On the days when the answers don't seem so easy to process and the challenges are even greater, I know that the folks at PMG Awareness Organization are there to help me. We celebrate the milestones together and sympathize in a way that no one else can. I have made connections with others who have helped to navigate this road.
Great organization that creates awareness for this rare disease. We have many new contacts and resources due to their work!
I love this non profit, they give me a chance to connect with other parents and get great info regarding my PMG baby.
PMG Awarness is like a family. Any questions I might have with my daughter I ask ask and get other families thoughts. It is very helpful and thoughtful.
PMG affects each person in a different way and there is no question that without the help, support guidance that this group provides, many of us would be lost at trying to understand what our kiddos face. We cannot say it enough... Thank you thank you thank you!!!
Organization has really helped bring awareness and families together. Honoring our children, fighting a lifelong battle.
This organization has been so helpful! So much knowledge and support!
This organization has helped me work through all of the problems that my daughter and I have faced since she was diagnosed with pmg in 2008. I continue to gain knowledge and support continuously by being a part of pmg awareness organization. When I felt completely lost and did not know where to turn they were there to help me through. I am blessed to have found a place here where I can get what I need and relate to those who understand.
What a great resource for any family with Polymicrogyria. This site helped us immensely, especially during the diagnosis period. We hope they continue to provide the same level of support for families all around the world