POWER OF PAIN FOUNDATION

Rating: 4.77 stars   44 reviews

Issues: Health

Location: 213 Nottingham Dr % Barby Ingle, Chairman Colonial Hgts VA 23834 USA

Mission: The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including Reflex Sympathetic Dystrophy (RSD), Diabetic Neuropathy, Lyme Disease, MS, and Post Cancer Pain. We fulfill our mission by: * Promoting public and professional awareness of Neuropathy chronic pain conditions * Educating those afflicted with the syndrome, their families, friends and healthcare providers on the disabling pain it causes. * Action-oriented public awareness, education, and pain policy improvement through activities and efforts to eliminate the under treatment of chronic pain.
Results: Each year we participate in up to 75 events that involve education, awareness and combat social isolation for patients, caregivers, and providers.
Target demographics: low-income and under-insured patients, their families, caregivers and providers
Geographic areas served: United States
Programs: Educational, Awareness, Social

2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

5 people found this review helpful

As I have attended and sat through many conferences in regards to the conundrum of chronic pain, and RSD/CRPS specifically, I have noticed that many of the concerns expressed surround the inability to find specialists, as well as others suffering, who understand the debilitating effects of chronic pain. As a result, hope and a desire for remission or healing can be lost which can eventually lead to a very destructive and demoralizing lifestyle. Having dealt with RSD and a conglomeration of other health issues myself, I can attest to the difficulties and challenges that these concerns place on one’s life. For me, hope was restored when I met Barby and Ken, founders and executive leaders of the Power of Pain Foundation. Since my meeting with Barby and Ken in September of 2009, I have been introduced to several beneficial treatments and physicians, as well as provided with the opportunity to participate in various events to raise awareness. The Power of Pain Foundation has also been extremely supportive of my thoughts and ideas to reach out and help others who are suffering from similar experiences. I am very proud and grateful to be affiliated with such a superb organization and then to be associated with people as extraordinary as Barby and Ken. They, and others of this great organization, have helped me get my life back on track and continue to be a huge support in all of my current endeavors.

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1 previous review
Rating: 5 stars  

5 people found this review helpful

In the spring of 2009, I was diagnosed with RSD. At that time, I had very little knowledge of this painful neuropathy and for the most part, was lost and unsure about how I was going to function with this debilitating form of chronic pain. Later that year, I was introduced to Barby Ingle and her husband Ken, and that's when I encountered a turning point in my life. Barby is the Executive Director of the Power of Pain Foundation and it was through her and this organization that I found hope, guidance, and a surety that I would be able to move forward with my life. I have personally witnessed the powerful and positive impact that this foundation has had in the lives of many people. The Power of Pain Foundation has an unwavering and stalwart dedication to educate and help those of us that are suffering from several different forms of chronic pain. I am extremely honored to be given a chance to become more associated with the Power of Pain Foundation as a board member and give of myself just as Barby and others have given of themselves for me. I will be forever grateful to the Power of Pain Foundation and its members for how this organization has helped me find power over my pain.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

3 people found this review helpful

I am a 23 year old male that has been fighting Rsd since I was 16. I first found out about The Power of Pain foundation last year. My Rsd was spreading and getting worse every day. I had contacted every doctor and organization i could find. Every doctor I saw said that i would be in pain for the rest of my life and there was no way to even manage or slow the progression. I emailed power of pain and was surprised how helpful and kind Barby and ken were. Barby has help me find treatment and has help me realize that you can live a normal life with rsd. Thank you Barby and Ken you have inspired me to continue fighting no matter how bad it gets. I look forward to helping in any way i can.

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Rating: 5 stars  

5 people found this review helpful

For many years I was one of many isolated pain patients who left home only for doctor appointments. Even though I worked to raise awareness, educate and support others it was via online. Joining POPF as their California Ambassador gave me the opportunity to get out into the community a few of times a year and make new memories with my family as we participated together. POPF works with Legislation, Pain Policy efforts toward Patient Access and much more. The Patient Fundraiser Program assists patients in reaching monetary goals toward treatment, surgeries, medications with a donation by POPF to either get started or help them reach their goal. The Mentor Program, Youth in Pain, Motivations From The Nerve Pain Community Newsletter, RSD Quilt, NERVEmber, Partnerships, free in person educational seminars, online webinars, educational and support programs, various national events, Comic Pain Relief, dedicated State and Youth Ambassadors, all offer and provide amazing resources to the nerve pain communities. Powerofpain.org, Rsdcrps.org , nervember.com , powerofpain.org/partnerships

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1 previous review
Rating: 5 stars  

