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Nonprofit Overview

Causes: Health, Health Care, Health Support, Medical Research, Patient & Family Support

Mission: The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including Reflex Sympathetic Dystrophy (RSD), Diabetic Neuropathy, Lyme Disease, MS, and Post Cancer Pain. We fulfill our mission by: * Promoting public and professional awareness of Neuropathy chronic pain conditions * Educating those afflicted with the syndrome, their families, friends and healthcare providers on the disabling pain it causes. * Action-oriented public awareness, education, and pain policy improvement through activities and efforts to eliminate the under treatment of chronic pain.

Results: Each year we participate in up to 75 events that involve education, awareness and combat social isolation for patients, caregivers, and providers.

Target demographics: low-income and under-insured patients, their families, caregivers and providers

Geographic areas served: International

Programs: Educational, Awareness, Social, Access to proper and timely care

Community Stories

54 Stories from Volunteers, Donors & Supporters

3

Volunteer

Rating: 5

I was diagnosed with MS in 1999, Power of Pain Foundation has been VERY helpful to me! I am not sure I would be the person I am today without them!

3

Volunteer

Rating: 5

I am home-bound, but have a spirited of perseverance and tenacity, which could prove to be a positive force in making awareness happen.

I was active as a young student in the church as a youth leader. We had outreach ministries which would visit local nursing homes and were involved with UNICEF.

I modeled on runways in Milano.

In my college years, I was involved in several outreach missions to volunteer for those less advantaged. I was also an officer in Delta Signa Pi, an international business fraternity. I excelled at public speaking.

After college, I was an IT consultant for several large firms here in Atlanta, including Coca Cola, IBM, and BellSouth, now AT&T.

My last official full-time job was at a AT&T in 1998 as a program manager to ensure Y2K compliance. I served in the capacity to unify the fragmented groups to a successful internal audit.

I was involved in a tornado on April 10, 1998. My back was involved and I lost my mobility temporarily.

Through countless visits to orthopedists and neurologists, I was sent to a back pain specialist whom I still see.

In the meantime, I have tried to maintain a positive attitude so that I could manage the pain before it managed me.

In 2011, I had an ER visit which resulted in hospitalization and a blood transfusion.

In 2014, I was sent to the ER again and received an injury which now has evolved into RSD, CRPS. In the meantime, I researched RSD and saw what my feet look like on Wiki.

5 Brandy E.

Volunteer

Rating: 5

Power of Pain is a great leader in the pain community. They help bring people together as well as helping in education. I am honored to be a part of them.

5

General Member of the Public

Rating: 5

I am so glad this foundation exists!! It has been great to know I'm not alone out there and there is wonderful people to turn to for information and advice. Yall do great work!! Thank you!

5

Client Served

Rating: 5

The Power of Pain Foundation has helped me and countless others living with severe neuropathic pain conditions. The founders and leaders are dynamic, compassionate, hard-working individuals who live with the reality of chronic pain and have selflessly chosen to turn that pain into power every day for patients like me. A very worthy and honest organization.

6 Twinkle W.

Board Member

Rating: 5

The National Power of Pain Foundation is productive in pain education, awareness, and access to care implementing opportunities for patient, caregiver, family member and provider involvement by putting a voice to and a spotlight on pain issues. Providing action-oriented public education and pain policy improvement through activities and efforts to eliminate the under treatment of chronic pain and increase proper access to care. The Power of Pain Foundation stresses the value in learning to be your own best advocate and the importance of patient empowerment. I'm happy to be apart of this great over-all team that strives to assist the pain community with free educational events that can be attended in person or by live stream, webinars, educational articles, activities, contests and more.

Previous Stories
13

Volunteer

Rating: 5

For many years I was one of many isolated pain patients who left home only for doctor appointments. Even though I worked to raise awareness, educate and support others it was via online. Joining POPF as their California Ambassador gave me the opportunity to get out into the community a few of times a year and make new memories with my family as we participated together. POPF works with Legislation, Pain Policy efforts toward Patient Access and much more. The Patient Fundraiser Program assists patients in reaching monetary goals toward treatment, surgeries, medications with a donation by POPF to either get started or help them reach their goal. The Mentor Program, Youth in Pain, Motivations From The Nerve Pain Community Newsletter, RSD Quilt, NERVEmber, Partnerships, free in person educational seminars, online webinars, educational and support programs, various national events, Comic Pain Relief, dedicated State and Youth Ambassadors, all offer and provide amazing resources to the nerve pain communities. Powerofpain.org, Rsdcrps.org , nervember.com , powerofpain.org/partnerships

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7 Jodi O.

