prostate cancer or think you might have prostate cancer, and you want to learn about the latest developments in the diagnosis and treatment of prostate cancer, then this is the internet site you must visit. What's unique about the site is the analysis and comments of "Sitemaster", who is a professional medical communications specialist extremely knowledgeable about prostate cancer. You can also ask Sitemaster questions about your personal situation and he will promptly respond with an unbiased, informative answer. For those interested, the site also offers social networking opportunities, and links to other sites related to prostate cancer research, clinical trials, and nationally adopted diagnosis and treatment standards.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

1 previous review
Rating: 5 stars  

As a person who has advanced prostate cancer, Prostate Cancer International (PCI) has provided me with invaluable unbiased, intellectually honest, and accurate information, comment, interaction, insight, and knowledge about the diagnosis and treatment of the disease. Complicated medical studies, abstracts, opinions, surveys, and articles are reveiwed by PCI and are translated into into easily understandable lay terms. PCI also sponsors an interactive social network where patients, caregivers, experts and the sitemaster can exchange information and obtain answers to difficult questions.

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I've personally experienced the results of this organization in...

using the information to make better informed decisions on treatment and diagnosis of prostate cancer

If I had to make changes to this organization, I would...

None

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

web surfing

1 previous review
Rating: 5 stars  

1 people found this review helpful

The New Prostate Cancer Infolink communicates the most current medical information on prostate cancer, including abstracts, conferences, research papers, FDA announcements, clinical trials, and general information. In addition, the "Sitemaster" provides excellent analysis of and insight into the information communicated. For example, when Provenge was approved by the FDA, Sitemaster discussed the relative cost of Provenge compared to the possible benefits, the available alternative treatments, the phase III clinical trial results, and the future of the treatment. I would not have fully understood the issues relating to Provenge if the Sitemaster had not posted the discussion. Sitemaster's discussion is unbiased and honest.

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I've personally experienced the results of this organization in...

evaluating treatment options for advanced prostate cancer

If I had to make changes to this organization, I would...

do nothing

Rating: 5 stars  

Best for accurate advice, no talking around the subject just srait answers.

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For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Rating: 5 stars  

1 people found this review helpful

I was diagnosed with prostate cancer in august 2011. My PSA was 8.44. The biopsy showed gleason score of 7and T2b stage prostate cancer.
I was 56 years old at the time with no health issue and very active. The amount of information and misinformation was overwhelming along with the stress of cancer diagnosis. The New Prostate Cancer InfoLink provided discussions and personal experiences which helped to make a decision on my treatment.

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I've personally experienced the results of this organization in...

helping me decide what was right for me.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

internet

Rating: 5 stars  

1 people found this review helpful

I rely on The New Prostate Cancer InfoLink--a part of Prostate Cancer International--to provide me with daily e-mails concerning current issues regarding prostate cancer. Those e-mails are extremely well written and very informative, and provide links to the studies, reports, and articles that the e-mails are discussing. I rely on those e-mails to keep me current on what is going on in the field of prostate cancer.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

1 previous review
Rating: 5 stars  

1 people found this review helpful

I get a free e-mail almost every evening containing between two and four articles about prostate cancer from Prostate Cancer International's New Prostate Cancer Infolink. The articles are uniformly highly-informative, well-written, well-reasoned, and unbiased. For someone at high risk for prostate cancer, I consider this free source of information on the Internet as important and admirable as I do Wikipedia. From what I see from the website, if I ever do develop prostate cancer, I will have free access to a wealth of sources for support and information. I cannot overemphasize my respect and gratitude for this nonprofit.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

1 previous review
Rating: 5 stars  

1 people found this review helpful

Prostate Cancer International has a website entitled, "The 'New' Prostate Cancer Infolink." Every evening, seven days a week, the website posts between one and three articles about prostate cancer. The articles generally discuss, and link to, a professional medical article about a particular topic in the area of prostate cancer.

The discussions are extremely well written, extremely helpful, and extremely well though out. The discussions closely examine the article under consideration, often critiqueing the logic, scientific bases, and conclusions in the articles.

The website is the ONLY medically-oriented website on the Internet that I have virtually complete trust and faith in.

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I've personally experienced the results of this organization in...

strengthening my understanding of all aspects of prostate cancer.

If I had to make changes to this organization, I would...

make no changes.

Rating: 5 stars  

2 people found this review helpful

I am a PCA survivor who has robotic radical prostatectomy surgery 2 years ago and have found this site to be one of the few places where ongoing, in depth information and new developments are reported and relayed. I have a brother 7 years younger than me, so I have an incentive to keep up with current developments in treatment - so that if, God forbid, he should be diagnosed with this disease, I want to be ready to help him make good decisions.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role: General Member of the Public
Rating: 4 stars  

1 people found this review helpful

This information was very valuable to me because i got to read facts of personal experiences that relate to my situation. I have not had the oppertunity to hear from people with similar symptons and situations. It made me relax a little more reading about others who are facing similar problems. The people who take part in this were quick to answer my questions and it helped me make decisions about what type of treatment to choose. I am very thakful that i became a part of this group and i appreciate the help.

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

Rating: 5 stars  

1 people found this review helpful

I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.

More Feedback

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Rating: 5 stars  

1 people found this review helpful

The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.

More Feedback

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role: General Member of the Public
Rating: 4 stars  

1 people found this review helpful

Very reassuring to be able to contact the experts behind the website and get their opinions on your situation as you progress through your own concer pathway

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Will you volunteer or donate to this organization?

Unlikely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

Rating: 5 stars  

2 people found this review helpful

I am a 59 year old man who was diagnosed with prostate cancer in 1999. Although I had surgery, followed by radiation therapy, followed by androgen-blocking therapy, the disease continued to progress and has metastasized to one area of my spine. The disease progression has been significantly retarded, I believe, by my participation in several clinical trials over the past several years, at Johns Hopkins and elsewhere. "The 'New' Prostate Cancer Infolink" is the best source of information I have found in my considerable research about cutting-edge prostate cancer issues, and especially about new drugs and clinical trials. It is of great importance to patients like me to have such a resource available. For example, the daily posts or blog that I receive from the sitemaster by email have helped me--and my physician--decide upon the appropriate sequencing of the several clinical trials for which I have been eligible. The issue of optimal sequencing is highly uncertain but is important, because choosing to participate in certain clinical trials early on can disqualify a patient from participating from other, potentially beneficial trials later on. I particularly like the site's daily blog because it is written in language that a layperson (like me, an antitrust lawyer) can readily understand, but the information is not simplistic or "dumbed down," and the blog provide links to articles and resources that are useful even to my oncologist. (My oncologist runs clinical trials himself, but he can't get to every conference that the Infolink sitemaster reports on.) In other words, the presentation of the information achieves an excellent balance of technical detail and accessibility. I am grateful for the efforts of those involved and for the clear, direct prose style of the blog.

More Feedback

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

Through a fellow participant in a clinical trial.

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