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Phone: 904-894-9745
P.O. Box 47603
Jacksonville
Florida 32247
USA
Website
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Target demographics: All those affected by Polymicrogyria (PMG) as well as the public and medical professionals in general.

Geographic areas served: International

Programs: Advocacy, Awareness Outreach, Support for Families, Research

Mission:
The PMG Awareness Organization is an international non-profit organization of families, caregivers, and medical professionals who care about those with Polymicrogyria (PMG). Our mission is to promote awareness, diagnosis, and the treatment of Polymicrogyria through education, research, advocacy, and support for individuals with Polymicrogyria, their families, and other concerned parties.
Results:
 Reached thousands of people globally through our website and social networking venues
 Developed an informational pamphlet to be distributed to families and health care providers in all areas of medicine and therapies in English and are currently translating it to all major languages
 Designed the “Contact a Family” program; an international list of parents and grandparents willing to help other families cope with the diagnosis and issues related to PMG
 Recruited an incredibly talented and diverse Board of Directors and Executive Advisory Board
 Collaborated with key nonprofit educators and partners
 Obtained our Incorporation as a nonprofit organization based in Jacksonville, Florida
 Applied for our IRS 501(c)(3) application for a charitable organization


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27 Reviews
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03/25/14
i am an adult with bps pmg epc hit when i was 55yr old 2009 i am /was a nurse but am now a pt . disabled what i have gone through has been a rollercoaster ride of reports and emotions each month something new attacked my body and still is . trying to understand what was happening to my ... more »
This group goes above and beyond to get families together and to research all kinds of information and support for families with children who have been diagnosed with PMG. The organizers are driven by their liove and dedication to their own children and by their desire to gather up and help all ... more »
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