Board Member

Rating: 5

I have been living with RSD since 1/9/90, and tried almost everything including 5 SCS until it became infected. We moved to AZ from Colorado hoping the weather would help. I met Barby 9 years ago and she became my mentor and friend. Her family started the POPF and they asked me if I wanted to become a volunteer. I was excited to help and eventually they wanted me to become a Board Member. Barby is president of the POPF and she is helping educate 1000's of people through conferences, Comic Pain Relief shows, sports events, and NERVEmber. I have enjoyed helping with NERVEmber, because we wear orange, share our stories, release balloons, participate in daily events, and share our story. We also have RSD Awareness Quilt Project, where people can send in a 12 x 12 square, sharing their story on it. Then the POPF has a group of people that volunteer to sew the squares together to make quilts. We put them up at different events throughout the year. I have found hope again, and believe that I can have Remission. Barby has written 7 books, made 4 Public Service Announcements, and writes a weekly newsletter, and she has several magazine, newspaper and radio articles. She has also been on the cover of several magazine's and she has done several television shows sharing her story. The POPF also added Arachnoiditis to it's list of 150+ neuropathies. We have Melissa Valliere who is a US Army Veteran living with RSD. Melissa is planning on skating (rollerblading) 46 miles in 2 days for NERVEmber and the POPF. Barby also provides us with several Facebook pages, and websites. She also has Barby's You-tube.com. I am fortunate to have met Barby when I did and for finding a true friend and she is someone who offers support, hope, education, tools, and she is a Cheerleader of Hope.

Previous Stories
11

Volunteer

Rating: 5

In 1990 I was diagnosed with Reflex Sympathetic Dystrophy (RSD). In 2006 I became friends with Barby Ingle, who also has RSD. Later that year, her family founded the Power Of Pain Foundation a 501-C-3 charity to help those in Chronic Pain due to a Neuropathy condition. The POPF offers education, awareness, and help. Barby has personally helped me understand RSD more in the last 6 1/2 years, then I did in the 16 years before meeting her. The POPF has a gift of reaching people, and showing them that there is hope and help. The POPF offers classes and events not only in AZ, but all over the US. In 2010 I became an executive board member and since the beginning with a start of 4 board members, they now have 14 ambassadors, 8 executive board members, 13 board of directors, and over 80 event volunteers in several states, that can also teach classes, and host events. The POPF teaches classes to caregivers, patients and providers many of them lack education on chronic pain. The POPF Chairman, Barby Ingle has written 4 successful books on Chronic Pain, and published several articles. She has even done some television, trying to educate the public. I want to say Thank You Barby Ingle and the Power of Pain Foundation, We love you for all you do to advocate for everyone with pain.

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8 Ken Taylor

Board Member

Rating: 5

As a part of POPF since it started in 2006 and became a NPO in 2007, I enjoy being a volunteer and board member, and currently serving as the Executive Director. POPF is a strong and growing organization that promotes awareness and education nerve pain diseases. The work being done to raise awareness and access to care is unique and valuable in the pain community. I am proud to be a part of this great #PowerofPainFoundationTeam

Previous Stories
13

Board Member

Rating: 5

As a part of Power of Pain Foundation i see a lot of lives being touched. POPF is a positive organization that promotes awareness and education for many conditions containing nerve pain as a symptom. It has been a great and gratifying experience helping and getting to know so many people. POPF grows each year on a national scale, expanding programs and projects that encourage and empower people living with chronic pain. I look forward what POPF can become and excited to work with many other great organizations along the way. We will continue the best we can to represent and bring awareness and education to those conditions less heard of. Together we can make a difference and we look forward to making a difference along with you.

Review from Guidestar

7 Brian L

Board Member

Rating: 5

I have been volunteering for the POPF since 2008. I currently serve as a board member for the 2015-2016 years. As the owner of Respond and Rescue and a licensed EMT, I know how important access to care is for the chronically ill. We encourage others to share their stories so that the spotlight on these neuropathy conditions. I personally work to increase knowledge of other EMT and first respondent so when they encounter pain patients in the field, they are sensitive to their pain care needs as well as first response needs and that they understand that additional care is needed over and beyond the typical emergency patient care. Please check out the POPF website for additional information on all of the great education, awareness, social, and access to care programs we have to offer the pain community.

Previous Stories
11

Board Member

Rating: 5

I have been volunteering for the POPF since 2008. I currently serve as a board member for the 2013-2014 years. as the owner of Safety First Training and a licensed EMT, I know how important access to care is for the chronically ill. We encourage others to share their stories so that the spotlight on these neuropathy condition can be made brighter and assistance can become more readily available. The POPF is doing this online, in-person events, social events and through supporting access to care issues on local and national levels! We are also helping patients who tend to isolate themselves get social and into public. This helps create a support system with mentors and pain patients who are in need of hope, ideas, and support. I am proud to be a board member of the Power of Pain Foundation because I see all of the great things that we do on a daily basis to assist patients

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7 Barby I.

Board Member

Rating: 5

Over the past few years the Power of Pain Foundation has grown significantly in the area of awareness of access to care for pain patients. We are in the process of creating a worldwide presents to make a difference. I encourage the public and people with invisible disabilities involving chronic pain to take some time to invest in the POPF Delegate program and other tools and resources offered by the POPF.

Previous Stories
12

Board Member

Rating: 5

The POPF has reached thousands of patients with chronic pain conditions/diseases that we have been able to help with pain resources, social activities, and raising awareness through creative projects such as our NERVEmber program, International RSD Awareness Quilt Project, Sleep Easy Program, State Ambassador program, disease specific information and so much more! I have been apart of the Power of Pain Foundation since its inception in November 2006. It has been a great honor and pleasure to work with so many great volunteers, patients, caregivers, and providers over the years. In January 2013 I was named to the chairman position of the Power of Pain Foundation for 13-14. Being halfway through my term as Chairman I am excited that we are continuing to grow and help so many people. Thanks to so many of you for all of the support and dedication to the pain community.

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