3 people found this review helpful

The Power of Pain Foundation started Pain Awareness Month off with pom poms high! PAINWeek 2013 with Barby Ingle live from Las Vegas NV co hosted the Living with HOPE Radio Show with featured Host Trudy Thomas. A one hour live show highlighted 4 special guests for 15 minutes for the 2 day line-up. The Chronic Pain Solutions Webinar hosted by the POPF featured Dr. Twogood who told us about inflammatory foods and substances and how to avoid them to reduce or remove inflammation in the body. The 7th Annual P.A.I.N. Summit September 14, 2013 is also hosted by the Power of Pain Foundation and provides a great avenue of resources toward pain education for providers, patients and their caregivers. The physician's attending and guest line up is amazing. This conference is both live from Scottsdale Healthcare Shea Conference Center and online via UStream. National Pain Awareness Month isn't even over yet. There is much I haven't shared and much more to come! I am honored to be a part of such a wonderful team! My fellow Ambassadors work throughout the year in each of the State's they represent. The Power of Pain Foundation continues to grow not only in the area of CRPS/RSD but in Autonomic Neuropathy, Autoimmune Neuropathy and other Neuropathic conditions. Now when you go to POPF's website and click on Neuropathies on the Menu Bar an in depth list appears with information regarding each related neuropathic illness. My education continues because of POPF, my wish for a cure remains hopeful. We are raising awareness with passionate spirit and with our motivation for a cure, we are turning pain to power.

~Twinkle VanFleet, POPF California Ambassador

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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1 previous review
Rating: 5 stars  

8 people found this review helpful

I would recommend the Power of Pain Foundation to anyone with Chronic Pain, a Neuropathy condition or someone needing to learn about them especially Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome/Causalgia. I became a volunteer working for this amazing Foundation early this year so that I can help continue their work in California. I had the opportunity to meet Barby Ingle and her husband Ken at the 6th Annual Neuropathy Action Awareness Day hosted by the Neuropathy Action Foundation (NAF) last month. Barby is as kind in person as she has ever been online. She works so hard even when she's going through her own medical treatments when instead she should be resting or taking days off. She lives with the same pain we do and I admire her. The POPF has pain related information and educational packets to be given away free at all their awareness events. The Board of Directors are wonderful. The Power of Pain Foundation not only helps the patients but caregivers, too. They answer everyone's questions and assist in any way they can. I'm proud to belong to such a great team.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Role: Professional with expertise in this field
Rating: 5 stars  

6 people found this review helpful

I am a clinical social worker and also host a radio show Brain Train on voiceamerica.com health and wellness channel. I had the opportunity to interview Ms Barby Ingle from the POPF on the show. She was very knowledgable and excellent at communicating their foundations mission, goals, and successes. She is a joy to work with! I have also been involved with them when they were distributing donated mattress' with a program they were involved with in previous years. Everything I have seen and/or been involved in with the POPF has always been a golden success!

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Rating: 5 stars  

6 people found this review helpful

I volunteer with this great organization... bigger and better things every year to help find a cure for various pain disorders...

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Rating: 5 stars  

6 people found this review helpful

Over the years I have seen many organizations come and go. They usually claim to help unknown people in unknown ways. That's what is different with the Power of Pain. They do most of their work on a one-to-one basis. They help real people directly; no matter what a person may need they try to help.

As an Ambassador for the Power of Pain, I am proud to be a part of the organization even in a small way. I have never endorsed or volunteered before, but they made an impact in my life and hope they can in yours.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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1 previous review
Rating: 5 stars  

4 people found this review helpful

My favorite thing about the POPF is their helping people at a personal level. Not pie in the sky where you never know where the money goes, but people-to-people. Since getting RSD/CRPS in 2005, I have worked with many organizations that promote awareness. None come close to what the Power of Pain does as far as support, information and their program for raising awareness at the community level is unparallelled.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

4 people found this review helpful

I have been volunteering for the POPF since 2008. I currently serve as a board member for the 2013-2014 years. as the owner of Safety First Training and a licensed EMT, I know how important access to care is for the chronically ill. We encourage others to share their stories so that the spotlight on these neuropathy condition can be made brighter and assistance can become more readily available. The POPF is doing this online, in-person events, social events and through supporting access to care issues on local and national levels! We are also helping patients who tend to isolate themselves get social and into public. This helps create a support system with mentors and pain patients who are in need of hope, ideas, and support. I am proud to be a board member of the Power of Pain Foundation because I see all of the great things that we do on a daily basis to assist patients

If I had to make changes to this organization, I would...

