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PMG Awareness Organization, Inc. Overview
The PMG Awareness Organization is an international non-profit organization of families, caregivers, and medical professionals who care about those with Polymicrogyria (PMG). Our mission is to promote awareness, diagnosis, and the treatment of Polymicrogyria through education, research, advocacy, and support for individuals with Polymicrogyria, their families, and other concerned parties.
Reached thousands of people globally through our website and social networking venues
Developed an informational pamphlet to be distributed to families and health care providers in all areas of medicine and therapies in English and are currently translating it to all major languages
Designed the “Contact a Family” program; an international list of parents and grandparents willing to help other families cope with the diagnosis and issues related to PMG
Recruited an incredibly talented and diverse Board of Directors and Executive Advisory Board
Collaborated with key nonprofit educators and partners
Obtained our Incorporation as a nonprofit organization based in Jacksonville, Florida
Applied for our IRS 501(c)(3) application for a charitable organization
Invite friends and colleagues to share their experiences with this nonprofit
On the days when the answers don't seem so easy to process and the challenges are even greater, I know that the folks at PMG Awareness Organization are there to help me. We celebrate the milestones together and sympathize in a way that no one else can. I have made connections with others who have ...
This group goes above and beyond to get families together and to research all kinds of information and support for families with children who have been diagnosed with PMG. The organizers are driven by their liove and dedication to their own children and by their desire to gather up and help all ...
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My son has PMG & when we first got the diagnosis, we were scared & felt alone. This organization made us realize that we're not alone...
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