Rating: 4 stars 1 reviews
Issues: Children & Youth, Health, Cancer
Location: 21800 Town Center Plaza Suite #266A-633 Sterling VA 20164 USA
Mission: Founded in 1993, PRISMS, an all volunteer, nonprofit organization, is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS. We strive to help persons with SMS overcome the challenges they face so that they might lead fuller, healthier lives. SMS is a rare genetic chromosome deletion. There is no cure, but many of the symptoms can be treated effectively.
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Prisms is a great organization for finding information, parent support, fund raisers, & conferences for Smith-Magenis Syndrome (SMS). I've been involved with Prisms since Oct. 2000, shortly after our 4th daughter was diagnosed with SMS. Prisms does a wonderful job at putting newly diagnosed families in touch with 'seasoned' families with kids in similar age groups. Prisms also conducts conferences every 2 yrs & with monies raised in fund raisers all over the country, provide several families with 'scholarships' so that they may attend a conference.
I've personally experienced the results of this organization in...
I was a recipient of a scholarship for the Conference in Colorado in 2002
If I had to make changes to this organization, I would...
I don't know of anything I, personally, could do to change/improve this organization.