Increase donations so we can do even more.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

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1 previous review
Rating: 5 stars  

3 people found this review helpful

I have been volunteering for the POPF since 2008 after I met my wife's sister who has a chronic pain condition. Since then I have learned so much about how important access to care is for the chronically ill. I have also learned that sharing a spotlight on these neuropathy conditions with the community is vital in getting proper support for the patients. The POPF is doing this! They also help patients who tend to isolate themselves get out into the public and create a support system with mentors and pain patients who are in need of hope, ideas, and support. I am proud to be a volunteer and board member of the POPF because I see all of the great things that they are up to.

If I had to make changes to this organization, I would...

Bring in more funding so they can expand their reach.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

4 people found this review helpful

I have had the pleasure of working in collaboration with Barby from the Power of Pain Foundation. She truly cares about the individuals she works with and makes every effort to provide prompt outreach to those in need of resources and assistance. Thank you Barby and POPF!!!!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

6 people found this review helpful

As a part of Power of Pain Foundation i see a lot of lives being touched. POPF is a positive organization that promotes awareness and education for many conditions containing nerve pain as a symptom. It has been a great and gratifying experience helping and getting to know so many people. POPF grows each year on a national scale, expanding programs and projects that encourage and empower people living with chronic pain. I look forward what POPF can become and excited to work with many other great organizations along the way. We will continue the best we can to represent and bring awareness and education to those conditions less heard of. Together we can make a difference and we look forward to making a difference along with you.

If I had to make changes to this organization, I would...

Focus on programs that are worthy of grants to bring in more money to make a bigger difference and touch more lives.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

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Review from Guidestar
Rating: 5 stars  

5 people found this review helpful

The POPF has reached thousands of patients with chronic pain conditions/diseases that we have been able to help with pain resources, social activities, and raising awareness through creative projects such as our NERVEmber program, International RSD Awareness Quilt Project, Sleep Easy Program, State Ambassador program, disease specific information and so much more! I have been apart of the Power of Pain Foundation since its inception in November 2006. It has been a great honor and pleasure to work with so many great volunteers, patients, caregivers, and providers over the years. In January 2013 I was named to the chairman position of the Power of Pain Foundation for 13-14. Being halfway through my term as Chairman I am excited that we are continuing to grow and help so many people. Thanks to so many of you for all of the support and dedication to the pain community.

If I had to make changes to this organization, I would...

I would increase the income from donations, grants and fundraising so that we could assist even more people!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

3 people found this review helpful

I have been apart of the Power of Pain Foundation since its inception in November 2006. It has been a great honor and pleasure to work with so many great volunteers, patients, caregivers, and providers over the years. I am so excited to now be the Chairman of the Power of Pain Foundation and look forward to being apart of it for many more to come. We have a reach of thousands of patients with all sorts of chronic pain conditions that we help with pain resources, social activities, and raising awareness through creative projects such as our NERVEmber program.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

2 people found this review helpful

It has been a great pleasure working with the Power of Pain Foundation on so many projects and events to help the pain community. One of the things I love best is that the POPF works with so many patients with different types of Neuropathy conditions. Their resources are top notch and their mentoring program is great as well. People can get involved at many different levels with the POPF and I am glad to be a volunteer and donor for POPF!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

1 person found this review helpful

I have been working as a volunteer for the Power of Pain Foundation since 2007. I am involved with the awareness program, motivational and mentoring program and social outings programs. I have seen first hand how the POPF helps patients with financial and emotional supports, provides resources to the pain community and stays on top of cutting health information in the pain community. The patients, caregivers and healthcare providers involved in the POPF are great assets. The POPF has a unique approach to working with the pain community by giving views from all three perspectives. We work on improving quality of chronic illness care, direct supports, and public and professional awareness of the issues and challenges of living with chronic pain on a daily basis.

I've personally experienced the results of this organization in...

As a patient mentor I have personally experienced the good that comes from when a bad situation leads patients and their support systems into taking action and gaining the tools to become their own best advocate. I have been able to see how the patient grants help our grantees and their gratitude when someone shows them that there is help, hope and people do care. I help people turn their pain to power!

If I had to make changes to this organization, I would...

Increase awareness events and funding for patient grants. This can only be done thorugh donations and grant writing. I wish the POPF could help more people, because I know how much it has to offer the pain community on a grand scale.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

Their events are very organized and professional. I would change their budget to a larger one so that more people could recieve the benefits of the POPF.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

I have meet so many wonderful patients, caregivers and healthcare professionals from around the country. I have learned how to create action oriented change to better the pain community. I have learned how much personal interaction can help pain patients.

How did this volunteer experience make you feel?

I am so happy to be able to volunteer for the POPF because it makes me feel that I am doing something. I have power to become my own best advocate and I can now teach others that they too can do this!

When was your last experience with this nonprofit?

2011

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